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Scott Murphy. - Welcome.

This website is all about Scott Murphy a normal, yet unique, man who sadly passed away on Friday 27th April 2012 after living with a rare genetic condition called Von Hippel-Lindau (VHL) . There is...

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Scott Murphy. - Welcome. | scottmurphyvhl.weebly.com Reviews

https://scottmurphyvhl.weebly.com

This website is all about Scott Murphy a normal, yet unique, man who sadly passed away on Friday 27th April 2012 after living with a rare genetic condition called Von Hippel-Lindau (VHL) . There is...

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Fundraising. - Scott Murphy.

http://scottmurphyvhl.weebly.com/fundraising.html

Virgin money london marathon. . I, Ian Lowe, am currently training for the Virgin Money London Marathon. On 26th April 2015. This will be my first marathon and somewhat further than the longest charity run I have done before; the Manchester 10k. I have decided to run on behalf of Help the Hospices. Virgin money giving page. On Saturday 28th August 2011 there was a Charity Event held at Flixton Football club. The event had a football match, tombola, raffle, barbecue, bouncy castles, DJs, and children...

2

Scott's Story. - Scott Murphy.

http://scottmurphyvhl.weebly.com/scotts-story.html

He was forced to withdraw from this course at college and give up his potential career. Instead taking a job at ASDA which was just about the only company willing to employ Scott with his condition, rather than stay at home and accept disability benefits. In January 2011, Scott woke up and his eyesight had gone completely, and he was registered blind. He was admitted to hospital with other issues, not solely his eyesight, spending approximately six weeks in hospital before returning home. When Scott came...

3

About VHL. - Scott Murphy.

http://scottmurphyvhl.weebly.com/about-vhl.html

Is a genetic condition whereby there is a flaw in a specific gene which in a non-VHL person prevents the growth of tumours. The VHL condition therefore results in tumours growing, mainly down the spine, in the brain and behind the eyes. The vhl alliance (VHla). Is a charity based in the USA, and is dedicated to research, education, and support to improve diagnosis, treatment, and quality of life for those affected by VHL. Von Hippel-Lindau Contact Group (VHLCG). Create a free website.

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vhl-uk-ireland.blogspot.com vhl-uk-ireland.blogspot.com

VHL UK/Ireland Blog: April 2015

http://vhl-uk-ireland.blogspot.com/2015_04_01_archive.html

Monday, 6 April 2015. Why I'm running the London Marathon 2015. I guess I’ll start by telling you a bit about myself and my connection to VHL. My name is Ian, I’m a 25 year old accountant from Manchester and I’m currently training for the London Marathon in memory of one of my closest friends, Scott, who lost his battle against VHL in 2012 at the age of 23. Rather than take you through all of the treatment, operations and endless weeks spent in hospital, I'd rather discuss the impact he’s had on my...

vhl-uk-ireland.blogspot.com vhl-uk-ireland.blogspot.com

VHL UK/Ireland Blog: Why I'm running the London Marathon 2015

http://vhl-uk-ireland.blogspot.com/2015/04/why-im-running-london-marathon-2015.html

Monday, 6 April 2015. Why I'm running the London Marathon 2015. I guess I’ll start by telling you a bit about myself and my connection to VHL. My name is Ian, I’m a 25 year old accountant from Manchester and I’m currently training for the London Marathon in memory of one of my closest friends, Scott, who lost his battle against VHL in 2012 at the age of 23. Rather than take you through all of the treatment, operations and endless weeks spent in hospital, I'd rather discuss the impact he’s had on my...

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Scott Murphy. - Welcome.

This website is all about Scott Murphy a normal, yet unique, man who sadly passed away on Friday 27th April 2012 after living with a rare genetic condition called Von Hippel-Lindau (VHL). There is much more about Scott's life in the Scott's Story. Section of this website, a biography if you like. Alongside raising awareness of VHL, and spreading Scott's story, this website is also designed to raise much needed funds. For the causes that helped Scott throughout his battle. Create a free website.

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Scott Murray

Written by Scott Murray. Published: 12 May 2007. This site started life as www.scottmurray.com. Still live) and was administered by Morag O’Hanlon. But Morag is a pretty busy woman; besides caring for many horses and teaching riding, she helped her daughter Selena prepare for the Canadian Olympic Team and compete as an equestrian at the Beijing Olympics. In 2007, Ozzi Jarvinen took over the administration of the site and changed it to www.scottmurray.info.

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