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Thank You | Rafi's Run

http://www.rafisrun.com/thank-you

Because the cost of doing nothing is too great and success is in the doing we organized Rafi’s Run, a 5k run/walk and a Kids’ Fun Run to raise money for EB Research. The 4th annual Rafi’s Run will happen on Sunday March 8, 2015 at 10 am in Riverside Park. Enter Riverside Park at 103rd Street. Rafi’s Run would not be successful without the tremendous support that we receive from so many people. We would like to thank the following individuals, groups and corporations for their incredible generosity:.

debra.org

debra of America's 2014 Patient Care Conference | Debra of America - Dystrophic Epidermolysis Bullosa Research Association

http://www.debra.org/pcc2014

Skip to the navigation. Skip to the content. Current Research Trials for Epidermolysis Bullosa. Int'l Research Symposium. What is debra of America. Staff and Board of Directors. Annual Reports and Financials. Debra of America Brochure. EB in the News. Government Affairs and Legal Aid. Registry of EB Physicians. Help for New Parents. Help for New Parents. Fundraise for debra of America. Plan a Supporter Led Event. Share our Logos and Banners. Debra of America Events. 2014 PATIENT CARE CONFERENCE. To see p...

rafisrun.com

EB Kids | Rafi's Run

http://www.rafisrun.com/eb-kids

Because the cost of doing nothing is too great and success is in the doing we organized Rafi’s Run, a 5k run/walk and a Kids’ Fun Run to raise money for EB Research. The 4th annual Rafi’s Run will happen on Sunday March 8, 2015 at 10 am in Riverside Park. Enter Riverside Park at 103rd Street. Sign in to Your Page Here. Become a Corporate Sponsor! Rafi Would Like to Thank Our Sponsors.

rafisrun.com

Press | Rafi's Run

http://www.rafisrun.com/press

Because the cost of doing nothing is too great and success is in the doing we organized Rafi’s Run, a 5k run/walk and a Kids’ Fun Run to raise money for EB Research. The 4th annual Rafi’s Run will happen on Sunday March 8, 2015 at 10 am in Riverside Park. Enter Riverside Park at 103rd Street. We were thrilled that several national and local media outlets chose to promote EB awareness and feature the story of Rafi’s Run over the past few weeks. Please find links to many of these stories below:. The Dystro...

rafisrun.com

About EB | Rafi's Run

http://www.rafisrun.com/about-eb

Because the cost of doing nothing is too great and success is in the doing we organized Rafi’s Run, a 5k run/walk and a Kids’ Fun Run to raise money for EB Research. The 4th annual Rafi’s Run will happen on Sunday March 8, 2015 at 10 am in Riverside Park. Enter Riverside Park at 103rd Street. Wounds caused by the disorder may never heal and they are prone to life threatening infections. Recessive Dystrophic EB Rafi’s Diagnosis. Children with Rafi’s diagnosis unfortunately live a difficult life and even w...

rafisrun.com

Get Involved | Rafi's Run

http://www.rafisrun.com/get-involved

Because the cost of doing nothing is too great and success is in the doing we organized Rafi’s Run, a 5k run/walk and a Kids’ Fun Run to raise money for EB Research. The 4th annual Rafi’s Run will happen on Sunday March 8, 2015 at 10 am in Riverside Park. Enter Riverside Park at 103rd Street. Sign up for the Adult 5K or the Kids’ Fun Run. Registration is creating a fundraising page. Suggested minimum raise is $250. Find and donate to a Rafi’s Run participant, or make a general donation.

rafisrun.com

Photos | Rafi's Run

http://www.rafisrun.com/photos

Because the cost of doing nothing is too great and success is in the doing we organized Rafi’s Run, a 5k run/walk and a Kids’ Fun Run to raise money for EB Research. The 4th annual Rafi’s Run will happen on Sunday March 8, 2015 at 10 am in Riverside Park. Enter Riverside Park at 103rd Street. Click here for Photos from the First Annual Rafi’s Run. Sign up for the Adult 5K or the Kids’ Fun Run. Registration is creating a fundraising page. Suggested minimum raise is $250. Sign in to Your Page Here.

rafisrun.com

About Rafi | Rafi's Run

http://www.rafisrun.com/about-rafi

Because the cost of doing nothing is too great and success is in the doing we organized Rafi’s Run, a 5k run/walk and a Kids’ Fun Run to raise money for EB Research. The 4th annual Rafi’s Run will happen on Sunday March 8, 2015 at 10 am in Riverside Park. Enter Riverside Park at 103rd Street. In the words of Jackie and Brett Kopelan, Rafi’s parents:. Put yourself in Rafi’s shoes for a minute. This is your day:. 8th Kid in the World to Receive a Stem Cell Transplant for EB. Rafi, Jackie and Brett Kopelan.