pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: September 2014
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Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Tuesday, September 30, 2014. Fine Motor and Written Expression. It has been fascinating to watch Ayden Jane work on learning to express her thoughts on paper. I was amazed both by how hard this process is for her and her perseverance to stick with it until the very end. Monday, September 22, 2014. Ayden Jane loved it! I just love that Mrs. C has Ayden Jane do the written work li...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: May 2015
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Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, May 31, 2015. PWS Awareness month - wrap up. As this years edition of PWS posts come to a close, what is most on my mind is how much less I have to say about PWS at this point. Wait. Maybe it's not less as I have tons of information packed in this head of mine that has been acquired over the past 7 years. Maybe it's just different? The waiting to see which of the long list o...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: February 2015
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Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Saturday, February 28, 2015. Today was Saturday. It was a wonderful Saturday. It started like any other Saturday with Ayden Jane waking me up to ask if I could turn on cartoons for her to watch so she could cuddle up in bed for a bit before breakfast. (she still gets up early.) By 7:30 or 8 we were headed out to the kitchen and had a nice breakfast. While on the sideline I was talki...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: October 2014
http://pwsgulley.blogspot.com/2014_10_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Tuesday, October 21, 2014. Busy - Life's Theme. This fall is racing by. Ayden Jane is doing great in school and she is participating in several after school activities. She is one happy, busy little first grader. Thursday she has her other day of swim team. Instilling the idea of daily exercise has been a great benefit to Ayden Jane. Since she is a routine kid she does not feel ...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: July 2015
http://pwsgulley.blogspot.com/2015_07_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Thursday, July 30, 2015. Cranking up the Carnitine. So as usual, I was not satisfied with things going well. I needed to know if they could be even better! I did the math and decided I was going to go for a third dose of carnitine. It will put Ayden Jane at a total of about 46 mg/kg. Sunday, July 26, 2015. The added carntine has been just the ticket for Ayden Jane. Her energy le...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: Her Number
http://pwsgulley.blogspot.com/2015/07/her-number.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, July 12, 2015. Dealing with and discussing weight management with a 7 year old just seems wrong. We have taken to just having a scale out and Ayden Jane jumps on it from time to time. No schedules or charts or whatever. I get a kick out of how Ayden Jane calls her weight her 'number.'. Subscribe to: Post Comments (Atom). View my complete profile. Cranking up the Carnitine.
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: January 2015
http://pwsgulley.blogspot.com/2015_01_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Friday, January 30, 2015. A friend saw a piece that a fellow mom of a child with PWS wrote for The Mighty. The challenge was put out to answer this question: If you could go back to the day you (or a loved one) got a diagnosis, what would you tell yourself? She challenged me to answer the same question. You will be frustrated beyond words at times. You will at times feel isolate...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: Perspective
http://pwsgulley.blogspot.com/2015/08/perspective.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Saturday, August 1, 2015. I watched Ayden Jane play at the beach today. More specifically, I watched her work crazy hard to keep up with twins one year older (who are very athletic). She rode boogie boards with them. The waves were big and the current strong but she kept at it. She was a part of the gang and she was very happy to be with them. Subscribe to: Post Comments (Atom).
susieandellie.blogspot.com
Find our new location!: March 2012
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Find our new location! Friday, March 30, 2012. Sorry to all of you who memorized our web address! I'm making changes, and that included changing our name. You can follow all of our adventures over at:. Http:/ shewillamazeyou.blogspot.com. Subscribe to: Posts (Atom). We're just a normal family: husband, wife, son and daughter. What sets us apart, is that E has Prader-Willi Syndrome. This is our family's story, mostly E's story. View my complete profile. Ethereal template. Powered by Blogger.
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Amazing Adventures of Ayden Jane: Carnitine Fiasco
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Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Wednesday, July 15, 2015. For whatever reason, Ayden Jane needs a lot of carnitine and is very sensitive to the type and the dosage of it. You would think this would make me nearly paranoid with how I dose it daily. You would think. Since the CF provides physical energy it could very well be the culprit for her some what lower energy level recently. Also, I'm thinking it may be ...
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