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Jaylon's Journey | Sickle cell disease and hope for a better life

Sickle cell disease and hope for a better life

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Jaylon's Journey | Sickle cell disease and hope for a better life | shreved.wordpress.com Reviews
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Sickle cell disease and hope for a better life
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1 jaylon's journey
2 donation information
3 our goal
4 pictures
5 shout outs
6 thank you
7 upcoming events
8 posted by shreved
9 leave a comment
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jaylon's journey,donation information,our goal,pictures,shout outs,thank you,upcoming events,posted by shreved,leave a comment,posted in uncategorized,bittersweet,sleeping,1 comment,on the floor,denise,2 comments,waiting and watching,worrier/warrior,chemo
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Jaylon's Journey | Sickle cell disease and hope for a better life | shreved.wordpress.com Reviews

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Sickle cell disease and hope for a better life

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1

Pictures! | Jaylon's Journey

https://shreved.wordpress.com/pictures

Sickle cell disease and hope for a better life. 8211; Sickle Cell Hurts….You Can Help! Christie, Jaylon and Renee. The Man of the Hour. A Selfless gift of Love. Part of the Transplant Team. The donor preparesA selfless offering – getting the bone marrowThe Man of the HourA Love Offering. By: Jani, Sharon and Karen. On July 22, 2009. Thank you for the wonderful food that kept coming and coming….we had a great time! By the way….Jaylon and I make a cute couple. On July 23, 2009. On July 26, 2009. Bobby and ...

2

Bittersweet | Jaylon's Journey

https://shreved.wordpress.com/2009/09/13/bittersweet

Sickle cell disease and hope for a better life. 8211; Sickle Cell Hurts….You Can Help! September 13, 2009. There is one thing for certain on this journey. Expect to experience almost every emotion known to man. Jaylon will also have to be weaned from all. I’m anxious about going home, apprehensive really. Will I be able to do care for his port correctly? What about the H1N1 virus? Will I be able to protect him from that. Take a deep breath, 1 thing at a time, 1 hour at a time, 1 day at a time! You are co...

3

Quiet, God At Work | Jaylon's Journey

https://shreved.wordpress.com/2009/08/18/quiet-god-at-work

Sickle cell disease and hope for a better life. 8211; Sickle Cell Hurts….You Can Help! August 18, 2009. Quiet, God At Work. I can remember, as a little girl, sitting with my grandmother when it would storm outside. She would go through the apartment turning off the TV, the lights and she wouldn’t answer the phone. She would say, “Honey, when it’s stormin you’ve got to sit down and let God do his work”! Laquo; And Then There Were 2. Leave a Reply Cancel reply. Enter your comment here. You are commenting u...

4

Shout Outs! | Jaylon's Journey

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Sickle cell disease and hope for a better life. 8211; Sickle Cell Hurts….You Can Help! This “Shout Out” is for one of many very special nurses who has helped to take care of Jaylon. Trevorline S. – J5, thank you for your dedication to excellence and sharing your story. 07/30/09 would have been a much more difficult day without you. I know we will reconnect at the hospital once we get there. To Dr Rhodes, Thanks for not giving up on us as we floundered to come to the best decision for Jaylon. Nashvill...

5

On The Floor | Jaylon's Journey

https://shreved.wordpress.com/2009/09/05/on-the-floor

Sickle cell disease and hope for a better life. 8211; Sickle Cell Hurts….You Can Help! September 5, 2009. I’m praying for you precious one. I am praying for your family who will miss you so. I’m praying that God will meet you where you need to be met. And if it is His will, at yourappointed hour that He will cradle you in His arms and hold you, give you the strength to go on. Laquo; 2 Day – A.M/P.M. Your blog is beautiful and I cry with you every time I read it! On September 10, 2009.

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Jaylon's Journey | Sickle cell disease and hope for a better life

Sickle cell disease and hope for a better life. 8211; Sickle Cell Hurts….You Can Help! February 26, 2010. September 18, 2009. Pack your things – you’re going home! The 1st thing that we had to do was to go to the nurse educator to learn how to care for Jaylon’s central line in his chest. Not too bad, would I remember how to do this at home? Next, review Jaylon’s medications. Morning meds – afternoon meds – evening meds. Bath’s? Are they sending someone home with me to remind me and help me? It is so amaz...

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