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SKIP-NMD clinical trial now progressing to part 2. Sarepta Therapeutics Announces First Patient Dosed in European Phase I/II Study of SRP-4053 in Duchenne Muscular Dystrophy Patients. Information regarding the SKIP-NMD clinical trial of Sarepta’s drug candidate SRP-4053 is now available on www.clinicaltrials.gov. SKIP-NMD Webinar now available. SKIP-NMD Webinar for DMD families on 8th September. SKIP-NMD is an EU FP7. The dystrophin gene is made up of 79 protein coding regions called exons (numbered boxe...

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SKIP-NMD | skip-nmd.eu Reviews

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SKIP-NMD clinical trial now progressing to part 2. Sarepta Therapeutics Announces First Patient Dosed in European Phase I/II Study of SRP-4053 in Duchenne Muscular Dystrophy Patients. Information regarding the SKIP-NMD clinical trial of Sarepta’s drug candidate SRP-4053 is now available on www.clinicaltrials.gov. SKIP-NMD Webinar now available. SKIP-NMD Webinar for DMD families on 8th September. SKIP-NMD is an EU FP7. The dystrophin gene is made up of 79 protein coding regions called exons (numbered boxe...

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SKIP-NMD | skip-nmd.eu Reviews

https://skip-nmd.eu

SKIP-NMD clinical trial now progressing to part 2. Sarepta Therapeutics Announces First Patient Dosed in European Phase I/II Study of SRP-4053 in Duchenne Muscular Dystrophy Patients. Information regarding the SKIP-NMD clinical trial of Sarepta’s drug candidate SRP-4053 is now available on www.clinicaltrials.gov. SKIP-NMD Webinar now available. SKIP-NMD Webinar for DMD families on 8th September. SKIP-NMD is an EU FP7. The dystrophin gene is made up of 79 protein coding regions called exons (numbered boxe...

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skip-nmd.eu

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Publications

http://www.skip-nmd.eu/publications

SKIP-NMD clinical trial now progressing to part 2. Sarepta Therapeutics Announces First Patient Dosed in European Phase I/II Study of SRP-4053 in Duchenne Muscular Dystrophy Patients. Information regarding the SKIP-NMD clinical trial of Sarepta’s drug candidate SRP-4053 is now available on www.clinicaltrials.gov. SKIP-NMD Webinar now available. SKIP-NMD Webinar for DMD families on 8th September. Latest publications available soon. 169; SKIP-NMD 2012.

2

Sarepta Therapeutics Announces First Patient Dosed in European Phase I/II Study of SRP-4053 in Duchenne Muscular Dystrophy Patients

http://www.skip-nmd.eu/news_pub/First-patient-dosed

Sarepta Therapeutics Announces First Patient Do. Rare Disease Day 2013. European Neuromuscular Centre (ENMC) workshop. GSK announces support for AllTrials campaign for clinical data transparency. Drisapersen (skips exon 51) US phase II clinical trial. SKIP-NMD advertised in the on-line TREAT-NMD newsletter. 18th International World Muscle Society Congress, 1-5th October 2013, California USA. Members of the Skip-NMD consortium met in Rome on 2nd-3rd June 2014 for the scheduled 6 monthly meeting. The full ...

3

News & Events

http://www.skip-nmd.eu/news

SKIP-NMD clinical trial now progressing to part 2. Sarepta Therapeutics Announces First Patient Dosed in European Phase I/II Study of SRP-4053 in Duchenne Muscular Dystrophy Patients. Information regarding the SKIP-NMD clinical trial of Sarepta’s drug candidate SRP-4053 is now available on www.clinicaltrials.gov. SKIP-NMD Webinar now available. SKIP-NMD Webinar for DMD families on 8th September. The final SKIP-NMD meeting was held on the 28th-29th of April in London, organised by the Coordinator UCL.

4

Patients Area

http://www.skip-nmd.eu/patients-area

The drug to be used in SKIP-NMD. SKIP-NMD is an international consortium. Where are we now? SKIP-NMD Webinar for DMD families. SKIP-NMD clinical trial now progressing to part 2. Sarepta Therapeutics Announces First Patient Dosed in European Phase I/II Study of SRP-4053 in Duchenne Muscular Dystrophy Patients. Information regarding the SKIP-NMD clinical trial of Sarepta’s drug candidate SRP-4053 is now available on www.clinicaltrials.gov. SKIP-NMD Webinar now available. What is Duchenne muscular dystrophy?

5

SKIP-NMD Webinar for DMD families on 8th September

http://www.skip-nmd.eu/news_pub/Webinar-8th-September

SKIP-NMD Webinar for DMD families on 8th September. Rare Disease Day 2013. European Neuromuscular Centre (ENMC) workshop. GSK announces support for AllTrials campaign for clinical data transparency. Drisapersen (skips exon 51) US phase II clinical trial. SKIP-NMD advertised in the on-line TREAT-NMD newsletter. 18th International World Muscle Society Congress, 1-5th October 2013, California USA. Members of the Skip-NMD consortium met in Rome on 2nd-3rd June 2014 for the scheduled 6 monthly meeting. A webi...

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treat-nmd.eu

TREAT-NMD : Care overview

http://www.treat-nmd.eu/resources/care-overview

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

treat-nmd.eu

TREAT-NMD : TACT : TREAT-NMD Advisory Committee for Therapeutics

http://www.treat-nmd.eu/tact

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

treat-nmd.eu

TREAT-NMD : Frequently Asked Questions

http://www.treat-nmd.eu/resources/post-marketing-surveillance/FAQs

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

treat-nmd.eu

TREAT-NMD : Introduction

http://www.treat-nmd.eu/resources/post-marketing-surveillance/introduction

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

treat-nmd.eu

TREAT-NMD : TREAT-NMD Post Marketing Surveillance Webinar

http://www.treat-nmd.eu/resources/post-marketing-surveillance/webinar

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

treat-nmd.eu

TREAT-NMD : NMR (MRI and MRS) as an outcome measure

http://www.treat-nmd.eu/NMR

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

treat-nmd.eu

TREAT-NMD : Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.

http://www.treat-nmd.eu/home.php

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

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Des collaborations en Europe et dans le monde | AFM-Téléthon

http://www.afm-telethon.fr/guerir/international-938

Avant le Téléthon 2016. Concerné par la maladie. 01 69 47 11 78. Vous êtes ici :. Faîtes un don en ligne. Javascript désactivé : calcul du coût réel impossible. C'est ce que vous coûtera ce don après les 66% de réduction d'impôt. Ligne directe donateurs : 0825 07 90 95 (0,15 TTC/min prix d’un appel local). Faites un don au 3637. Impulser des collaborations en Europe et dans le monde. Acteur-clé de la recherche internationale. Réseau européen pour le développement de traitements des maladies neuromusculai...

treat-nmd.eu

TREAT-NMD : Care standards for SMA

http://www.treat-nmd.eu/resources/care-overview/sma

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

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SKIP-NMD clinical trial now progressing to part 2. Sarepta Therapeutics Announces First Patient Dosed in European Phase I/II Study of SRP-4053 in Duchenne Muscular Dystrophy Patients. Information regarding the SKIP-NMD clinical trial of Sarepta’s drug candidate SRP-4053 is now available on www.clinicaltrials.gov. SKIP-NMD Webinar now available. SKIP-NMD Webinar for DMD families on 8th September. SKIP-NMD is an EU FP7. The dystrophin gene is made up of 79 protein coding regions called exons (numbered boxe...

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