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Turn on more accessible mode. Turn off more accessible mode. Skip to main content. SpainRDR - Data and Reports. Welcome to the SpainRDR website. The Spanish Rare Diseases Registries Research Network-SpainRDR. Is a project financed by the Institute of Health Carlos III (ISCIII) within the scope of the IRDiRC for the years 2012 to 2014 with 2.4 M . 160; . 160; . 160;The International Rare Diseases Research Consortium. EUROPEAN PLATFORM FOR RARE DISEASES REGISTRIES . 160; GLOBAL RARE DI...

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Turn on more accessible mode. Turn off more accessible mode. Skip to main content. SpainRDR - Data and Reports. Welcome to the SpainRDR website. The Spanish Rare Diseases Registries Research Network-SpainRDR. Is a project financed by the Institute of Health Carlos III (ISCIII) within the scope of the IRDiRC for the years 2012 to 2014 with 2.4 M . 160; . 160; . 160;The International Rare Diseases Research Consortium. EUROPEAN PLATFORM FOR RARE DISEASES REGISTRIES . 160; GLOBAL RARE DI...

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https://spainrdr.isciii.es

Turn on more accessible mode. Turn off more accessible mode. Skip to main content. SpainRDR - Data and Reports. Welcome to the SpainRDR website. The Spanish Rare Diseases Registries Research Network-SpainRDR. Is a project financed by the Institute of Health Carlos III (ISCIII) within the scope of the IRDiRC for the years 2012 to 2014 with 2.4 M . 160; . 160; . 160;The International Rare Diseases Research Consortium. EUROPEAN PLATFORM FOR RARE DISEASES REGISTRIES . 160; GLOBAL RARE DI...

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spainrdr.isciii.es

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https://spainrdr.isciii.es/en

Turn on more accessible mode. Turn off more accessible mode. Skip to main content. SpainRDR - Data and Reports. Welcome to the SpainRDR website. The Spanish Rare Diseases Registries Research Network-SpainRDR. Is a project financed by the Institute of Health Carlos III (ISCIII) within the scope of the IRDiRC for the years 2012 to 2014 with 2.4 M . 160; . 160; . 160;The International Rare Diseases Research Consortium. EUROPEAN PLATFORM FOR RARE DISEASES REGISTRIES . 160; GLOBAL RARE DI...

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National

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Turn on more accessible mode. Turn off more accessible mode. Skip to main content. SpainRDR - Data and Reports. National Rare Diseases Registry. The National Registry of Rare Diseases (RNER), with headquarters in the Rare Disease Research Institute (IIER), Instituto de Salud Carlos III (ISCIII), is a registry of national scope which attempts. To collect information of all the persons diagnosed with any of the diseases considered to be rare. Or of low prevalence. Https:/ registroraras.isciii.es.

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Biobank

https://spainrdr.isciii.es/en/pages/Biobank.aspx

Turn on more accessible mode. Turn off more accessible mode. Skip to main content. SpainRDR - Data and Reports. Samples in liquid nitrogen. National Rare Disease Biobank. National Rare Disease Biobank is created by Order of November 14, 2013 issued by the Ministry of Economy and Competitiveness. The order establishes that the National Rare Disease Biobank remain attached to the Department through the Institute of Health Carlos III. The operational and functional. Responsibility lies with the. In this one...

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Patient

https://spainrdr.isciii.es/en/pages/Patient.aspx

Turn on more accessible mode. Turn off more accessible mode. Skip to main content. SpainRDR - Data and Reports. MEDICAL SOCIETIES AND RESEARCHERS COLLABORATING WITH THE SPANISH. NATIONAL RARE DISEASES REGISTRY AND THE SpainRDR NETWORK:. INCORPORATION OF PATIENT REGISTRIES. This collaboration respects registry identity and management autonomy. Spanish national Rare Diseases Registry and SpainRDR network facilitates the required criteria and rules to clinicians, researchers or networks interested in th...

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Autonomous

https://spainrdr.isciii.es/en/pages/Autonomous.aspx

Turn on more accessible mode. Turn off more accessible mode. Skip to main content. SpainRDR - Data and Reports. Autonomous Communities RD Registries. Rare Diseases registries or health services in Autonomous Communities. Comunidad Foral de Navarra.

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registroraras.isciii.es

Instituto de Salud Carlos III - Versión:3.0.17

https://registroraras.isciii.es/Comun/Inicio.aspx

Bienvenido al Registro Nacional de Enfermedades Raras. El Registro Nacional de Enfermedades Raras del Instituto de Salud Carlos III (ISCIII), está coordinado y dirigido desde el Instituto de Investigación en Enfermedades Raras (IIER), centro perteneciente al ISCIII y que también forma parte del CIBERER (Consorcio de Investigación Biomédica en Red de Enfermedades Raras). Este registro tiene tres vías de entrada de datos diferentes:. Documento sin título. Instituto de Salud Carlos III - Avda. Monforte ...

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Turn on more accessible mode. Turn off more accessible mode. Skip to main content. SpainRDR - Data and Reports. Welcome to the SpainRDR website. The Spanish Rare Diseases Registries Research Network-SpainRDR. Is a project financed by the Institute of Health Carlos III (ISCIII) within the scope of the IRDiRC for the years 2012 to 2014 with 2.4 M . 160; . 160; . 160;The International Rare Diseases Research Consortium. EUROPEAN PLATFORM FOR RARE DISEASES REGISTRIES . 160; GLOBAL RARE DI...

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