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The Scleroderma Patient-centered Intervention Network

an organization of researchers, health care providers, and people living with scleroderma from around the world. Individuals and organizations involved in SPIN are working on a novel research project with the goal to develop, adapt and test new and existing programs to help people with scleroderma cope with their illness and manage their daily lives. The areas covered by the programs developed by SPIN include, but are not limited to, managing symptoms, daily tasks, and emotions related to illness, as well a

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Roo●●●101

Mon●●●eal , Quebec, H2X 0A8

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sa●●●●●●●●●@mcgill.ca

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The Scleroderma Patient-centered Intervention Network | spinsclero.com Reviews

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an organization of researchers, health care providers, and people living with scleroderma from around the world. Individuals and organizations involved in SPIN are working on a novel research project with the goal to develop, adapt and test new and existing programs to help people with scleroderma cope with their illness and manage their daily lives. The areas covered by the programs developed by SPIN include, but are not limited to, managing symptoms, daily tasks, and emotions related to illness, as well a

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4 methodological cores

5 steering committee

6 directors and coordinators

7 spin members

8 spin trainees

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The Scleroderma Patient-centered Intervention Network | spinsclero.com Reviews

https://spinsclero.com

an organization of researchers, health care providers, and people living with scleroderma from around the world. Individuals and organizations involved in SPIN are working on a novel research project with the goal to develop, adapt and test new and existing programs to help people with scleroderma cope with their illness and manage their daily lives. The areas covered by the programs developed by SPIN include, but are not limited to, managing symptoms, daily tasks, and emotions related to illness, as well a

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spinsclero.com

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PUBLICATIONS

https://www.spinsclero.com/publications

Skip To The Main Content. PEER-REVIEWED ORAL CONFERENCE PRESENTATIONS 2015. 1Kwakkenbos L, Thombs BD, Bartlett S, Hudson M, Mouthon L, Malcarne V, Sauve M, Khanna D, SPIN investigators. The PROMIS-29 in systemic sclerosis: associations with clinical characteristics. PHO Inaugural Meeting, Philadelphia, USA. May 2015. PEER-REVIEWED CONFERENCE POSTER PRESENTATIONS 2015. 2Gumuchian S, Delisle V, Razykov I, Carrier ME, El-Baalbaki G, Kwakkenbos L, Thombs BD, Bartlett S. Focus groups to inform the develop...

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2014 SPIN Project Teams Meeting

https://www.spinsclero.com/events/2014/07/25/default-calendar/2014-spin-project-teams-meeting

Skip To The Main Content. 2014 SPIN Project Teams Meeting. 25 – 26 Jul, 2014. We will be discussing many items, but mainly the 4 teams will work on the development of their intervention.

3

Try-out of video recordings for online programs

https://www.spinsclero.com/news/2015/04/16/try-out-of-video-recordings-for-online-programs

Skip To The Main Content. Please fill-out all the fields to continue. Try-out of video recordings for online programs. By Marie-Eve Carrier Apr 16, 2015. On Monday April 6. In the next months, the SPIN team will record videos of experts in mental health and scleroderma, as well as experiences from individuals living with scleroderma, which will be crucial to the further development of the online supportive programs. Show oldest on top. Show newest on top. Aug 10, 2016. Aug 04, 2016. Well, she did, and al...

4

Update on the SPIN Cohort study

https://www.spinsclero.com/news/2015/02/25/update-on-the-spin-cohort-study

Skip To The Main Content. Please fill-out all the fields to continue. Update on the SPIN Cohort study. By Linda Kwakkenbos Feb 25, 2015. Enrolment in the SPIN Cohort is going very well. We started almost a year ago, in March 2014, with a couple of pilot-sites, and after smoothing out some bumps along the way, we now have 23 sites enrolling participants for our study!

5

Body Image Team Meeting

https://www.spinsclero.com/news/2013/05/09/body-image-team-meeting

Skip To The Main Content. Please fill-out all the fields to continue. Body Image Team Meeting. By Diane Gaudreau May 09, 2013. The weekend of April 27.

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Skip To The Main Content. Caption. Link to Google. Share your scleroderma story. Try-out of video recordings for online programs. Update on the SPIN Cohort study. Dr Linda Kwakkenbos is the new Co-Director of SPIN. Body Image Team Meeting. 2014 SPIN Project Teams Meeting.

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