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News - Global Prader-Willi Syndrome Registry
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Behavior, medications, supplements, mental health). Written by: Jessica Bohonowych. Last update by: Jessica Bohonowych. First posted: 8/13/2015 9:00:50 PM. Last updated: 8/13/2015 9:00:50 PM. We are so excited to announce that the questionnaires on medications, supplements, behavior, and mental health are now available in the registry! If you already have an account, please come on in and add your information. If you don't already have an account, now is a great time to get started! Guide to Getting Star...
About Global Prader-Willi Syndrome Registry - Global Prader-Willi Syndrome Registry
https://www.pwsregistry.org/Home/About
About Global Prader-Willi Syndrome Registry. About Global Prader-Willi Syndrome Registry. Welcome to the Global Prader-Willi Syndrome Registry. The purpose of the registry is to develop a comprehensive database of individuals with PWS to better understand the full spectrum of PWS characteristics, to expedite the completion of clinical trials, and to determine areas of needed research and treatments to improve the lives of those affected by PWS. STEPS TO THE ENROLLMENT PROCESS. Download our Instruction Gu...
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