sudepaware.org
Campaign materials & events
http://www.sudepaware.org/msos_materials.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). The eToolkit is a set of documents designed to improve understanding of SUDEP and to facilitate its discussion among families, healthcare providers, death investigation professionals and researchers. If you would like to add your organizations logo/details to these brochures, please contact us. Rather than download it to your site. The first compo...
sudepaware.org
SUDEP campaign
http://www.sudepaware.org/msos_home.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). MAKING SENSE OF SUDEP. Sudden Unexpected Death in Epilepsy). 1 in 100 people have recurrent seizures, or ‘epilepsy’. 1 in 1000 people with epilepsy die from SUDEP each year. The cause of SUDEP remains unknown. It’s time to take action and Make Sense of SUDEP. We need to:. Increase awareness and understanding of SUDEP. Ldquo;Awareness is the first ...
sudepaware.org
In Memoriam SUDEP Calendar
http://www.sudepaware.org/in_memoriam_calendar.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). We invite you to join our campaign to honour those we have lost to SUDEP, by populating our In Memoriam calendar. The pain of losing a loved one to SUDEP persists each and every day and intensifies around the anniversary of passing. Will be of some comfort to those who feel alone in dealing with their loss. We also hope that p.
sudepaware.org
SUDEP support
http://www.sudepaware.org/sudep_support.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Understands how terribly alone SUDEP-bereaved families can feel in their plight for information and to find out what happened to their loved one. Or call toll-free on 1-855-85-SUDEP (78337). Further information and support is also available from the following agencies:. And Internationally on SUDEP and other epilepsy-related deaths.
epilepsyed.org
Epilepsy Education Everywhere | Resources & Downloadables
http://epilepsyed.org/resources-downloadables
Facts & FAQ. History of Epilepsy Timeline. Resources & Downloadables. Our Board of Directors. Resources & Downloadables. Follow us on Twitter. Join our Facebook Group. Besides your doctor, there are many local, national, and international organizations available to help people with epilepsy. Many of these organizations have local support groups or online forums for you to ask other people with epilepsy your questions. American Academy of Neurology. Centers for Disease Control and Prevention. The SmartWat...
makingsenseofsudep.org
SUDEP Global Conversation
http://www.makingsenseofsudep.org/global_conversation.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). In 2005, Epilepsy Australia. And Epilepsy Bereaved UK. Sudden Unexpected Death in Epilepsy: a global conversation. An updated edition continuing the. Was published in 2011, with SUDEP Aware. This volume, six years after the first edition of. Sudden Unexpected Death in Epilepsy: a global conversation. Solomon L Moshé MD. This new edition of the.
makingsenseofsudep.org
About SUDEP
http://www.makingsenseofsudep.org/about_sudep.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Refers to the unexpected death of an individual, with a diagnosis of epilepsy, who dies suddenly, in benign circumstances, without a structural or toxicological cause for death being found at autopsy. It is not a condition or disease, but rather the category to which these types of unexplained deaths are assigned. SUDEP definition per Nashef 1997.
sudepaware.org
SUDEP Campaign: how you can help
http://www.sudepaware.org/msos_you_can_help.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Help us Make Sense of SUDEP. To the Making Sense of SUDEP campaign eNewsletter. And keep up-to-date with the latest:. SUDEP information and campaign news. Upcoming awareness or fundraising events near you. The new Making Sense of SUDEP campaign eBrochures. Young adults with epilepsy. Parents of children with epilepsy. People bereaved by epilepsy.
sudepaware.org
Further SUDEP Information
http://www.sudepaware.org/documentation_science_articles.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Scientific journal articles concerning SUDEP. Related articles are published in scientific journals that can be found at your local science/medical library. For a listing of these articles, see the. Those available online are detailed, in date order, below. Donner EJ (2011),. 2), 45-49, American Epilepsy Society. British Journal of General Practice.
