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Talynn's Journey - Home

Talynn's Journey

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Talynn's Journey - Home | talynnsjourney.com Reviews
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Talynn&#039;s Journey
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1 talynn's journey
2 bohring opitz syndrome
3 about talynn
4 what's new
5 social media
6 gallery
7 bos awareness products
8 blessings
9 welcome
10 talynn's story
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Talynn's Journey - Home | talynnsjourney.com Reviews

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1

Blessings – Talynn's Journey

http://www.talynnsjourney.com/blessings.html

Thank you to all of the people and businesses who have helped support Talynn through this journey. These gifts have been a huge blessing to our family. We are blessed to be surrounded by such a loving and supportive group of people! If you would like to make a donation please email us at tngurganus@gmail.com. Our Family and Friends. Sandy Cross Baptist Church. Cut It Out Vinyl Designs. Jernigan Oil and Propane. Katherine’s Beauty Nook. The Hargett, Boyce and Robertson Families. The Stallings’ Family.

2

Bohring-Opitz Syndrome Foundation – Talynn's Journey

http://www.talynnsjourney.com/bohring-opitz-syndrome.html

September 25, 2015. March 12, 2016. I am more than happy to announce that Bohring-Opitz Syndrome now has a foundation! Carrie (a BOS mom) and myself had been discussing starting a foundation, we knew it was going to be a lot of work but also knew it was something that BOS needed. With the help of our two additional board members (Sara and Gina) we were able to get the ball rolling. For more information on the foundation please click the link below: www.bos-foundation.org. Posted in: Mommy of BOS Blog.

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Talynn – Bohring-Opitz Syndrome

https://bohring-opitz.org/family-stories/talynn

A worldwide exchange of information and awareness. Bohring-Opitz Syndrome / ASXL1. Map “Children with BOS”. Other Cases which are compared with BOS. High 5 for BOS. The Pulmonologist and Pediatrician thought it would be beneficial to increase her caloric intake (27 calories), have a video swallow study done, and refer her to a pediatric ENT and GI. The next 4 months were the HARDEST! He did find that Talynn’s ears were extremely loaded with fluid and he had to do incisions in both ears and he was only ab...

onequietlife.blogspot.com onequietlife.blogspot.com

One Quiet Life: May 2015

http://onequietlife.blogspot.com/2015_05_01_archive.html

Why A Quiet Life? Reading Well in 2016. Thursday, May 28, 2015. This week, I am particularly thankful for:. Twenty-two years of marriage, thanks to the love of a godly man and the Lord's abundant grace. We're closing in on knowing each other longer than. Knowing each other. We are in a sweet spot right now and I don't want to take that for granted. A quiet neighborhood that allows me to hear the birds singing. The opportunities the Lord is giving my girl to grow this summer. I've realized that one of the...

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Talynn's Journey - Home

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