tazjaksha.blogspot.com
Life on Podtburg Circle...My chronicle of raising two beautiful children, one with a rare genetic condition known as the CDKL5 Disorder or Atypical Rett Syndrome.
http://tazjaksha.blogspot.com/
My chronicle of raising two beautiful children, one with a rare genetic condition known as the CDKL5 Disorder or Atypical Rett Syndrome.
http://tazjaksha.blogspot.com/
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Life on Podtburg Circle... | tazjaksha.blogspot.com Reviews
https://tazjaksha.blogspot.com
My chronicle of raising two beautiful children, one with a rare genetic condition known as the CDKL5 Disorder or Atypical Rett Syndrome.
tazjaksha.blogspot.com
Life on Podtburg Circle...: CDKL5 Life
http://tazjaksha.blogspot.com/p/cdkl5-life.html
Parenthood is about raising and celebrating the child you have, not the child you thought you would have. It's about understanding that he is exactly the person he is supposed to be. And that, if you're lucky, he just might be the teacher who turns you into the person you are supposed to be.” -Joan Ryan. Ava’s health quirks are due to an eight base-pair deletion (c.1547 1554del8) on her CDKL5. Gene We call this the CDKL5 disorder. And it is/was referred to as. Minimal sign language due to awful fine moto...
Life on Podtburg Circle...
http://tazjaksha.blogspot.com/2014/09/visit-www.html
Tuesday, September 02, 2014. Visit www.cdkl5.com to learn more. Posted by Amanda Jaksha. Subscribe to: Post Comments (Atom). Hope lies in dreams, in imagination, and in the. Courage of those who dare to make dreams into reality." -J Salk. In a gentle way, you can shake the world." -Mahatma Gandhi. If things start happening, don't worry, don't stew, just go right along and you'll start happening too." -Dr Seuss. The butterfly counts not months but moments, and has time enough." R Tagore. Other nice words ...
Life on Podtburg Circle...: A Memorial Day to Forget
http://tazjaksha.blogspot.com/2008/03/memorial-day-to-forget.html
Saturday, March 08, 2008. A Memorial Day to Forget. Our little girl Ava’s big story began in late May of 2006, Memorial Day to be exact. As she laid on the floor napping like any eight-month old does I heard a peculiar sound from her and quickly noticed some very violent muscle and eye movements. 8220;You must be over reacting” I’m pretty sure this is what he woke up saying in his dazed state. Hmmm…I don’t think so but what the hell did just happen? I’m not sure if anyone reading this has ever witn...
Life on Podtburg Circle...: Star Throwers Wanted!
http://tazjaksha.blogspot.com/p/star-thrower.html
Consider becoming a Star Thrower. No amount is too big or small; it is the single best way to help advance Ava's quality of life. We need a megalopolis of heroes! Adapted from The Star Thrower. By Loren Eiseley (1907 - 1977). Once upon a time, there was a wise man who liked to go to the ocean and walk on the beach. I must ask, why are you throwing starfish into the ocean? Asked the somewhat startled wise man. You can't possibly make a difference! An original story written by Loren Eiseley, is a classic t...
Life on Podtburg Circle...
http://tazjaksha.blogspot.com/2014/12/blog-post.html
Monday, December 08, 2014. Posted by Amanda Jaksha. Subscribe to: Post Comments (Atom). Hope lies in dreams, in imagination, and in the. Courage of those who dare to make dreams into reality." -J Salk. In a gentle way, you can shake the world." -Mahatma Gandhi. If things start happening, don't worry, don't stew, just go right along and you'll start happening too." -Dr Seuss. The butterfly counts not months but moments, and has time enough." R Tagore. A child is a curly dimpled lunatic." -R W Emerson.
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Monster Max: Meet Max, CblX...
http://www.maxwatson.org/2013/09/meet-max-cblx.html
Thursday, September 5, 2013. Meet Max, CblX. In September 2011, Max's doctors took a blood sample from me and Steve. That sample would be tested and DNA extracted to try to pinpoint exactly what Max's metabolic disease was. Only that we were hearing some interesting new things and would learn more as time went on. This past year, we've certainly learned more about the findings, and today we can officially announce the name, and present the paper on Max's disease. Max is Subject 1. It was Max's doctors an...
Monster Max: contribute
http://www.maxwatson.org/p/contribute.html
The ads on this page help to pay for Max's expenses. Thank you for reading the blog and clicking on any links that may be of interest to you. If you would be willing to donate via Paypal, please click the link below. To contribute via other means, please contact the Trustee. Please note contributions to the Maximilian M. Watson Special Needs Trust may not be considered tax-deductible in your locale. Subscribe to: Posts (Atom). King Of The Wild Things. Maurice Sendak "Where The Wild Things Are". Max has h...
Monster Max: Turtle Power...
http://www.maxwatson.org/2015/06/turtle-power.html
Sunday, June 21, 2015. We're still doing the summertime thing.resting, trying to keep cool, and doctors appointments. Max has a new interest, and as it goes when he tells us something new he likes, we try to let him enjoy it as much as he likes. His newly found joy is in turtles. And I'm not talking about the teenage mutant type either. We took him to our local aquarium today to let him see some of the big guys up close. The first animal he saw was this giant snapping turtle. Max found a new friend.
Monster Max: Once upon a time, There was a nurse...
http://www.maxwatson.org/2012/05/once-upon-time-there-was-nurse.html
Wednesday, May 9, 2012. Once upon a time, There was a nurse. Once upon a time, there was a baby boy named Max. Max was perfect in every way. Except for, he wasn't. There were storms brewing inside of baby Max, that we didn't know of. In February 2004, we took Max to California, to the ocean for the first time. He was calm, his forever sleepy eyes drawn awake to the rhythm of the waves. Upon arriving home, we got in with another neurologist. One at Children's Hospital Colorado. Our perfect boy. . . Someon...
Monster Max: Nonni...
http://www.maxwatson.org/2015/08/nonni.html
Monday, August 3, 2015. I opened Max's webpage to see when the last time I posted something was. Wow.I don't think I've ever missed a whole month before. My last post eluded to a lot of changes happening in our lives right now. July was full of life stuff, and ended with our saying good-bye to Max's Nonni, my mom. As he got older, she was his loudest cheerleader for every thing he accomplished. And his defender to anyone who thought he couldn't do something. Mom couldn't make it down the stairs in the la...
Monster Max: Officer Max...
http://www.maxwatson.org/2014/09/officer-max.html
Thursday, September 18, 2014. At the beginning of school this year, Max's home teacher told him about a project he and his classmates would be working on where they would need to choose an occupation. Max mulled it over, and said he would like to be an Officer, since he couldn't be Batman. The Sergeant called a few minutes before they were to pull in front of our house to let Max get situated out front. Thank goodness I let our neighborhood know ahead of time this was happening tonight, because I wou...
Monster Max: Super-Onesies for a Super-Max!
http://www.maxwatson.org/2010/04/super-onesies-for-super-max.html
Monday, April 5, 2010. Super-Onesies for a Super-Max! There is no question that Max has grown a LOT in the past year! He is a BIG boy! We can't get him to sit still long enough to get a weight on him here at the house, but we think he's somewhere between 55-60 pounds. And he is right at 4 feet tall. He's recently outgrown all the onesies I made him last year. Both in space around his belly and length! And believe me when I say, they are easy enough for anyone with very little sewing experience to make...
Moments with Jacob: THE ANSWER IS IN THE SEASHELLS
http://momentswithjacob.blogspot.com/2014/08/the-answer-is-in-seashells.html
Saturday, August 2, 2014. THE ANSWER IS IN THE SEASHELLS. We went to the beach. We traded Colorado for Florida. We went on vacation both of us. When we boarded our plane bright and early on Tuesday morning, I knew this wasn’t a small accomplishment. Our nursing coverage plan fell through a few weeks before we were supposed to leave! As we were driving to Vero Beach, I got report from nurse Gemma that Jacob was doing perfectly fine! Gemma urged us to stay as planned. Jacob’s nursing team would b...And as ...
Moments with Jacob: VISITORS IN TOWN
http://momentswithjacob.blogspot.com/2015/06/visitors-in-town.html
Sunday, June 28, 2015. I am so happy when family comes to see us, since I can't travel to see them. I got to show off what I can do with my talker. I even beat Cajsa in my favorite game Bumper cars. They were both so impressed! I also got to take them to the pool, my favorite place to be in the summer. Sarah got them hooked on her favorite TV show "Dance moms". We have a new favorite photo hanging out at the pool together:. I hope you're all enjoying your summer! Subscribe to: Post Comments (Atom). 160; ...
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Tazjin's blog
Make Object T Again! A few minutes ago I found myself debugging a strange Java issue related to Jackson, one of the most common Java JSON serialization libraries. The gist of the issue was that a short wrapper using some types from Javaslang. Was causing unexpected problems:. Public T Try T readValue(String json, TypeReference type) { return Try.of - objectMapper.readValue(json, type) ; }. The signature of this function was based on the original Jackson. If you are using Jacksons own. As enclosed in the.
Blog de tazj - mon skyblog - Skyrock.com
Mot de passe :. J'ai oublié mon mot de passe. Mise à jour :. Batte dans l'cul (N-DMC). Abonne-toi à mon blog! N'oublie pas que les propos injurieux, racistes, etc. sont interdits par les conditions générales d'utilisation de Skyrock et que tu peux être identifié par ton adresse internet (67.219.144.170) si quelqu'un porte plainte. Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. Posté le samedi 26 septembre 2009 13:02. N'oublie...
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Connecting Freelancers and Hirers since 1999. Freelancers.net has been helping freelancers find work and clients find freelancers since 1999. Freelancers.net is UK focused and lists many jobs and projects open to UK freelancers, however clients from across the globe use Freelancers.net regularly to source freelancers outside of the UK. Freelance projects and contracts. Post a project or contract. Latest ads see more. Image editing wordpress plugin. Jivo Chat APi Integration. I need a map of the London bo...
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Life on Podtburg Circle...
Monday, December 08, 2014. Posted by Amanda Jaksha. Wednesday, September 17, 2014. The Therapist The Colorado Profiles Project. I spy Ava.a couple of times. We love Brent and his hippo practice at CSU, we owe a lot of Ava's progress to his dedication and belief in her abilities. Posted by Amanda Jaksha. Tuesday, September 02, 2014. Visit www.cdkl5.com to learn more. Posted by Amanda Jaksha. Subscribe to: Posts (Atom). Hope lies in dreams, in imagination, and in the. There is nothing either good or bad, b...
tazjawillis | Just another WordPress.com site
Just another WordPress.com site. Welcome to WordPress.com. After you read this, you should delete and write your own post, with a new title above. Or hit Add New. On the left (of the admin dashboard. To start a fresh post. Are some suggestions for your first post. You can find new ideas for what to blog about by reading the Daily Post. To your browser. It creates a new blog post for you about any interesting page you read on the web. Make some changes to this page. Blog at WordPress.com.
In and Under The Skin | An Exploration into Modifications Of The Body
In and Under The Skin. An Exploration into Modifications Of The Body. Sorry, but you are looking for something that isn’t here. Cosmetic Surgery Case Study. Culturally influenced Body Modifications. Issues With Body Modifications. Reasons for Modifications to the Body? What Does it Achieve? Individuality or Group Identity. Where Do Body Modifications Go From Here? Create a free website or blog at WordPress.com. Follow “In and Under The Skin”. Get every new post delivered to your Inbox.
Tazjel
Tuesday, February 5, 2013. Get that Linux feeling - on Windows! Http:/ www.cygwin.com. Feeling - on Windows! A collection of tools which provide a Linux look and feel environment for Windows. A DLL (cygwin1.dll) which acts as a Linux API layer providing substantial Linux API functionality. Sunday, February 3, 2013. After installing installing "oh-my-zsh', I could not start vim. After installing installing "oh-my-zsh', I could not start vim. Saturday, January 26, 2013. Why The Ultimate VIM Configuration :.
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This is going to be another great website hosted by PythonAnywhere. PythonAnywhere lets you host, run, and code Python in the cloud. Our free plan gives you access to machines with everything already set up for you. You can develop and host your website or any other code directly from your browser without having to install software or manage your own server. Upgraded plans start at $5/month. You can find out more about PythonAnywhere here. Then this help page should explain everything.
