rieds.org
Next Meeting May 30th! | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/2015/05/05/next-meeting-may-30th
Ehlers Danlos Syndrome Awareness, Information and Support Group. Next Meeting May 30th! Our next meeting will be on May 30th 2015. This entry was posted in Uncategorized. May 5, 2015. Come join us today at the Marfan Foundation’s Walk For Victory! Ellen & Stu’s Page. Center for EDS Alliance. The Coalition Against Pediatric Pain. Chiari & Syringomyelia Foundation. The American Syringomyelia & Chiari Alliance Project, Inc. Americans for Safe Access. Proudly powered by WordPress.
rieds.org
2015 School Nurse Conference Awareness Event | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/2015/05/20/238
Ehlers Danlos Syndrome Awareness, Information and Support Group. 2015 School Nurse Conference Awareness Event. We had a wonderful time today at the School Nurse Conference. Thanks to everyone who came out. Special thanks to Ginny Law for getting us the opportunity and working tirelessly to get us even more opportunities for community outreach! If anyone else has pictures we would love to see them! Http:/ www.marfan.org/. Http:/ www.healyphysicaltherapy.com/. Http:/ www.ehlersdanlosnetwork.org/. The Coali...
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ianbrack@gmail.com | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/author/ianbrackgmail-com
Ehlers Danlos Syndrome Awareness, Information and Support Group. Author Archives: ianbrack@gmail.com. RI EDS Awareness Events 2015. The Rhode Island Ehlers Danlos Awareness and Support Group was very busy in the month of May raising awareness, and we aren’t done yet! Ellen and Stu also made sure we had our Proclamation in for the first day of May. PICTURES CLOCKWISE 1. SERVICE DOG MAGGIE GREATS PASSERBYS, 2. VOLUNTEERS FROM THE LEFT: ELLEN, JEN, CHRISTINE, AND DINA MAN THE TABLE, 2. CLOSE UP ...Ginny put...
arpinstrong.org
Arpin Strong - News
http://www.arpinstrong.org/news
Arpin Charitable Fund, Inc. Who We Have Helped. Arpin Charitable Fund President, Mark Dearborn, to Participate in 2016 Run to Home Base. For more information about the 2016 Run to Home Base, click here. If you would like to support Mark in the effort, click here to make a donation. 3rd Annual Arpin Strong Charity Golf Tournament a Success! The Center Against Pediatric Pain. And the Tomorrow Fund. Arpin Strong Team Member Supports the Special Olympics. Arpin Strong Releases the 2015 Year in Review. The Bo...
rieds.org
April Meeting | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/2015/04/10/april-meeting-2
Ehlers Danlos Syndrome Awareness, Information and Support Group. Saturday April 18th 2pm 4:30pm. 600 Sandy Lane Warwick, RI. This entry was posted in Uncategorized. April 10, 2015. Awareness Event Opportunity →. Ellen & Stu’s Page. Center for EDS Alliance. The Coalition Against Pediatric Pain. Chiari & Syringomyelia Foundation. The American Syringomyelia & Chiari Alliance Project, Inc. Americans for Safe Access. Proudly powered by WordPress.
rieds.org
Awareness Event Opportunity | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/2015/04/23/awareness-event-opportunity
Ehlers Danlos Syndrome Awareness, Information and Support Group. Miriam Hospital Awareness Event. A full week of awareness 8am to 5pm daily. We need you to help out! Sign up to be a volunteer by emailing Krista Krista@rieds.org. Or you can also sign up on our Facebook page in the events area, please note what time slot you will be filling in for. Starts: Monday May 4. We will have a table set up directly outside of the cafeteria on the first floor of Miriam Hospital. This entry was posted in Uncategorized.
rieds.org
Kids group | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/calendar
Ehlers Danlos Syndrome Awareness, Information and Support Group. Ellen & Stu’s Page. Center for EDS Alliance. The Coalition Against Pediatric Pain. Chiari & Syringomyelia Foundation. The American Syringomyelia & Chiari Alliance Project, Inc. Americans for Safe Access. Proudly powered by WordPress.
rieds.org
SURVEY | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/survey
Ehlers Danlos Syndrome Awareness, Information and Support Group. Preferred method of contact:. Are you here for:. Have you been to a meeting? If so was it helpful and what would you liked included next time? How often would you like to meet? Best Day/Time to meet? Check all that apply. What are you looking for in a support group? Would you like to help? Tell us about yourself and what you'd like to do! Fill out as much or as little as you’d like! Ellen & Stu’s Page. Center for EDS Alliance.
rieds.org
Krista | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/author/krista
Ehlers Danlos Syndrome Awareness, Information and Support Group. Our next meeting will be on September 24th at 2:30 at the Warwick Public Library on Sandy Lane. Here are some other things going on in the area! Dysautonomia Support Network Monthly Meeting Panera Bread:. Panera Bread – 103 Taunton Street, Plainville, MA 02762 3-5pm. EDS New England Teens and Twenties Cookout –. Facebook Page: https:/ www.facebook.com/groups/453916298086367/. Warwick Public Library LARGE Meeting Room 600 Sandy Lane Warwick,...
longislandeds.com
Ehlers-Danlos Syndrome Resources
http://www.longislandeds.com/resources.html
Offers an online learning session on the 1st and 3rd Wednesdays of each month at 7:30 pm, EST. The session typically lasts approximately 1.5 2 hours with the majority of this time devoted to a live Q and A. Sessions are often recorded and posted on their site. The Ehlers-Danlos National Foundation (ednf.org). EDNF now has their own webinar series. The inaugural webinar in October 2014 was "Connecting the Dots Between EDS and POTS", featuring Dr. Peter Rowe and Dr. Satish Raj. By Lies Rombaut et al. Osteo...
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