bryceannalisesjourney.blogspot.com
Clayton's Quest: A Fluke?
http://bryceannalisesjourney.blogspot.com/2014/04/a-fluke.html
Sunday, April 6, 2014. His teachers have decided to hold off a while longer before working any more on telling time which is fine with me. They will still present it to him occassionally and see what they get, but obviously not try to push anything. However, until that time they will continue working on the other things that he is catching on to. He and Annalise both have begun Music therapy at school and are LOVING it. I knew they would. One of my favorite things is to hear Bryce "sing" along to...Apps ...
bryceannalisesjourney.blogspot.com
Clayton's Quest: Happiest Place on Earth
http://bryceannalisesjourney.blogspot.com/2014/04/happiest-place-on-earth.html
Thursday, April 17, 2014. Happiest Place on Earth. The plans for converting one of our rooms into a therapy room has been in the making for quite some time. Today, a very fun piece of that room was completed. Last week, Gina from I love murals. Came and began painting a mural in our soon to be therapy room. Today, she came and spent about 8 hours finishing it up! We may not be able to get to Disneyland often, but this room has definitely become one of our happiest places on earth! I thought about all of ...
bryceannalisesjourney.blogspot.com
Clayton's Quest: May 2014
http://bryceannalisesjourney.blogspot.com/2014_05_01_archive.html
Sunday, May 11, 2014. It has been far too long since I have written an update on Annalise. I think that I have been waiting until things in her progress changed for the better, but reality is, the last few months have been very tough on her and we are still waiting for the change for the better. Maybe by writing out all that she has been going through will help turn the tide! It's worth a shot! It's just that those moments have gotten a bit shorter and fewer and farther between. She is so determined....
bryceannalisesjourney.blogspot.com
Clayton's Quest: What is AGS?
http://bryceannalisesjourney.blogspot.com/p/what-is-aicardi-goutieres-syndrome.html
Here are some links to information on the type of Leukodystrophy we believe Bryce and Annalise may have.AGS5. The doctors have found one mutation on the SAMHD1 gene so far. Http:/ ghr.nlm.nih.gov/condition/aicardi-goutieres-syndrome. Http:/ ghr.nlm.nih.gov/gene/SAMHD1. Http:/ patients.aan.com/disorders/index.cfm? Http:/ www.cafamily.org.uk/medical-information/conditions/a/aicardi-gouti%C3%A8res-syndrome/? Subscribe to: Posts (Atom). The dream I didn't expect. Happy Heart Day Miss Zoey .
bryceannalisesjourney.blogspot.com
Clayton's Quest: Our Family
http://bryceannalisesjourney.blogspot.com/p/our-family.html
Our children are the love of our lives. They are what make life beautiful. They each have very individual personalities and we enjoy getting to know each of them better every day. With 4 boys and a little princess, there is never a dull moment in the Clayton household! We are so thankful for a Heavenly Father who has answered our prayers in ways we did not even know were possible. We feel very blessed to be the family that we are and to have the friendships that we do. Subscribe to: Posts (Atom).
bryceannalisesjourney.blogspot.com
Clayton's Quest: Fashion Show Fundraiser
http://bryceannalisesjourney.blogspot.com/2014/03/fashion-show-fundraiser.html
Monday, March 10, 2014. It's less than a week away! When: Saturday March 15th at 1pm. Where: 8220 E. Garfield St. Scottsdale, Az. Cost: $10 at the door. There will be an awesome door prize, and other raffle prizes to be won! The audience will be the judges, so we need as many people as possible to help cheer on their favorite model. Children. Most have never met Bryce, Annalise, or anyone in our family and yet they want. To help us. Wow! It's just amazing to me. Subscribe to: Post Comments (Atom).
bryceannalisesjourney.blogspot.com
Clayton's Quest: November 2013
http://bryceannalisesjourney.blogspot.com/2013_11_01_archive.html
Tuesday, November 26, 2013. While waiting for our appointment, Bryce entertained himself by pulling the cord out of this machine over and over again. He would laugh every time he got it out. After multiple tries and multiple crashes, they decided that they may need to re-sequence everyone at the same time and then try again. Basically, they would have to start completely over. As they were getting ready to do this, one of the scientists came running out yelling that he had gotten it to go through! We dis...
bryceannalisesjourney.blogspot.com
Clayton's Quest: Annalise
http://bryceannalisesjourney.blogspot.com/2014/05/annalise.html
Sunday, May 11, 2014. It has been far too long since I have written an update on Annalise. I think that I have been waiting until things in her progress changed for the better, but reality is, the last few months have been very tough on her and we are still waiting for the change for the better. Maybe by writing out all that she has been going through will help turn the tide! It's worth a shot! It's just that those moments have gotten a bit shorter and fewer and farther between. She is so determined....
bryceannalisesjourney.blogspot.com
Clayton's Quest: Telling Time?
http://bryceannalisesjourney.blogspot.com/2014/03/telling-time.html
Friday, March 21, 2014. Bryce has been holding out on us again. Or maybe (obviously) I just haven't asked him the right questions to find out what he knows. I learned this morning of something else Bryce is able to do. He can tell time! I knew that he would watch the clock and know when it was time for recess or something like that, but he could have just known what the clock looked like when it was that time.since it is the same every day. I've wondered about this! Unbelievable, okay, not really, but I ...
bryceannalisesjourney.blogspot.com
Clayton's Quest: March 2014
http://bryceannalisesjourney.blogspot.com/2014_03_01_archive.html
Friday, March 21, 2014. Bryce has been holding out on us again. Or maybe (obviously) I just haven't asked him the right questions to find out what he knows. I learned this morning of something else Bryce is able to do. He can tell time! I knew that he would watch the clock and know when it was time for recess or something like that, but he could have just known what the clock looked like when it was that time.since it is the same every day. I've wondered about this! Unbelievable, okay, not really, but I ...
