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Thalassemia: Rochester Chapter: The Fight Against Thalassemia: Cooley's Anemia

This site was created to provide information and awareness to the public about the inherited blood disorder called Thalassemia (Cooley's Anemia).

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Thalassemia: Rochester Chapter: The Fight Against Thalassemia: Cooley's Anemia | thalsite.com Reviews
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This site was created to provide information and awareness to the public about the inherited blood disorder called Thalassemia (Cooley's Anemia).
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Thalassemia: Rochester Chapter: The Fight Against Thalassemia: Cooley's Anemia | thalsite.com Reviews

https://thalsite.com

This site was created to provide information and awareness to the public about the inherited blood disorder called Thalassemia (Cooley's Anemia).

INTERNAL PAGES

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1

Thalassemia: Rochester Chapter: The Fight Against Thalassemia: Cooley's Anemia

http://www.thalsite.com/about_me.shtml

Welcome to my personal page. Here you will find information about me. I like the poem below and would like to dedicate it to all the Thalassemia patients around the world, and for all the family and friends of Thalassemia patients. May You Always Have an Angel by Your Side". May you always have an angel by your side,. Watching out for you in all the things you do,. Reminding you to keep believing in brighter days,. Finding ways for your wishes and dreams to come true,. Encouraging your dreams,. Donna Fai...

2

Thalassemia: Rochester Chapter: The Fight Against Thalassemia: Cooley's Anemia

http://www.thalsite.com/index.html

This site was created to inform people of an inherited blood disorder called Thalassemia Major, also known as Cooley's Anemia, and to bring patients and families together for support and education on Thalassemia. I was born with Thalassemia Major. My Father also had Thalassemia Major and my Mother has the Thalassemia trait. My Father passed away at the age of 48 from the complications of this fatal blood disorder. Also, I need your input!

3

Thalassemia: Rochester Chapter: The Fight Against Thalassemia: Cooley's Anemia

http://www.thalsite.com/links.shtml

Cooley's Anemia Foundation: Official Site. Children's Hospital Oakland-Northern California Comprehensive Thalassemia Center. March of Dimes: Thalassemia. Cord Blood Treatment Info. Search BarnesandNoble.com for books on Thalassemia.

4

Thalassemia: Rochester Chapter: The Fight Against Thalassemia: Cooley's Anemia

http://www.thalsite.com/the_facts.shtml

Cooley's Anemia, also known as Thalassemia Major, is a fatal genetic blood disease that results in the failure to produce sufficient hemoglobin, the oxygen-carrying component of blood cells.

5

Thalassemia: Rochester Chapter: The Fight Against Thalassemia: Cooley's Anemia

http://www.thalsite.com/rochester_chapter.shtml

The Rochester Chapter has been busy raising money for research and patient needs by holding weekly BINGO sessions every Mondy night from 7:30pm-10:00pm. My mother Shirley Cammilleri, along with my family and friends, have been doing this every year for the past four years. In total we have raised over $200,000. WOO HOO! I would like to thank the following people for their time and effort. They sure do "WORK HARD FOR THE MONEY! My Aunts: Bonnie Jo Grove, Mary Ford, Marilyn Pecora, Felicia Molinari.

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thalguy.blogspot.com thalguy.blogspot.com

Thalassaemia.ws: Scientists discover novel way to remove iron from ferritin

http://thalguy.blogspot.com/2007/07/scientists-discover-novel-way-to-remove.html

Thursday, July 12, 2007. Scientists discover novel way to remove iron from ferritin. Ferritin is a protein that concentrates iron in its inner core or ‘cage’. It plays a critical role in understanding iron overload, which can lead to a variety of symptoms including chronic fatigue, weakness, joint pain and arthritis. If left untreated, iron overload can lead to serious problems, including diabetes, liver and heart disease. Source: Children’s Hospital and Research Centre Oakland. I have Thalassaemia Major.

thalguy.blogspot.com thalguy.blogspot.com

Thalassaemia.ws: September 1995

http://thalguy.blogspot.com/1995_09_01_archive.html

Friday, September 1, 1995. Deferiprone (1,2-dimethyl-3-hydroxypyrid-4-one) alias L1. The world's first oral iron chelator. Kelfer (deferiprone) is a iron chelator administered in the form of capsules to patients of thalassaemia major. It is being sold in India since March 1995 commercially. How does Kelfer act? Kelfer acts by combining with the excess iron in the body to form a complex which is excreted in the urine. This over a period of time leads to reduction in the iron overload in the body. In about...

thalguy.blogspot.com thalguy.blogspot.com

Thalassaemia.ws: Flesh and blood

http://thalguy.blogspot.com/2007/12/flesh-and-blood.html

Thursday, July 12, 2007. An umbilical cord blood storage facility, promising stem cell therapy for serious ailments, is coming to town, reports Subhro Saha. Http:/ www.telegraphindia.com/1070708/asp/calcutta/story 8026365.asp. A lab technician holds a sample of processed cord blood ready for storage at CordLife’s cord blood bank in Singapore. (Below) Cord blood samples being lowered into the cryogenic tank. Pictures by Subhro Saha. 8220;Our presence in Calcutta will be a good start towards establishing a...

thalguy.blogspot.com thalguy.blogspot.com

Thalassaemia.ws: Against monopoly

http://thalguy.blogspot.com/2007/07/against-monopoly.html

Friday, July 13, 2007. Interview with Dr. Yusuf Hamied, chairman, Cipla Limited. YUSUF K. HAMIED with Cipla's version of Imatinib, an anti-cancer drug. How does India's Patents Act interplay with international obligations under the TRIPS Agreement? It's vague, it can go to court. What Mashelkar was saying was that incremental improvements should be allowed to be patented. What should be the defining criteria for a patent? A patent has to be something that is totally novel, inventive. Suppose this is ...

thalguy.blogspot.com thalguy.blogspot.com

Thalassaemia.ws: New biotech raises $20M first VC round

http://thalguy.blogspot.com/2007/07/new-biotech-raises-20m-first-vc-round.html

Thursday, July 12, 2007. New biotech raises $20M first VC round. A biotechnology company newly launched by two Boston University researchers has reeled in big bucks in its first round of institutional financing. The founders of the newly hatched firm include Susan Perrine and Douglas Faller, both of whom are medical researchers at Boston University, as well as George Stamatayannoupolous, a former president of the American Society of Hematology, according to the company. Subscribe to: Post Comments (Atom).

thalguy.blogspot.com thalguy.blogspot.com

Thalassaemia.ws: April 2007

http://thalguy.blogspot.com/2007_04_01_archive.html

Thursday, April 12, 2007. Overlooked Cancer Cure From Japan, The. Nature provides an anti-cancer molecule found in rice bran that exceeds the effectiveness and safety of most anti-cancer drugs. Yet it goes unutilized by modern medicine. Toxicity of iron-chelating drugs. The primary iron chelator utilized in anti-cancer studies, Desferal (desferrioxamine), can retard tumors. [Buss JL, Current Medicinal Chemistry 10: 1021–34, 2003] However, Desferal has a modest effect because of its poor ability...Recentl...

thalguy.blogspot.com thalguy.blogspot.com

Thalassaemia.ws: January 1999

http://thalguy.blogspot.com/1999_01_01_archive.html

Sunday, January 17, 1999. L1 - Journey through the years. Deferiprone (1,2-dimethyl-3-hydroxypyrid-4-one) alias L1, Kelfer, Ferriprox. Professor George J. Kontoghiorghes. Postgraduate Research Institute Science, Technology, Environment and Medicine. Ammochostou 3, CY 3021 Limassol, Cyprus. Tel: 3575734615, e mail: pri gjk@cylink.com.cy. The Journey across the years:. 1981Discovery, design, synthesis and physicochemical characterization. 1982 Naming of L1 and other alpha - ketohydroxpyridines. 1994 Regist...

thalguy.blogspot.com thalguy.blogspot.com

Thalassaemia.ws: July 2007

http://thalguy.blogspot.com/2007_07_01_archive.html

Friday, July 13, 2007. Interview with Dr. Yusuf Hamied, chairman, Cipla Limited. YUSUF K. HAMIED with Cipla's version of Imatinib, an anti-cancer drug. How does India's Patents Act interplay with international obligations under the TRIPS Agreement? It's vague, it can go to court. What Mashelkar was saying was that incremental improvements should be allowed to be patented. What should be the defining criteria for a patent? A patent has to be something that is totally novel, inventive. Suppose this is ...

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Thalassemia: Rochester Chapter: The Fight Against Thalassemia: Cooley's Anemia

This site was created to inform people of an inherited blood disorder called Thalassemia Major, also known as Cooley's Anemia, and to bring patients and families together for support and education on Thalassemia. I was born with Thalassemia Major. My Father also had Thalassemia Major and my Mother has the Thalassemia trait. My Father passed away at the age of 48 from the complications of this fatal blood disorder. Also, I need your input!

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Welcome to Thalassaemia Society (Singapore). Thalassaemia Society (Singapore) was formed by a group of parents and volunteers to meet the following objectives:. A create public awareness and disseminate relevant and the latest medical information relating to Thalassaemia. B provide community support and social interaction among Thalassaemia patients and their families. C provide financial aid to needy families and referral of social and welfare services. Thalassaemia also known as Cooley's Anemia.

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