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Karlie Grace: February 2009

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Wednesday, February 11, 2009. A few more pictures. This picture doesn't do justice to the beauty of glistening snow but i love it when the ground looks like it's covered in sparkly glitter! Would you believe that we have frozen goldfish in our little pond beneath all this pretty white stuff? I bet they're ready for a big thaw too! Lolyes they'll start swimming again :). I wonder what she was thinking as she looked at her world covered in white? Emmaleigh LOVES making snow angels! This was day two of our ...

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Karlie Grace: January 2009

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Monday, January 19, 2009. I have so many updates that i hardly know where to begin. I barely blogged about December events and now January is almost over! Where does time go? Lately Karlie has been having a tough time at school. I'm not sure what the problem is other than she just doesn't want to be there! With all the fuss about Karlie, she handles it so well and even tries to educate others. Or is it If we don't know and we don't ask, then Rett and Marfans will just go away? Subscribe to: Posts (Atom).

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Karlie Grace: Potential Pity Party....Beware

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Wednesday, February 11, 2009. Potential Pity Party.Beware. Thanks for checking to see how we’re doing. Not good, not bad sums us up lately. Karlie hasn’t been to school in three weeks. Two weeks were missed because we were snowed and iced in and we've both been sick. She still has quite a bit of mucous, choking on it in the mornings? The worst of the last few months has been the screaming though :( This makes me feel like i’m losing my mind. I can't imagine what Karlie must feel like? Bless her heart - s...

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Karlie Grace: Is my big girl ready for her big girl bed?

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Wednesday, March 18, 2009. Is my big girl ready for her big girl bed? Most nights Karlie sleeps very well in her new "big girl" bed but occasionally we find her in some pretty funny, yet worrisome positions. During the night, we put a gait across her doorway but any unsupervised time can be dangerous even in her bedroom. This is how i found her the first morning after she had slept in her new bed. Lately the weather here has been beautiful and we're very excited that tomorrow is the first day of Spring!

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Karlie Grace: I love her sweet smile!

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Saturday, March 21, 2009. I love her sweet smile! Emmaleigh was filming and didn't want her voice recorded so this is just a shot of my sweet girl enjoying the ride with a little music. I wonder what she thinks about. I sooo wish she could tell me! February 13, 2010 at 3:48 AM. Wife to the Rockstar. March 7, 2010 at 2:56 PM. Subscribe to: Post Comments (Atom). Please join us on Karlie's Rett Syndrome Journey Until we find a CURE! During Vital Stim Therapy. Want To Follow Karlie's Blog? Girl Power 2 Cure.

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No step too small: May 2009

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No step too small. Sunday, 31 May 2009. Touched by the kindness of strangers. Saturday, 23 May 2009. Lots of photos of mikeys smile.enjoy :-). Make a Smilebox slideshow. Sunday, 10 May 2009. Alot going on after a rollercoaster of a week which i will post about in due course as i need to (and when I am less fragile! But something happy and huge to me. Subscribe to: Posts (Atom). Special kids in the uk. Http:/ www.specialkidsintheuk.org. Life in our House. Once upon a time. Dancing In The Rain.

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No step too small: December 2008

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No step too small. Thursday, 18 December 2008. Tuesday, 16 December 2008. Mummys can't be poorly! The title says it all really. I am struggling with a virusy cold and have had this for nearly a week. Feel guilty for moaning about feeling yuk and it humbles me to think that Mikey must feel yuk alot of the time yet he keeps smiling best he can. so why don't I? Monday, 15 December 2008. At 33 weeks I went into labour but they stopped it. Had high blood pressure and was keeping a kick chart.three wee...I rem...

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Karlie Grace: Country singer Clint Black to be on "The Celebrity Apprentice" for Rett Syndrome

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Tuesday, February 10, 2009. Country singer Clint Black to be on "The Celebrity Apprentice" for Rett Syndrome. At any rate, I liked some of the vadlo mouse cartoons. July 11, 2009 at 7:05 PM. Subscribe to: Post Comments (Atom). Please join us on Karlie's Rett Syndrome Journey Until we find a CURE! During Vital Stim Therapy. Want To Follow Karlie's Blog? View my complete profile. Rett Syndrome donations and information. Girl Power 2 Cure. Rett Syndrome Research Trust. Kim and Karlie's Friends. Every DISABL...

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No step too small: April 2009

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No step too small. Sunday, 26 April 2009. Last time I raised alot of money for scope but this time I would raise money for more local charities which have had a huge impact on Mikey's life, just a little way of giving something back for the support they provide. That is why I need a ballot place. but one years rejection and four to go, but maybe this years application will be a lucky one and maybe not. Thursday, 23 April 2009. Got the appointment through today to see the surgeon in five weeks. Have d...