thelihns.blogspot.com

The Lihn Family

The Lihn Family Caleb, Stacey, Emerson and Zoe. Friday, June 19, 2015. I visited our blog today (to find a link for a new HLHS family) and couldn't believe my last post was over a year ago! Whoopsies, my bad. The past year flew by and I'm happy to report that all is well. And Normal. Zoe started and finished pre-Kindergarten - which was way more difficult for mom than Zoe! She loved it, and ended the school year with not one, but two, boyfriends. 65279;. Zoe and Ryder (aka Batman and Batgirl). And bra...

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The Lihn Family | thelihns.blogspot.com Reviews

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The Lihn Family Caleb, Stacey, Emerson and Zoe. Friday, June 19, 2015. I visited our blog today (to find a link for a new HLHS family) and couldn't believe my last post was over a year ago! Whoopsies, my bad. The past year flew by and I'm happy to report that all is well. And Normal. Zoe started and finished pre-Kindergarten - which was way more difficult for mom than Zoe! She loved it, and ended the school year with not one, but two, boyfriends. 65279;. Zoe and Ryder (aka Batman and Batgirl). And bra...

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8 live it happy

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The Lihn Family | thelihns.blogspot.com Reviews

https://thelihns.blogspot.com

The Lihn Family Caleb, Stacey, Emerson and Zoe. Friday, June 19, 2015. I visited our blog today (to find a link for a new HLHS family) and couldn't believe my last post was over a year ago! Whoopsies, my bad. The past year flew by and I'm happy to report that all is well. And Normal. Zoe started and finished pre-Kindergarten - which was way more difficult for mom than Zoe! She loved it, and ended the school year with not one, but two, boyfriends. 65279;. Zoe and Ryder (aka Batman and Batgirl). And bra...

INTERNAL PAGES

thelihns.blogspot.com

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The Lihn Family: February 2013

http://thelihns.blogspot.com/2013_02_01_archive.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Thursday, February 14, 2013. Every Day is Awareness Day! So, as much as I hate Congenital Heart Defects, we bucked up and did awareness raising this week. Today is not only Valentine's Day, but International Congenital Heart Defect Awareness Day. Phoenix Children's Hospital decided (with some prodding) to use the opportunity to share some awareness on their Facebook page, with Zoe as their helper. I can't blame them, she's freaking adorable! The truth is, I...

2

The Lihn Family: HOLY GUACAMOLE!

http://thelihns.blogspot.com/2014/01/holy-guacamole.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Friday, January 10, 2014. The title of this post - one of Zoe's. Most appropriate expressions - and my reaction when I saw our last update is from September 2013! Yikes - someone's been busy! Emmy is doing incredible in Kindergarten. She loves school and brings home perfect test scores almost weekly. She's in a liberal arts prep school and I can just see it now - a UPenn Medical Student! That Doc McStuffins sure is a good influence! On May 11, 2010, our fam...

3

The Lihn Family: July 2013

http://thelihns.blogspot.com/2013_07_01_archive.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Thursday, July 18, 2013. And So It Is. Fontan Prep. Not surprisingly, in anticipation of this final planned surgery for Zoe's heart defect, I've been doing lots of research, planning, and stressing. Note the very small/non-functioning left ventricle). Our amazing friends in Philadelphia, the Jackleys, will be collecting the items and bringing them to us upon our arrival. Another way to show Zoe that she's loved and supported is to send an eCard, which is of...

4

The Lihn Family: The Normal Life

http://thelihns.blogspot.com/2015/06/the-normal-life.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Friday, June 19, 2015. I visited our blog today (to find a link for a new HLHS family) and couldn't believe my last post was over a year ago! Whoopsies, my bad. The past year flew by and I'm happy to report that all is well. And Normal. Zoe started and finished pre-Kindergarten - which was way more difficult for mom than Zoe! She loved it, and ended the school year with not one, but two, boyfriends. 65279;. Zoe and Ryder (aka Batman and Batgirl). And bra...

5

The Lihn Family: Live it Happy

http://thelihns.blogspot.com/2014/04/live-it-happy.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Sunday, April 20, 2014. One thing I've often heard, from some wise cardiac practitioners, is: "Families whose HLHS child is doing well, are not sharing their journeys online - they're busy living their lives." I always thought, "yeah, that's probably true.". Well, it must be true. My last blog update was in January! We've certainly been busy living our lives. Jozie (North Dakota) and Zoe. Zoe, Will (Iowa), and Emmy. Papa and Emmy play badminton. How could w...

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alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: January 2013

http://alongfortheride-newmans.blogspot.com/2013_01_01_archive.html

Along For the Ride.with Ryder's Heart. Sunday, January 27, 2013. Tomorrow Ryder would have been 11 months old. 11 months. Be feeling. Probably the real reason, though, is that sometimes I catch myself being completely happy; and when I realize this I am overwhelmed with guilt and this hurts almost as much as the sadness, which prompts the sadness to take over once again. I miss you buddy.so much. Friday, January 18, 2013. Monday, January 7, 2013. The Park With All The Flowers. Thursday, January 3, 2013.

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: March 2013

http://alongfortheride-newmans.blogspot.com/2013_03_01_archive.html

Along For the Ride.with Ryder's Heart. Saturday, March 9, 2013. Sitting at Starbucks.just dropped off Addy at her friend Claire's birthday party. I can't believe she is big enough to go to a friend's house for her birthday- but I suppose Claire will have more fun playing with friends who don't have any mommy legs to hang on to. It is incredible to think about how many little moments go by like that when you aren't ready for them. Subscribe to: Posts (Atom). Happy Birthday to Ryder James! February 28, 2012.

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: Dear Ryder

http://alongfortheride-newmans.blogspot.com/2013/11/dear-ryder.html

Along For the Ride.with Ryder's Heart. Friday, November 29, 2013. I was hoping by now I would have more answers. Mostly, why couldn't we have you here just a little longer? But I don't know, and I won't. A little longer would never have been enough time anyway. I hope you know that we would have slept in that ICU next to you forever if we just had the chance to have even 1 more hour. I think about what you are doing all the time, but I don't know, are you still 9 months and 2 days old? February 28, 2012.

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: First Birthdays.

http://alongfortheride-newmans.blogspot.com/2013/02/first-birthdays.html

Along For the Ride.with Ryder's Heart. Wednesday, February 27, 2013. So what gift do you give for a first birthday such as this? Sometimes, there are no words, only photographs - so that is what we are giving with the help of Christy from Happy Chick Photography. Plus- your cash and checks we sent in later! Plus- Ryder's donation to the KC Zoo! You are all incredible. James and Nancy Allen. Dept of Internal Medicine, University of Kansas. Tim and Leslie Duesenberg. Jan and Jerry Ford. Kathryn L. Fuger.

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: Ryder's big day...

http://alongfortheride-newmans.blogspot.com/2012/03/ryders-big-day.html

Along For the Ride.with Ryder's Heart. Monday, March 5, 2012. Ryder will get taken to the operating room tomorrow at 7 am and the surgery is scheduled to last about 5 hours. Thankfully [thus far] we had another quiet day! Love you so much sweet baby boy! Now faith is being sure of what we hope for and certain of what we do not see. Hebrews 11:1. March 5, 2012 at 8:38 PM. Praying so hard for you. Subscribe to: Post Comments (Atom). Happy Birthday to Ryder James! February 28, 2012. More on what is HLHS?

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: December 2012

http://alongfortheride-newmans.blogspot.com/2012_12_01_archive.html

Along For the Ride.with Ryder's Heart. Monday, December 17, 2012. Click here to view this photo book larger. Turn your favorite photos into a photo book at Shutterfly.com. Monday, December 3, 2012. Ryder's service will be Thursday, December 6, 2012. 6400 State Line Rd. Mission Hills, KS. In lieu of flowers, donations can be made in Ryder's name to Little Hearts: https:/ www.littlehearts.org/Content/Donations.asp. Sunday, December 2, 2012. How is the family doing in there? Please trust me, it isn't dust o...

xaviersheartjourney.blogspot.com

Xtra Special Heart: Recovery

http://xaviersheartjourney.blogspot.com/2015/04/recovery.html

This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Sunday, April 26, 2015. Re-cov-er-y: 1. The act or process of becoming healthy after an illness or injury. We all find ourselves struggling to regain possession of what we lost. BUT catching small little flickers of what we gained. For although we find ourselves on the front lines of recove...

xaviersheartjourney.blogspot.com

Xtra Special Heart: March 2014

http://xaviersheartjourney.blogspot.com/2014_03_01_archive.html

This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Saturday, March 1, 2014. My strong warrior.do you know how amazing you are? How strong and how special? You've had such a huge impact on our lives.you made me better! From the moment you were born you kicked serious butt! Your still working on learning to talk but it's coming. Your so s...

aboesen29.blogspot.com

Life: Seven years ago

http://aboesen29.blogspot.com/2012/07/seven-years-ago.html

I was born with a complex congenital heart defect and I will use this blog to talk about different things related to that. I will also talk about things not related to my health concerns.I want CHD parents to know that their children can live a fairly normal life just like I have gotten to do. Wednesday, July 11, 2012. Saturday I had my Foley catheter removed. Nothing else remarkable on that day. Sunday I stayed awake for a long period of time. Monday I was able to go down to the family room ...It wasn't...

aboesen29.blogspot.com

Life: November 2012

http://aboesen29.blogspot.com/2012_11_01_archive.html

I was born with a complex congenital heart defect and I will use this blog to talk about different things related to that. I will also talk about things not related to my health concerns.I want CHD parents to know that their children can live a fairly normal life just like I have gotten to do. Thursday, November 15, 2012. Sick of medical issues. Well I guess it's been awhile. Then they hooked me up to a monitor and put me on o2 (despite my sats being at 98. Stupid hospital protocol). So then we waited fo...

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The Lihn Family

The Lihn Family Caleb, Stacey, Emerson and Zoe. Friday, June 19, 2015. I visited our blog today (to find a link for a new HLHS family) and couldn't believe my last post was over a year ago! Whoopsies, my bad. The past year flew by and I'm happy to report that all is well. And Normal. Zoe started and finished pre-Kindergarten - which was way more difficult for mom than Zoe! She loved it, and ended the school year with not one, but two, boyfriends. 65279;. Zoe and Ryder (aka Batman and Batgirl). And bra...

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