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Therapede | Kids helping kids with Dystonia

Therapede is an informational website for kids with dystonia.

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CONTACTS AT THERAPEDE.COM

BeGenuine LLC

Kim LaGrow

PO ●●●388

Eve●●●een , Colorado, 80437

United States

1.72●●●●6274
ki●@begenuine.com

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BeGenuine LLC

Kim LaGrow

PO ●●●388

Eve●●●een , Colorado, 80437

United States

1.72●●●●6274
ki●@begenuine.com

View this contact

BeGenuine LLC

Kim LaGrow

PO ●●●388

Eve●●●een , Colorado, 80437

United States

1.72●●●●6274
ki●@begenuine.com

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Therapede | Kids helping kids with Dystonia | therapede.com Reviews
<META>
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Therapede is an informational website for kids with dystonia.
<META>
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1 Genevieve LaGrow
2 Therapede
3 Dystonia
4 Dopa-responsive Dystonia
5 DRD
6 kids with movement disorders
7 movement disorders
8 cerebral palsey
9 Gen LaGrow
10 Kim LaGrow
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Therapede | Kids helping kids with Dystonia | therapede.com Reviews

https://therapede.com

Therapede is an informational website for kids with dystonia.

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1

Therapede | Diagnosis of Dystonia

http://www.therapede.com/diagnosis.htm

If you think you or someone you know might have dystonia, you should go to your doctor. The doctor can order tests to see if you have one of the genes known to cause dystonia. You can provide important medical information for your doctor or a neurologist to determine whether or not you have dystonia, and what type you might have. For the most accurate and up-to-date information on this topic, visit the website for the Dystonia Medical Research Foundation, http:/ www.dystonia-foundation.org.

2

Therapede | Kids helping kids with Dystonia

http://www.therapede.com/index2.htm

My second goal is to create an educational scholarship for two kids each year to help with higher education costs. Visit my scholarships. Page for more information. My third goal is my lifetime goal: to become a genetic engineer so I can help develop and provide a cure for others with movement disorders. Thanks for taking the time to visit me! I hope you will learn something about dystonia on my website.

3

Therapede | What is Dystonia?

http://www.therapede.com/dystonia.htm

Dystonia. The number of times that I have had to describe the meaning of this term to people who have never heard of it before is immeasurable. And for what? So that these forgetful, though kind, people can simply forget in a week or an hour and ask again the next time it is brought up. I for one am outraged by the fact that so few people know about this disorder. But even more infuriating is the fact that so few doctors know anything about this disorder.

4

Therapede | Links

http://www.therapede.com/links.htm

Make sure you scroll down to pages 28-30 for Gen's story:. Http:/ www.dystonia-foundation.org/upload/newsletter 2003-11-25 122853/SeptDialogue.pdf. Read more about Gen: h. Ttp:/ dystonia-support4u.com/viewstory.php? Newsweek Article: Patient Power on the Web (Friday, September 7, 2001):. Sometimes the Internet is the only way for nondoctors to learn about. Extremely rare diseases. When Genevieve LaGrow was 18 months old, the muscles. Champion swimmer. Click here to read the entire article.

5

Therapede | Gen's Story

http://www.therapede.com/gen.htm

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Therapede | Kids helping kids with Dystonia

My name is Genevieve LaGrow, and I have dopa-responsive dystonia. Because it took over 7 years for doctors to diagnose my condition, I thought I would try to help other kids with movement disorders, specifically dystonia. I had been diagnosed with Cerebral Palsy at first, and I wonder how many other kids might have had the same thing happen to them? How could I help them to find the truth about their symptoms? I will have a photo gallery too!

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