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thetubefedwife.blogspot.com

A Day in the Life of The Tube Fed Wife

An honest, yet uplifting glimpse into the mind of a young wife battling Systemic Scleroderma.

http://thetubefedwife.blogspot.com/

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A Day in the Life of The Tube Fed Wife | thetubefedwife.blogspot.com Reviews
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An honest, yet uplifting glimpse into the mind of a young wife battling Systemic Scleroderma.
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1 pages
2 welcome
3 blog
4 my story
5 sclero what
6 feeding tubes
7 social media
8 contact me
9 my gastroenterologist
10 yipe
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pages,welcome,blog,my story,sclero what,feeding tubes,social media,contact me,my gastroenterologist,yipe,posted by,chanel white,5 comments,email this,blogthis,share to twitter,share to facebook,share to pinterest,and my rheumatologist,i thought,wrong
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A Day in the Life of The Tube Fed Wife | thetubefedwife.blogspot.com Reviews

https://thetubefedwife.blogspot.com

An honest, yet uplifting glimpse into the mind of a young wife battling Systemic Scleroderma.

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thetubefedwife.blogspot.com thetubefedwife.blogspot.com
1

A Day in the Life of The Tube Fed Wife: June 2015

http://www.thetubefedwife.blogspot.com/2015_06_01_archive.html

Wednesday, June 24, 2015. Pulling At Heart Strings - Health Update. While I did received some bad news this week, so many wonderful. Things have been happening in my world! Wow lets just take a moment to appreciate that. Those are not words I get to type very often! While my health may still be struggling, as it always will be,. I finally feel I am on a solid treatment plan that gives me enough energy to at least enjoy a few small victories! Plus I no longer have the coloring of a zombie! I feel my abili...

2

A Day in the Life of The Tube Fed Wife: A Note To My Readers

http://www.thetubefedwife.blogspot.com/2015/07/a-note-to-my-readers.html

Monday, July 20, 2015. A Note To My Readers. I want to take this time to posts my unbelievable gratitude for the incredible positive response generated from my recent media features. I am absolutely blown away by the hundreds of comments, personal emails, and kind words I have received. I want you all to know I read each and every one of them! Please note however, there is only one of me, and it may take me time to respond to the many hundreds of responses. Reoccurring theme in many emails. Many people h...

3

A Day in the Life of The Tube Fed Wife: Invalidated and Dismissed - Health Update

http://www.thetubefedwife.blogspot.com/2015/08/invalidated-and-dismissed-health-update.html

Friday, August 7, 2015. Invalidated and Dismissed - Health Update. I had a few appointments with different members of my team this week. I met with my Electrophysiologist. Later in the week I saw a Sleep Specialist. Today I saw my Pulmonologist. My doctors will listen to me! PFTs are preformed in little glass boxes! After they left my Pulm came in and kind of smiled, "Well they look good." At this point I got frustrated. Good? How is a 20% decrease in anything good? Why wont they treat me aggressively?

4

A Day in the Life of The Tube Fed Wife: August 2015

http://www.thetubefedwife.blogspot.com/2015_08_01_archive.html

Saturday, August 29, 2015. Twenty Four - Health Update. It was a quiet week in my medical world, a rare commodity I do not often get to enjoy! I had only two appointments, a follow up with my Pulmonologist. And a follow up with my Neuro-Headache Specialist. The appointment with my Pulm. I cannot wait to once again be in her very competent, compassionate care! Next I saw my Neuro-Headache Specialist. Lol Last time I saw her she prescribed a drug for my headaches called Cymbalta. With my bodies complete la...

5

A Day in the Life of The Tube Fed Wife: In The Media

http://www.thetubefedwife.blogspot.com/p/in-media_10.html

Take a look at my recently featured posts on your favorite social media sites. Alongside The Tube Fed Wife. I freelance write for a multitude of different online outlets such as The Huffington Post, XOJane. Understanding , and compassion for patients like me. Be sure to stay up to date with these sites as features, and stories written just for their audiences may not be featured here on my personal blog! Don't forget to connect with my personal social media accounts below! The Mighty - Featured Posts.

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sclero-what.blogspot.com sclero-what.blogspot.com

June 2014 ~ Sclero-what?

http://sclero-what.blogspot.com/2014_06_01_archive.html

Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Sunday, June 29, 2014. Scleroderma Awareness Day 2014. June has been Scleroderma Awareness month, and I did a poor job of spreading the word, but today is World Scleroderma Awareness Day, so I'm making it a priority to not only "rock teal" (the color for Scleroderma), but to also spread awareness via facebook, instagram, and through my blog. My strength. I am a wuss. I have a hard time lifting my purse, or a g...My jo...

sclero-what.blogspot.com sclero-what.blogspot.com

May 2014 ~ Sclero-what?

http://sclero-what.blogspot.com/2014_05_01_archive.html

Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Friday, May 16, 2014. Looking back over the past few months can be a bit overwhelming when I consider all the random acts of kindness that I have received. I mean, really over the last two years it's been quite amazing to me, but for some reason the past two months it seemed like one thing right after another. I haven't been feeling overly stressed, everything is good, so why now? It was hard, because I like to think ...

sclero-what.blogspot.com sclero-what.blogspot.com

July 2014 ~ Sclero-what?

http://sclero-what.blogspot.com/2014_07_01_archive.html

Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Thursday, July 31, 2014. PAH and Right Heart Cath. So, Monday morning finally rolled around, and my rheumy called me first thing in the morning. He told me that my echo hadn't changed much from last year, but there was still a bit of high pressure in one of my arteries. Because pulmonary arterial hypertension. Saturday, July 26, 2014. Because Scleroderma, and especially the form that I have, can affect the internals, ...

onebadlung.com onebadlung.com

Automated Pollen Counter | One Bad Lung

http://onebadlung.com/2015/04/automated-pollen-counter

Does he still write? Oh no, no. He has health problems. April 21, 2015. I came across this site. The Ides of March. Gearing up for allergy season. Oh, you have asthma? No one likes a braggart. It’s been feeling a lot like August. Asthma, Allergies, and Chronic Illness. Adventures for the chronically ill. Antics of a Brittle Asthmatic. My Journey, Every Step of the Way. My Life as an Asthma Mom. NYC Allergy, Asthma and Sinus Care Resource. The Asthma Institute Blog. The Tube Fed Wife.

sclero-what.blogspot.com sclero-what.blogspot.com

A "Typical" Wednesday ~ Sclero-what?

http://sclero-what.blogspot.com/2015/06/a-typical-wednesday.html

Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Thursday, June 11, 2015. My stomach does not handle large breakfasts very, and using silverware I'm not used to can be hard, really uncomfortable, and hurt my fingers. Not to mention, eating sitting straight up is really hard. Then there's the fear of spilling on myself. I can't just run home and change quickly. It's not that easy for me. What will be easy to cut into small pieces and fit in my mouth? Questions most p...

aullmans.blogspot.com aullmans.blogspot.com

November 2014 / GREG & BRE AULLMAN

http://aullmans.blogspot.com/2014_11_01_archive.html

GREG and BRE AULLMAN. Thursday Three 11.27.14. I stayed in my PJs today, and my hair was a mess. Greg asked if I was a cat lady, because I was starting to look like one. I did not brush my teeth before crawling into bed, and I don't plan to when I get up in just a few minutes. I feel off. My neck hurts, my stomach, other things are going on with my body that I'd rather not talk about. It's hard to really enjoy days off when I don't feel 'normal'. Thursday Three was developed by Kristin from RUKristin.

aullmans.blogspot.com aullmans.blogspot.com

April 2015 / GREG & BRE AULLMAN

http://aullmans.blogspot.com/2015_04_01_archive.html

GREG and BRE AULLMAN. Thursday Three 04.30.15. It's getting way too hot. I really prefer to be cold. Plus I really think the heat is almost worse on my body. I honestly can't remember my days off the week. I woke up in a panic on Tuesday thinking we had a meeting, and then yesterday thought was Thursday and today feels like Friday. I need to workout. "Workout" I really do but have no motivation since the stuff I can do seems so pointless. Someone motivate me NOW! You can read more about it {here}. We got...

aullmans.blogspot.com aullmans.blogspot.com

March 2015 / GREG & BRE AULLMAN

http://aullmans.blogspot.com/2015_03_01_archive.html

GREG and BRE AULLMAN. The Not-So-Awesome Happenings Part 1. Truth be told, I can be a LITTLE dramatic sometimes. I blame it on my childhood and upbringing, because I don't want to take responsibility for myself. One of the negatives to being on a "mood regulator" is that I either feel super AWESOME, super CRAPPY, or super nothing at all. Major moodswings for sure. As he had accepted a job at another CU there. Talk about a major shock. In the nearly five years that I've been with the CU, I thought...But, ...

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A Day in the Life of The Tube Fed Wife

Wednesday, August 12, 2015. The Impatient Inpatient - Health Update. I type to you today from my local hospital. I currently find myself inpatient on a heavy load of IV antibiotics for a severe kidney infection. IV Antibiotics, Fluids, and Tube Feeds. What many patients don't realize is that you hire a medical practitioner, and you alone have the option to find a new one if your current is unsatisfactory; you are never stuck with a provider. I have had to learn his lesson over, and over again! A RHC is a...

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