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three with a twist – family life with a twist of Down syndrome

family life with a twist of Down syndrome

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three with a twist – family life with a twist of Down syndrome | threewithatwist.wordpress.com Reviews

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family life with a twist of Down syndrome

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1

NY Buddy Walk – three with a twist

https://threewithatwist.wordpress.com/2016/09/21/ny-buddy-walk

Three with a twist. Family life with a twist of Down syndrome. September 21, 2016. As I’ve mentioned in previous posts, I’ve met other moms of children with Down syndrome online and chatted with them here and there. Some I’ve met through my blog others through Facebook support groups. Finally I got to meet some of them and their children in person on Saturday and. Was so much fun. I’m just sorry I didn’t get pictures of everyone. Posted in Down syndrome. Tips For Surviving a Down Syndrome Pregnancy.

2

An “Interesting” Encounter – three with a twist

https://threewithatwist.wordpress.com/2017/01/05/an-interesting-encounter

Three with a twist. Family life with a twist of Down syndrome. An “Interesting” Encounter. January 5, 2017. January 19, 2017. The following story was originally published in the book. Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives, 10th Anniversary Edition. Royalties will be used to provide free copies of the book to genetic counselors and other medical professionals who convey a diagnosis of Down syndrome to new parents. The book can be purchased here. Was the baby ugly?

3

Heart Update – three with a twist

https://threewithatwist.wordpress.com/2016/06/11/heart-update

Three with a twist. Family life with a twist of Down syndrome. June 11, 2016. Heart defects are not uncommon with Down Syndrome. According to the CDC, around 50% of children with Down Syndrome have heart defects. That’s a scary percentage. Flip a coin and your child will either have it or they won’t. Having a child with Down syndrome is one thing but add a heart defect and that in itself is its own journey. Posted in Down syndrome. Down Syndrome Advocacy Day. Tips For Surviving a Down Syndrome Pregnancy.

4

Down Syndrome Facts – three with a twist

https://threewithatwist.wordpress.com/down-syndrome-facts

Three with a twist. Family life with a twist of Down syndrome. Down syndrome, or Trisomy 21, is a genetic condition caused by an extra copy (or third copy) of the 21st chromosome. There are no known behavioral or environmental factors that cause Down syndrome. Individuals with Down syndrome have an increased chance of certain medical issues which include heart defects (roughly 50%), intestinal issues, thyroid conditions, hearing and/or vision impairments, leukemia and Alzheimer’s. People First Language i...

5

What Makes Me Smile – three with a twist

https://threewithatwist.wordpress.com/2016/11/07/what-makes-me-smile

Three with a twist. Family life with a twist of Down syndrome. What Makes Me Smile. November 7, 2016. Gigi has Down syndrome. With Down syndrome often comes low muscle tone. Because of this, at the age of almost two she still isn’t walking or crawling yet. This doesn’t mean that Gigi hasn’t been mobile. She’s been moving around since before she turned one by scooting around on her bottom. She butt scoots while dangling underpants. She has a silly smile when she says “Dee” for dad. She sucks her tongue.

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Evie the Extraordinary and Her Mommy: The Journey As We Go: February 2016

http://www.evietheextraordinary.com/2016_02_01_archive.html

Evie the Extraordinary and Her Mommy: The Journey As We Go. Thursday, February 25, 2016. Back at the hospital, and almost meeting Julian Edelman. I thought that winter was almost over, and that we had made it without a stay in the hospital. I spoke too soon.here we are in the cardiology unit of Boston Childrens for an unexpected stay. Here's Evie looking at her new accessory, aka hospital wristband. No wait in the ER! Daddy spent the first night with her, and since she's still showing some moments of low...

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Evie the Extraordinary and Her Mommy: The Journey As We Go: The Adventures of Eating Evie...

http://www.evietheextraordinary.com/2016/11/the-adventures-of-eating-evie.html

Evie the Extraordinary and Her Mommy: The Journey As We Go. Monday, November 7, 2016. The Adventures of Eating Evie. And I meant this as an adjective and not a verb. Evie is eating! I haven't blogged in awhile, mostly because of being busy, but also because I have been focusing my energies on getting Evie to eat. Since I last blogged, Evie has transitioned to a new nanny and also gone through a developmental leap (which I never knew about until I had a baby! Over the past couple of months, Evie had gaine...

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Evie the Extraordinary and Her Mommy: The Journey As We Go: Babysitters...I mean Baby Apps

http://www.evietheextraordinary.com/2016/07/babysittersi-mean-baby-apps.html

Evie the Extraordinary and Her Mommy: The Journey As We Go. Thursday, July 21, 2016. Babysitters.I mean Baby Apps. I started motherhood determined not to let Evie have too much screen time. I would say that still applies for TV, but I am now convinced that the iPad is a great tool for Evie's learning. She is, after all, a child of the future! As technology gets used more and more, especially with assisted learning, I see it as an advantage for Evie to already know how to use an iPad. Baby Sign: Evie like...

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Evie the Extraordinary and Her Mommy: The Journey As We Go: The Babysitters' Club, and fairy godmothers

http://www.evietheextraordinary.com/2017/01/the-babysitters-club-and-fairy.html

Evie the Extraordinary and Her Mommy: The Journey As We Go. Wednesday, January 4, 2017. The Babysitters' Club, and fairy godmothers. I got the idea for this post because of a comment made by Evie's fairy godmother, joyosity. I was thrilled that my voracious reading of the Babysitters Club had paid off and that I had subconsciously followed my early tutelage by the esteemed Babysitters. So here is what my Evie-sitting kit had inside today:. 3 A Velcro apple from her Melissa and Doug fruit cutting kit, so ...

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Evie the Extraordinary and Her Mommy: The Journey As We Go: December 2016

http://www.evietheextraordinary.com/2016_12_01_archive.html

Evie the Extraordinary and Her Mommy: The Journey As We Go. Wednesday, December 28, 2016. A little overdue, but Evie is 2! I don't know where the time went. I have to say that I much prefer Year 2 over Year 1. Year 1 was filled with anxiety about her health, oxygen tanks and feeding tubes, and going to numerous doctors' appointments. Year 2 was more about watching her grow in so many ways, and getting to enjoy her more. I swore I wasn't going to do anything for her birthday after last year's. Better....

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Evie the Extraordinary and Her Mommy: The Journey As We Go: July 2016

http://www.evietheextraordinary.com/2016_07_01_archive.html

Evie the Extraordinary and Her Mommy: The Journey As We Go. Thursday, July 21, 2016. Babysitters.I mean Baby Apps. I started motherhood determined not to let Evie have too much screen time. I would say that still applies for TV, but I am now convinced that the iPad is a great tool for Evie's learning. She is, after all, a child of the future! As technology gets used more and more, especially with assisted learning, I see it as an advantage for Evie to already know how to use an iPad. Baby Sign: Evie like...

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Evie the Extraordinary and Her Mommy: The Journey As We Go: January 2016

http://www.evietheextraordinary.com/2016_01_01_archive.html

Evie the Extraordinary and Her Mommy: The Journey As We Go. Tuesday, January 26, 2016. Evies Skillz, and a Face Palm Moment. Part of having a 1 year old seems to be that I'm bound to be asked if Evie is walking yet. I cringe inside, because she hasn't even been crawling. I knew that she would likely not be crawling by 12 months, and I know that every child progresses at their own pace, but it still hurts a little to say no. All of this makes me so much more aware that when I meet a new person and don't k...

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Evie the Extraordinary and Her Mommy: The Journey As We Go: April 2016

http://www.evietheextraordinary.com/2016_04_01_archive.html

Evie the Extraordinary and Her Mommy: The Journey As We Go. Thursday, April 28, 2016. Evie the pirate.for 30 minutes. Evie's eye turn has been getting a bit more pronounced. Her eyes switch off to turn in towards her nose most of the time. This is called intermittent alternating esotropia (if they turned out, it would be exotropia). My initial post about eyes is here. Here is Evie with an eye patch! These are just plain fun:. Tuesday, April 19, 2016. How to sit like a big girl.and another milestone!

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Evie the Extraordinary and Her Mommy: The Journey As We Go: Evie's Favorite Things, and Evie Climbs Mountains

http://www.evietheextraordinary.com/2016/12/evies-favorite-things-and-evie-climbs.html

Evie the Extraordinary and Her Mommy: The Journey As We Go. Monday, December 19, 2016. Evie's Favorite Things, and Evie Climbs Mountains. The title of this post is a salute to the Sound of Music, which is one of my favorite musicals. But mostly it is a list of Evie's favorite things. Scroll to the end to see how Evie climbs mountains. I'm always on the lookout for the coolest toys that will help Evie's development, so hopefully this will help someone else. As we work on teaching her about food, Evie has ...

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Evie the Extraordinary and Her Mommy: The Journey As We Go: January 2017

http://www.evietheextraordinary.com/2017_01_01_archive.html

Evie the Extraordinary and Her Mommy: The Journey As We Go. Saturday, January 14, 2017. Later that afternoon, I met a man in his 60's who has DS. He came with a caretaker, and was in a wheelchair. He kept falling asleep while we were trying to talk to him. He was nonverbal and pretty out of it. To learn about a treatment for stunting disabled children's growth to be small so that their appearance will match their intellectual abilities, and also how a scholar was denied residency because his child had DS).

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The Three Witches of the Wayward Broom. Thursday, August 8, 2013. Four Pillars of a Witches Temple. I found this information on another site I found and thought it was be great to share. The Four Pillars of Witches Temple. Represents the witch’s reason/intellect/intuition/wisdom and other more mystical understandings…. The admonitions “Know Thyself”, “Know your Craft”, “Learn” and “Apply you Learning” are all included in the pillar. This can be split into two categories: the mundane and the Magickal....

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three with a twist – family life with a twist of Down syndrome

Three with a twist. Family life with a twist of Down syndrome. An “Interesting” Encounter. January 5, 2017. IT WAS A BEAUTIFUL SUNDAY in August at the local farmers’ market. I was checking out some heirloom tomatoes when I noticed an eccentric-looking older woman in a long skirt and a crocheted hat, standing a safe distance away. She was looking at my belly. I was six months pregnant. The woman called out, It’s … More An “Interesting” Encounter. An “Interesting” Encounter. November 16, 2016. On Sunday, O...

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