storieswithsam.com
June | 2015 | Stories with Sam
https://storieswithsam.com/2015/06
Stories about our son Sam, his disability, our family and our lives. Sam is 6, loves stories and has cerebral palsy. I am learning to be his ally. The world of the Wheelchair Accessible Vehicle. June 25, 2015. Side point: Eli (age 3) calls the driver seat ‘Daddy’s chair’ and the front passenger seat ‘Mummy’s chair’ despite me driving more than James. It drives me nuts! I’m trying to raise a feminist! So, apart from the business of going over speed bumps painfully slowly to avoid scraping the bottom of th...
storieswithsam.com
August | 2015 | Stories with Sam
https://storieswithsam.com/2015/08
Stories about our son Sam, his disability, our family and our lives. Sam is 6, loves stories and has cerebral palsy. I am learning to be his ally. August 26, 2015. August 26, 2015. Sam had brain surgery last week. It was an elective operation, in which electrodes were inserted into his brain. These are connected to a battery pack about the size of a cigarette packet on the right side of his tummy. The idea is to try to reduce his dystonia. But being James has been quantifiably less fun. James did six...
storieswithsam.com
Cycling | Stories with Sam
https://storieswithsam.com/2015/04/13/cycling
Stories about our son Sam, his disability, our family and our lives. Sam is 6, loves stories and has cerebral palsy. I am learning to be his ally. April 13, 2015. April 13, 2015. In our quest for fun weekend and holiday activities, Sam’s tricycle has been a godsend. We are constantly aiming for variety. In Sam’s life; things to do that aren’t us reading him books or watching an ipad, activities that get him out of his wheelchair. We bought Sam’s trike last year. We got advice from various physi...Can be ...
storieswithsam.com
March | 2015 | Stories with Sam
https://storieswithsam.com/2015/03
Stories about our son Sam, his disability, our family and our lives. Sam is 6, loves stories and has cerebral palsy. I am learning to be his ally. March 12, 2015. March 12, 2015. It is tricky for us to encourage Sam’s hobbies. Or find fun stuff for him to do that isn’t watching an iPad or being read a book. Activities often feel like hard work for not that much reward. We have had some successes: swimming. And stories at the Horniman Museum. 8216;On a small number of occasions Sam has also very clearly, ...
storieswithsam.com
jessmoxham | Stories with Sam
https://storieswithsam.com/author/jessmoxham
Stories about our son Sam, his disability, our family and our lives. Sam is 6, loves stories and has cerebral palsy. I am learning to be his ally. Playing for laughs (via eyegaze). July 14, 2016. I’ve got three kids! I don’t have much time to write blogs! And we have moved house, again, so things are as relaxed as usual round here. The current hit, however, is the most simple of all. By navigating through various screens within the PODD communication software Sam can get to a page which just has Yes,...
storieswithsam.com
May | 2015 | Stories with Sam
https://storieswithsam.com/2015/05
Stories about our son Sam, his disability, our family and our lives. Sam is 6, loves stories and has cerebral palsy. I am learning to be his ally. May 12, 2015. May 12, 2015. I was therefore excited as we headed to Dulwich Park last Saturday night, for an open-air circus performance called Weighting. Organised by our local council. I knew it would involve disabled and non-disabled actors and performers, and we would sit on a blanket, and it wasn’t raining. I had high hopes. The performance centred around...
storieswithsam.com
Listening to the lungs | Stories with Sam
https://storieswithsam.com/2015/06/02/listening-to-the-lungs
Stories about our son Sam, his disability, our family and our lives. Sam is 6, loves stories and has cerebral palsy. I am learning to be his ally. Listening to the lungs. June 2, 2015. But then some days I think to myself… Jess, you have this job totally nailed! Sam hasn’t had a chest infection for over two years, but previously he’s had a lot. And I remember the sound of them. As we arrived, I could hear the administrative staff behind the desk talking about how few doctors there were, and that there we...
storieswithsam.com
‘Earthquakes, and the Light They Let In’ | Stories with Sam
https://storieswithsam.com/2015/07/28/earthquakes-and-the-light-they-let-in
Stories about our son Sam, his disability, our family and our lives. Sam is 6, loves stories and has cerebral palsy. I am learning to be his ally. Earthquakes, and the Light They Let In’. July 28, 2015. July 29, 2015. Advised Prime Ministers, set up at international NGO and had two boys. I didn’t know her, but she was by all accounts brilliant, committed, and a good friend of a friend of mine. Aged 36 she died of colon cancer. In her last year she wrote a book, ‘ Late Fragments. And no-one understands th...
storieswithsam.com
April | 2015 | Stories with Sam
https://storieswithsam.com/2015/04
Stories about our son Sam, his disability, our family and our lives. Sam is 6, loves stories and has cerebral palsy. I am learning to be his ally. Sending Sam down a zipwire. April 26, 2015. Over the Easter holidays we took Sam away for an activity weekend. We went to Istanbul for a long weekend with Eli in March, so now it was Sam’s turn to get uninterrupted time with his parents. The Calvert Trust Exmoor. It’s quite hard to summarise how it went. It could be written one of two ways:. Our instructor was...
storieswithsam.com
‘That’s disgusting’ | Stories with Sam
https://storieswithsam.com/2015/07/09/thats-disgusting
Stories about our son Sam, his disability, our family and our lives. Sam is 6, loves stories and has cerebral palsy. I am learning to be his ally. 8216;That’s disgusting’. July 9, 2015. Sam was ill recently, which meant he was off school and had to come with me to take Eli to nursery. He was a trooper, considering he had a fever, and was not as grumpy as I expected as we walked round the corner. Then, a girl (probably 3 years old) pointed at Sam’s face. 8216;That’s disgusting’, she said. In the meantime,...
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