theoneinamillionbaby.com
Doctors |
http://theoneinamillionbaby.com/category/doctors
The One in a Million Baby. Publications, mentions and interviews. What didn’t happen. On June 28, 2016. When Eva died, she had so many big things coming up. She was getting her hips and eye operated on. She was going to get a G-tube placed so she could finally have the tape off her face and the NG tube out of her nose. She was going to have two cochlear implants placed Read More. Sign the petition – give Lily a new heart. On March 22, 2016. Murphy's Law at its best. On February 23, 2015. I am the expert.
theoneinamillionbaby.com
Eye problems |
http://theoneinamillionbaby.com/category/eye-problems-2
The One in a Million Baby. Publications, mentions and interviews. The true meaning of beauty. On May 22, 2016. In the last few weeks I have been taking some active steps to help myself. I could feel, and can feel, a hint of depression crawling back into my chest. I feel tired constantly. I’ve stopped running. I’m drinking too much. I want to change that. I can’t rid myself of grief, and I don’t Read More. Categories: Anophthalmia, microphthalmia, and coloboma. Shut up and Dance. Not so fast on my feet.
theoneinamillionbaby.com
Heart troubles |
http://theoneinamillionbaby.com/category/medical-conditions/heart-troubles
The One in a Million Baby. Publications, mentions and interviews. Sign the petition – give Lily a new heart. On March 22, 2016. I was listening to some people talk about language the other day. They were discussing racial slurs and slurs aimed at the special needs community. They seemed to agree that racial slurs were not ok under any circumstances, but when it came to special needs slurs (we all know which R word I am referring Read More. On October 17, 2015. Tags: congenital heart disease. Eva has two ...
theoneinamillionbaby.com
Good news |
http://theoneinamillionbaby.com/category/good-news
The One in a Million Baby. Publications, mentions and interviews. Thank you, thank you, thank you! On October 20, 2016. I’m feeling a bit emotional today, in the best possible way. And I wanted to say thank you to everyone who has supported me and read my posts, listened to the podcast and voted for me when I nagged at you to do so. I asked you all recently to vote for me in the Read More. Tags: Mumsnet blogging awards. Delivering good news – it feels good! On September 26, 2016. On June 24, 2016. This m...
theoneinamillionbaby.com
CHARGE Syndrome |
http://theoneinamillionbaby.com/category/special-needs/charge-syndrome
The One in a Million Baby. Publications, mentions and interviews. What does it mean to be a mother? On October 27, 2016. What does it mean to be a mother? Does it have a definition we all agree on? Is there a difference between being a mother and a parent? When Eva was born and her diagnoses started rolling in, I was desperate. This wasn’t the role I signed up for. A social worker put it to Read More. We are a top resource for Special needs families! On August 19, 2016. Tags: best special needs resources.
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Medical updates |
http://theoneinamillionbaby.com/category/medical-updates
The One in a Million Baby. Publications, mentions and interviews. Blood letting, babies and a good result. On February 17, 2015. This morning was… busy. Eva had a follow up test after her cortisol levels were shown to be slightly lower than normal at a blood test last week. People with CHARGE Syndrome often have issues with hormones due to the involvement of their pituitary gland. it can affect growth, stress, and other areas of development. Read More. Christchurch, cochlear implants and some giggles.
theoneinamillionbaby.com
Medical conditions |
http://theoneinamillionbaby.com/category/medical-conditions
The One in a Million Baby. Publications, mentions and interviews. Episode 14: Victoria and Ashley. On October 1, 2016. Ashley Jones and her husband Keith had no idea of the rollercoaster ride they were going to get on when they had their first child, Victoria. Victoria, who is now a happy 22 month old, was born with a tracheoesophageal fistula (TEF) which is an abnormal connection (fistula) between the esophagus and the trachea, and suffered global Read More. On September 13, 2016. On May 22, 2016. I was...
theoneinamillionbaby.com
Anophthalmia, microphthalmia, and coloboma |
http://theoneinamillionbaby.com/category/medical-conditions/anophthalmia-microphthalmia-and-coloboma
The One in a Million Baby. Publications, mentions and interviews. The true meaning of beauty. On May 22, 2016. In the last few weeks I have been taking some active steps to help myself. I could feel, and can feel, a hint of depression crawling back into my chest. I feel tired constantly. I’ve stopped running. I’m drinking too much. I want to change that. I can’t rid myself of grief, and I don’t Read More. Categories: Anophthalmia, microphthalmia, and coloboma. Shut up and Dance. A week of extremes. Last ...
embracingthespectrum.com
autism Archives - Embracing the Spectrum
http://embracingthespectrum.com/tag/autism
Disability, Autism, and Parenting News. A message of hope and love in our journey with autism. Find What You’re Looking For? Beyond Rain Man: An Honest Look at Autism Parenting Book Giveaway. August 8, 2016. By Embracing the Spectrum. 5 Inspirational People with Autism Plus a Giveaway. July 31, 2016. By Embracing the Spectrum. Reviews and sponsored posts. Video Implores Society to Accept Autism. July 27, 2016. By Embracing the Spectrum. Every day this summer, I've watched my son as he has had good moment...
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