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Trail To A Texas Trial | 4 out of 5 dentists recommend this WordPress.com site4 out of 5 dentists recommend this WordPress.com site
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4 out of 5 dentists recommend this WordPress.com site
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Trail To A Texas Trial | 4 out of 5 dentists recommend this WordPress.com site | trailtoatexastrial.wordpress.com Reviews
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4 out of 5 dentists recommend this WordPress.com site
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Trail To A Texas Trial | 4 out of 5 dentists recommend this WordPress.com site | Page 2
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Trail To A Texas Trial. 4 out of 5 dentists recommend this WordPress.com site. About the Safety Study of NNZ-2566. Newer posts →. A One in a Million Boy. October 4, 2016. AJ with Katelin at the 2016 Conference. AJ has CDKL5 (without Klinefelter’s syndrome), an atypical form of Rett syndrome. Who have the MecP2 mutation, survive only because they also have Klinefelter’s syndrome. I often wonder how parents feel… their child survived only because he was going to be disabled anyway. Even when I write blogs ...
Katelin’s Story | Trail To A Texas Trial
https://trailtoatexastrial.wordpress.com/katelins-story
Trail To A Texas Trial. 4 out of 5 dentists recommend this WordPress.com site. About the Safety Study of NNZ-2566. I was born on June 5, 1993. I put my mom through a tough time just to come into the world, and scared the heck out of her when I didn’t breathe right away, but after that little glitch, I was off and running. I reached all my milestones and right on target. I was a funny baby and super smart! Rett Syndrome has been reversed in mice, one day there may be a cure for me! I believe in magic😉.
Donate | Trail To A Texas Trial
https://trailtoatexastrial.wordpress.com/donate
Trail To A Texas Trial. 4 out of 5 dentists recommend this WordPress.com site. About the Safety Study of NNZ-2566. A cure for Rett Syndrome is around the corner and by helping others, like Katelin, get to trials, you put researchers one step closer to that goal. Thank you from the bottom of my heart. Click below to donate to Rettland. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Notify me of new comments via email.
Sibling Sounding Board | Trail To A Texas Trial
https://trailtoatexastrial.wordpress.com/sibling-sounding-board-2
Trail To A Texas Trial. 4 out of 5 dentists recommend this WordPress.com site. About the Safety Study of NNZ-2566. Highlighting a very special sibling this month! Kaylie A. recently put together an outstanding presentation for her Science Buddies project. Showing great initiative she put together a list of questions for Rett parents and guardians-. Age of Onset of Common Rett Syndrome Symptoms. 1 What is your family member with Rett Syndrome’s birth date? I was really impressed by the professionalism and...
Videos | Trail To A Texas Trial
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Trail To A Texas Trial. 4 out of 5 dentists recommend this WordPress.com site. About the Safety Study of NNZ-2566. Https:/ www.youtube.com/watch? Participating in Clinical Research: We Did It and So Can You! Mickie McCool , Virginia 2014. Https:/ www.youtube.com/watch? Dr Steve Kaminsky, Rettsyndrome.org CSO, discussing results of the NNZ-2566 trial. Professor Mike Snape and NNZ-2566 in Rett Syndrome and Autism Spectrum Disorders. Http:/ www.youtube.com/watch? Http:/ www.youtube.com/watch? Association Fr...
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Full of Grace | candid calliope
https://candidcalliope.wordpress.com/2014/12/19/full-of-grace
Why “Candid Calliope”. December 19, 2014. What grace have you been offered lately? I shared last week a clutch of words on the depression that has been facing me down, trying its best to overcome me. It was a hard post to write, coming from a raw place that hasn’t healed over, a place too rough to yet be exposed. But I ripped the bandage off and there it was, unable to fester in the broad light of day. With the exposure came encouragement, sincere and soothing. Soon I said soon. I need to make it soon.
The Resonance of the Creation | candid calliope
https://candidcalliope.wordpress.com/2014/09/19/the-resonance-of-the-creation
Why “Candid Calliope”. The Resonance of the Creation. September 19, 2014. The clasps that held the case safely shut no longer function. The faded velvet lining peels away along the inner edges. Musty, dusty scents trigger a sneeze as I lift the Mystery Violin from the casket it’s been silently lying in for decades. A couple of strings swing loosely from the pegs, no bridge to hold them in place. And then, I begin the transplant. It’s the first hit of the paddles, this placement of the bridge. It’s th...
spark | candid calliope
https://candidcalliope.wordpress.com/2015/05/08/spark
Why “Candid Calliope”. May 8, 2015. I won a silver necklace at a party once. It is a tiny silver plaque on a delicate chain. I could choose what I wanted engraved on the plaque. What a nightmare. Hey, Word Lady who loves all the words– pick ONE! You will wear the word and the word will be seen and asked about and explained. You have one day. Oh, and the word can only have five letters. Dream, live, love…puke. I started noticing all words that have five letters or less. (. No Not that either.). Another as...
You, at the Beginning | candid calliope
https://candidcalliope.wordpress.com/2015/01/09/you-at-the-beginning
Why “Candid Calliope”. You, at the Beginning. January 9, 2015. One of my first successful shots, pre-digital. I am the type of mom who pulls out my phone to take a picture in a breathless moment before everyone runs out the door on the first day of school. I do not make signs or cute props. Mostly I pray for an almost smile and that the kids won’t be late because I forgot this was something I was supposed to do. On that point, I also prefer candid shots of people, any people, my kid-type people included.
Why “Candid Calliope” | candid calliope
https://candidcalliope.wordpress.com/why-candid-calliope
Why “Candid Calliope”. Why “Candid Calliope”. I’ve mentioned already my desire to be honest, to be authentic. Thus, the word candid. Candid means sincere, free from reservation. And in photography, as most of you know, it also means unposed. Those pictures are always my favorite. I want to spend the rest of my life unposed. 3 thoughts on “Why “Candid Calliope””. Pingback: Unposed candid calliope. Pingback: Tidal Wave candid calliope. Leave a Reply Cancel reply. Enter your comment here. Week 3: upside down.
All or Not At All | candid calliope
https://candidcalliope.wordpress.com/2016/07/28/all-or-not-at-all
Why “Candid Calliope”. All or Not At All. July 28, 2016. All or not at all. What breeds hesitation in you? What holds back a hand that wants to knock, a smile that wants to break wide and warm the room, a foot that picks up, wanting to walk straight across the room to the hurt in another? I have spent the last year digging through ashes. And learning, seeking, searching, just what it means to love. I have come again and again to a single answer love is giving your life away. Too much was always my bigges...
Allison Odom | candid calliope
https://candidcalliope.wordpress.com/author/mrssqueak
Why “Candid Calliope”. All posts by Allison Odom. All or Not At All. July 28, 2016. All or not at all. What breeds hesitation in you? What holds back a hand that wants to knock, a smile that wants to break wide and warm the room, a foot that picks up, wanting to walk straight across the room to the hurt in another? I have spent the last year digging through ashes. And learning, seeking, searching, just what it means to love. I have come again and again to a single answer love is giving your life away.
The Wild Takes Its Place | candid calliope
https://candidcalliope.wordpress.com/2014/09/26/the-wild-takes-its-place
Why “Candid Calliope”. The Wild Takes Its Place. September 26, 2014. I imagined a controlled chaos, both frenetic and melodic, like the best of the hard rock songs that lend themselves well to work and movement. I wanted a wild that sidled up to the planned and proper, the logical, and took it for a ride. I made these plans before depression, before social anxiety, before a deficit of attention that demanded a muzzle be placed on all things wild. A couple of months passed and green poked through the expe...
You Take My Hand | candid calliope
https://candidcalliope.wordpress.com/2016/04/06/you-take-my-hand
Why “Candid Calliope”. You Take My Hand. April 6, 2016. It is April. National Poetry Month. And though I love poetry all the year round, I am always wishing I wrote more of it come April. It gives me a chance to exercise concision in my word choice. The following poem is a villanelle, which is a structured poem that tightens those rules even further. Quoting straight from poets.org:. Did you catch all that? Maybe you’ll recognize the pattern below, or from a rather famous poem most know,. You Take My Hand.
A Frame for the Kneeling | candid calliope
https://candidcalliope.wordpress.com/2014/05/09/a-frame-for-the-kneeling
Why “Candid Calliope”. A Frame for the Kneeling. May 9, 2014. Last week I took my second ride of the season. I creaked and pedaled over a mud-covered path, my tires sinking into mud that accepted its new shape without complaint. Before I left, I had a moment of conversation with myself over whether I should bring my phone or not. I don’t live in a state of worry that compels me to carry it at all times. And,. To make the trip. What a sacred delight that would be. It was the sky that changed my mind.
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trailtoacure.org
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trail to a cure | memory. honor. hope.
Trail to a cure. Memory. honor. hope. Bricks, Pizza, Opportunity, and an Auction for The Cause. July 15, 2015. July 21 UPDATE: the first brick has sold, but here’s the listing. You know how sometimes you get an idea, and you think: “This will never work.”? We had one of those. It was last minute, long shot, and what do you know? At least so far. Like good pizza lovers, we were following the buzz around the news of the demolition of the original Shakespeare’s Pizza location. Columbia Daily Tribune Photo.
Travel Trips and Adventures Expo |
Travel Trips and Adventures Expo. Centrylink Field Event Center. 800 Occidental Ave S. Saturday Feb. 28. Tickets to be available soon. Kids 12 and Under FREE. Travel Trips and Adventures Expo.
Trail to Aiden Lee
Trail to Aiden Lee. This is our journey to our son, Aiden Lee! Saturday, January 7, 2012. After much deliberation . Boy, oh boy, was I wrong! This has been the most therapeutic aspect of the whole adoption process, not to mention having most all the adoption details remembered and recorded. I plan on making my blog into a book, from Blog2Print's website. I can't wait to get it going and re-read our little adventure. So what's next for me? Glad you should ask. Why, another blog, don't you know! I remember...
The Trail To Anywhere | Conservation, Photography and Filmmaking
The Trail To Anywhere. Conservation, Photography and Filmmaking. From fine art and sculpture to culture, travel, conservation and adventure The Trail to Anywhere. Offers a bespoke filmmaking and photographic service producing anything from feature length documentaries to short films and promotional videos. This slideshow requires JavaScript. Recent commissions include a series of films for Operation Wallacea. Covering their projects in Honduras. As well as working with adventurer Dave Cornthwaite.
trailtoatexastrial.wordpress.com
Trail To A Texas Trial | 4 out of 5 dentists recommend this WordPress.com site
Trail To A Texas Trial. 4 out of 5 dentists recommend this WordPress.com site. About the Safety Study of NNZ-2566. A Note for New Rett Parents. August 13, 2015. These are my thoughts, others may have different opinions. You’ll find that a LOT! We don’t all agree, but that’s ok. So many families, religions, cultures etc. how could we? But for me this is what I would tell you. Every little gain will be a miracle. Advancement in technology is giving our children ways to communicate that was not possible bef...
Life Is Good
Thursday, May 3, 2012. What Does God Smell Like? How I love the spring! Today the kids and I were on a walk and all of our wild honeysuckle is in full bloom. Honeysuckle, in particular, revitalizes me. I was pondering on how God is the ultimate in aromatherapy. No incense or candles can truly replicate the smells that God Himself created for His glory. Which got me wondering.I wonder what HE smells like? What does Jesus and the Holy Spirit smell like? Do you know that God loves smells, too? The thought i...
Trail TOC Diner - Home of "Touch of Class Catering"
HOME ABOUT US HOURS DIRECTIONS MENU CATERING. From Greenfield or Shelburne Falls, “Trail TOC Diner”. Specializes in home-cooked and fresh fare which. Eggs Benedict every Sunday. Stick to your ribs Southern Style. Bonnie's own touch of Sausage Gravy over. Bonnie's award winning Chili served everyday. Eat in or take it with you. Trail TOC Diner is a bright and friendly diner just. Minutes from Greenfield and Shelburne Falls. Bonnie Brown - Owner. Shelburne Falls, “Trail TOC Diner”. Shelburne Falls, MA.
Trail To Christ Cowboy Church Jacksonville Texas
E would like to Welcome You. To Trail To Christ Cowboy Church, where our purpose is to reach the lost and unchurched people in the western culture with the gospel of Jesus Christ. And provide a church home where they can become more like Him. We were started by a small group of folks in 2004 at the Cherokee County Show Barn. These folks had a desire to learn about and serve our Lord and Savior, Jesus Christ. Riding for Cole - Playday August 14th. Click on the flyer for more info. 5858 Highway 79 West.
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Into The Woods | Trail running in the Hudson Valley
Trail running in the Hudson Valley. Is Trust A Villain? June 25, 2013. Based upon my own experiences in this revolving trip around the sun we’re all taking together, I can say without question that there are many moments of self-doubt in life. For some, these moments may be less frequently occurring than for others, but we all have them. This, I know. And so the conversation ensued with Jerome. After some discussion, it was decided that he would sponsor my event by providing one of my required servic...
