Hello, my name is Ethan and on January 29, 2014, I passed away from Tay-Sachs, a genetic condition that is fatal in early childhood. With the right testing, it is almost completely preventable. My...
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Tay-Sachs Awareness and Prevention - Home | tsapo.org Reviews
https://tsapo.org
Hello, my name is Ethan and on January 29, 2014, I passed away from Tay-Sachs, a genetic condition that is fatal in early childhood. With the right testing, it is almost completely preventable. My...
tsapo.org
Make A Gift - Tay-Sachs Awareness and Prevention
http://www.tsapo.org/make-a-gift.html
How To Get Tested. Medicines for your Child. Make a Gift Today. TSAPO values its supporters so much that we make sure every dollar you donate goes to directly programs that you value! Sustained Giving Through Paypal. Legacy Sponsor : $250.00 USD - monthly. Gold Sponsor : $100.00 USD - monthly. Silver Sponsor : $50.00 USD - monthly. Bronze Sponsor : $25.00 USD - monthly. Sponsor : $10.00 USD - monthly. TSAPO is a registered 501(c)(3) and our Tax ID is 46-3640202. Donate through justgive.org here.
Parents' Corner - Tay-Sachs Awareness and Prevention
http://www.tsapo.org/parents-corner.html
How To Get Tested. Medicines for your Child. Parent's Corner: From Parents to Parents. Our hearts break with every new diagnosis, so we created Parent's Corner, a place where families can find practical tips for how to keep their children comfortable, information on medicines and specialized equipment that have helped other families, information on sibling support, and additional resources, including books and experts to help along the way. And the Courageous Parents Network. Medicines for your Child.
Programs - Tay-Sachs Awareness and Prevention
http://www.tsapo.org/our-programs.html
How To Get Tested. Medicines for your Child. TSAPO's primary mission is to prevent Tay-Sachs in the general population. We accomplish this mission through our Healthy Family Grant Program and our Genealogical Carrier Testing Program described below. In addition, we have two prevention initiatives that we hope will further our mission. Before applying. We sincerely appreciate your interest in our grant program and wish you the best of luck! TSAPO employs genealogical research from families who currently h...
Additional Resources - Tay-Sachs Awareness and Prevention
http://www.tsapo.org/additional-resources.html
How To Get Tested. Medicines for your Child. Emily Rapp's Still Point of the Turning World, a story about mothering a child with Tay-Sachs. Becky Benson's Three Short Years: Life Lessons in the Death of My Child, a story about loving a child with Tay-Sachs. Blyth Lord's DVD on how to help families and doctors provide palliative care to their Tay-Sachs children. Notes From a Dragon Mom. Affected Child's Name, Condition, and Age *. Submit additional resources here: *. Help us make our website better!
Volunteer Opportunities - Tay-Sachs Awareness and Prevention
http://www.tsapo.org/volunteer-opportunities.html
How To Get Tested. Medicines for your Child. TSAPO hopes to make volunteer opportunities available in our Genealogical Carrier Testing program and in our fundraising programs! If you are a genealogical researcher or if you are wonderful at sewing and would like to volunteer, please let us know. We are looking for volunteers to sew tooth fairy pillowcases! Help us make our website better! All professional photographs courtesy of. Mary Kate McKenna Photography.
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The Air Force Association Cycling Classic | CyclingClassic.org
http://www.cyclingclassic.org/kids-races.html
Pro / Am Races. Challenge Ride, Sunday. Clarendon Cup, Saturday. Crystal Cup, Sunday. Pro / Am Races. Armed Forces Cycling Challenge. Will be run in his honor, fulfilling Ethan’s wish to create more awareness and support for families dealing with Tay-Sachs and other rare genetic disorders. Kids 9 and under will have two opportunities to participate for FREE at the 2016 Air Force Association Cycling Classic. Here are some key details to help keep things moving smoothly:. 929 Long Bridge Drive. Sunday, Jun...
The Air Force Association Cycling Classic | CyclingClassic.org
http://www.cyclingclassic.org/kids-races-overview.html
Pro / Am Races. Challenge Ride, Sunday. Clarendon Cup, Saturday. Crystal Cup, Sunday. Pro / Am Races. Armed Forces Cycling Challenge. The Kids Bike Races, Clarendon (Saturday) and Crystal City (Sunday), part of the 2016 Air Force Association Cycling Classic proudly brought to you by the Boeing Company, June 11/12. The Ethan Klancnik Memorial Kids Race to support Tay-Sachs Awareness and Prevention. Here are some key details to help keep things moving smoothly:. Come to Registration at Packet Pick-up:.
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Виталий Цаплин | личный сайт
Перейти к основному содержимому. Перейти к дополнительному содержимому. О сайте и обо мне. Календарь рейтинговых соревнований 2015. 4 этап Кубка Пермского края по велоспорту на шоссе, трековые спринты на картодроме. 5 августа 2015 года состоялся 4-й этап Кубка Пермского края по велоспорту на шоссе. В рамках этого этапа были проведены трековые спринты на пермском картодроме. Подробности, результаты и фотоотчет опубликованы здесь. 3 этап Кубка Пермского края по велоспорту на шоссе. Мы проехали через Герман...
Цаплин Валерий: персональный веб-сайт | Валерий Цаплин в Рыбинске | Цаплин Валерий Ярославль | Valery Tsaplin: personale web-site
Валерий Цаплин живет на Ярославской земле. Он родился в городе Рыбинске, здесь началось его художественное образование. Сначала в семье, атмосфера которой благоприятствовала развитию художественных наклонностей мальчика: отец Валерия, художник-оформитель, знал и любил живопись. Свои первые детские образы Валерий начал воплощать в пластилине - увлекался лепкой. Много времени проводил в музее, где его особенно привлекали живописные полотна. Вспоминает он о своих впечатлениях. Продолжил образование Валерий ...
Орбита. Повесть Сергея Цаплова.
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Tsapo (Balázs Csapó) - DeviantArt
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Tay-Sachs Awareness and Prevention - Home
How To Get Tested. Medicines for your Child. Hello, my name is Ethan and on January 29, 2014, I passed away from Tay-Sachs, a genetic condition that is fatal in early childhood. With the right testing, it is almost completely preventable. My wish to share with you is that everyone have access to genetic testing and no one ever suffer from Tay-Sachs or another preventable genetic disease. Read more about me here. Ethan's Mom On TSAPO. To read the article. Donate through justgive.org.
Dimitris Tsapogas | University of Vienna
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