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undiagnosedbutokay.blogspot.com

Undiagnosed but Okay

The life and times of Boo. A girl without a diagnosis but with unlimited possibilities! Comments, photos and other stuff. A little about me. A little about Big Sister, Boo and Crazy Pup. Boo the medical enigma. Friday, October 24, 2014. Have you seen our new digs? Not sure if you know this or not, but Undiagnosed but Okay. Has moved. Come see our new place by following this link. Links to this post. Thursday, October 2, 2014. It's official. Undiagnosed but Okay. Links to this post. TBT- I was an idiot.

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Undiagnosed but Okay | undiagnosedbutokay.blogspot.com Reviews
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The life and times of Boo. A girl without a diagnosis but with unlimited possibilities! Comments, photos and other stuff. A little about me. A little about Big Sister, Boo and Crazy Pup. Boo the medical enigma. Friday, October 24, 2014. Have you seen our new digs? Not sure if you know this or not, but Undiagnosed but Okay. Has moved. Come see our new place by following this link. Links to this post. Thursday, October 2, 2014. It's official. Undiagnosed but Okay. Links to this post. TBT- I was an idiot.
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Undiagnosed but Okay | undiagnosedbutokay.blogspot.com Reviews

https://undiagnosedbutokay.blogspot.com

The life and times of Boo. A girl without a diagnosis but with unlimited possibilities! Comments, photos and other stuff. A little about me. A little about Big Sister, Boo and Crazy Pup. Boo the medical enigma. Friday, October 24, 2014. Have you seen our new digs? Not sure if you know this or not, but Undiagnosed but Okay. Has moved. Come see our new place by following this link. Links to this post. Thursday, October 2, 2014. It's official. Undiagnosed but Okay. Links to this post. TBT- I was an idiot.

INTERNAL PAGES

undiagnosedbutokay.blogspot.com undiagnosedbutokay.blogspot.com
1

Undiagnosed but Okay: TBT--I was an idiot

http://www.undiagnosedbutokay.blogspot.com/2014/10/tbt-i-was-idiot.html

The life and times of Boo. A girl without a diagnosis but with unlimited possibilities! Comments, photos and other stuff. A little about me. A little about Big Sister, Boo and Crazy Pup. Boo the medical enigma. Thursday, October 2, 2014. TBT- I was an idiot. This post was originally published on 06-SEP-2012 after a wonderful week of company. But then. I became an idiot. Instead of being warrior mom I was one who judged. A person I wasn't too proud to be. This weekend I was taken by surprise to see just h...

2

Undiagnosed but Okay: Song

http://www.undiagnosedbutokay.blogspot.com/2013/05/song.html

The life and times of Boo. A girl without a diagnosis but with unlimited possibilities! Comments, photos and other stuff. A little about me. A little about Big Sister, Boo and Crazy Pup. Boo the medical enigma. Friday, May 17, 2013. It is 5-minute Friday.ready for a Song? Song is that sound in time that takes you back. Hearing Jimmy Buffett and bringing back to when your now husband convinced you to go on a date by promising to take you to a Buffett concert. May 17, 2013 at 9:36 AM. Great post and I love...

3

Undiagnosed but Okay: TBT-where would I live?

http://www.undiagnosedbutokay.blogspot.com/2014/09/tbt-where-would-i-live.html

The life and times of Boo. A girl without a diagnosis but with unlimited possibilities! Comments, photos and other stuff. A little about me. A little about Big Sister, Boo and Crazy Pup. Boo the medical enigma. Thursday, September 25, 2014. TBT-where would I live? Today's Throw-back Thursday post is actually a post from a Finish that Sentence Friday Prompt I answered on April 11, 2013. The prompt was: If I could live anywhere I would live.". Time for Finish that Sentence Friday. And today's snippet is.

4

Undiagnosed but Okay: Sometimes

http://www.undiagnosedbutokay.blogspot.com/2014/09/sometimes.html

The life and times of Boo. A girl without a diagnosis but with unlimited possibilities! Comments, photos and other stuff. A little about me. A little about Big Sister, Boo and Crazy Pup. Boo the medical enigma. Thursday, September 18, 2014. Some times.I hate this life. I hate that as much as I love Abby I fear those teenage years. I hate that one day she will go through a period of her life where we will not understand one another. But I accept that. I will not effing accept is that I HATE. To constantly...

5

Undiagnosed but Okay: Have you seen our new digs?

http://www.undiagnosedbutokay.blogspot.com/2014/10/have-you-seen-our-new-digs.html

The life and times of Boo. A girl without a diagnosis but with unlimited possibilities! Comments, photos and other stuff. A little about me. A little about Big Sister, Boo and Crazy Pup. Boo the medical enigma. Friday, October 24, 2014. Have you seen our new digs? Not sure if you know this or not, but Undiagnosed but Okay. Has moved. Come see our new place by following this link. Thanks for stopping by and letting me know what you think! Subscribe to: Post Comments (Atom). I don't know if I'm ready.

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homeschoolingmyway.com homeschoolingmyway.com

What is a Main Lesson Book Anyway? Do I Need One? | Homeschooling My Way

https://homeschoolingmyway.com/2014/08/26/do-i-need-a-main-lesson-book

What is a Main Lesson Book Anyway? Do I Need One? August 26, 2014. August 25, 2014. I don’t like rules. When I started with Waldorf Homeschooling I kept hearing Main Lesson book, Main Lesson Book, Main Lesson Book. In your Math Main Lesson Book, do. In your Science Main Lesson Book and do. In your Literature Main Lesson Book. (Don’t even get me started on Form Drawing). Don’t draw in that one, draw in this one! 8221; That doesn’t seem very Waldorfy to me. And don’t tell me only your best. The best one EV...

michaelaevanow.com michaelaevanow.com

Florence’s story

http://michaelaevanow.com/flos-story

This wild and precious life. This is motherhood {too}. Although this is a big part of our story right now, it is not the end of the story. And Jay didn’t miss out on getting cut open and stitched back together either. Florence Marigold was born. Perfectly healthy. I had a wonderful labor and pushed her out into the warm water. At 35 months, I noticed she was having trouble lifting. With type 1 Spinal Muscular Atrophy. Until she was taken off of liquids and solids by mouth. She was in hospital. Somedays i...

strengthforthejourney.wordpress.com strengthforthejourney.wordpress.com

I’ve gotta let it shine…. | Strength for the Journey

https://strengthforthejourney.wordpress.com/2013/04/19/ive-gotta-let-it-shine

Strength for the Journey. Relying on God in our strange trip with Mitochondrial Disease. I’ve gotta let it shine…. With everything happening in the world recently, it’s been hard to focus on any one thing to blog about. The news just bombards us moment by moment, reminding me who the real “Prince of this World” is; that being the Prince of Darkness. It can make my heart so heavy. It makes me want to grab my children and hide under the covers. But I can’t. This little light of mine,. I can’t claim t...

homeschoolingmyway.com homeschoolingmyway.com

When You Are Home Sick and Home Schooled | Homeschooling My Way

https://homeschoolingmyway.com/2014/09/05/home-sick-and-home-schooled

When You Are Home Sick and Home Schooled. September 5, 2014. September 4, 2014. I had the best of intentions this week, as you may have noticed, the month was all planned out. I did so well, the boy didn’t even know Monday was a holiday. I’m tricky that way. As it happened, it didn’t matter. Because sometime late night Monday early morning Tuesday, this happened:. 8220;Mom, I feel yucky, mom….mom….wake up. Can I watch something? If you’ve read the page about The Boy. If you’ve never “met&#822...Click to ...

amycakeandthedude.blogspot.com amycakeandthedude.blogspot.com

Amycake and The Dude: September 2014

http://amycakeandthedude.blogspot.com/2014_09_01_archive.html

Amycake and The Dude. We'll have fun, or we'll have stories to tell. Tuesday, September 30, 2014. Farewell, Pink Dresser. I develop irrational attachments to things. I once had a light blue Tshirt that advertised some business or other and was covered in handprints made with white paint. I wore that Tshirt to sleep in every night for four or five years. At least. It was somewhat compulsive behavior, I admit ( I've always slept in it; I can stop now! Then one of our neighbors offered up a free dresser&#46...

leadoutforlinleigh.wordpress.com leadoutforlinleigh.wordpress.com

Cycling Illuminated The Way To Start Living And Thriving And Not Just Surviving | Leadout For Linleigh

https://leadoutforlinleigh.wordpress.com/2014/05/20/cycling-illuminated-the-way-to-start-living-and-thriving-and-not-just-surviving

A Father’s Journey Through Raising A Child With Additional Needs Via Lessons In Life, Cycling and God’s Grace. Posted by: Leadout For Linleigh. May 20, 2014. Cycling Illuminated The Way To Start Living And Thriving And Not Just Surviving. However, don’t take my word for it. There is another inspiring group of people who can testify to the invaluable benefits of cycling. Ride to Recovery. Credit: Ride To Recovery. Cycling helps speed up the recovery and rehabilitation process. The restoration that Ride to...

findingninee.com findingninee.com

Our Land - Why Special Needs is Like Chlorophyll - Finding Ninee

http://www.findingninee.com/why-special-needs-is-like-chlorophyll

Finding Ninee » Sharing our parenting and special needs stories with heart and humor. How to Start a Blog. Me in 1980's. The Lot of It. Our Land – Why Special Needs is Like Chlorophyll. Wednesdays equal Our Land! I am proud to feature another amazing voice in this Series. Because you, my friends, were beyond wonderful. Today’s awesomeness is brought to you by my friend Tatum from Ain’t No Roller Coaster. Tatum’s and my paths crossed through our mutual friend Kerry. It’s Just The Way It Is. Okay, truth be...

faithfulmomof9.com faithfulmomof9.com

Marijuana

http://www.faithfulmomof9.com/medical-marijuana

Faith, Hope, and Love. Bethany’s Smiley Face Poop Shop. YouTube disABILITY Video Project. There was a time long, long, ago if you told me I would someday believe marijuana should be legalized, I would have told you that you were crazy. Then one November day back in 2000, my precious two year old daughter was diagnosed with a life threatening brain tumor that nearly destroyed her life! Now if you were to ask me what I think about marijuana, this is what I’d tell you:. She has suffered for years with such ...

findingninee.com findingninee.com

Creating a land of empathy while looking for signs of autism

http://www.findingninee.com/empathy-and-wonder-not-autism

Finding Ninee » Sharing our parenting and special needs stories with heart and humor. How to Start a Blog. Me in 1980's. The Lot of It. The Land of Empathy and Wonder. If I could live anywhere in the world, I’m not sure where I’d choose. The caves and snow of the mountains of Colorado? So close to the ocean that each morning its scent would bring me back to earth before hunger and here? If I could live anywhere, I’d like to live in The Land of Empathy and Wonder. I’d like to live in a land where skin col...

faithfulmomof9.com faithfulmomof9.com

My Family

http://www.faithfulmomof9.com/my-family

Faith, Hope, and Love. Bethany’s Smiley Face Poop Shop. YouTube disABILITY Video Project. This page may contain affiliate links*. Me in June 2015. My Husband Malcolm in December 2014. James Michael is my first born son. He was born five weeks prematurely just one month shy of my eighteenth birthday. He weighed in at 5 lbs. and 3 oz. and was 18 inches long. He was by far the tiniest baby I had ever seen! He loved to read while perched in our old Willow tree. He would get so excited about reading encyc...

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Undiagnosed

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undiagnosed.org.uk undiagnosed.org.uk

SWAN UK | Syndromes Without A Name is a project run by Genetic Alliance UK offering Support and Information to Families of Children with undiagnosed genetic conditions

The SWAN UK Advisory Committee. About Genetic Alliance UK. The Origins of SWAN – A Grandmother’s Tale. What does SWAN / being undiagnosed mean? How can I get a diagnosis for my child? Meet the SWAN UK Parent Reps. Help design world’s first undiagnosed post at GOSH. Skip to primary content. Skip to secondary content. SWAN UK on the Web. SWAN UK and Blogging. Read the SWAN UK Blog. SWAN UK Facebook Page. Find SWAN UK on Twitter. Find SWAN UK on Youtube. Find SWAN UK on Pinterest. Fundraise for SWAN UK.

undiagnosedbipolar.com undiagnosedbipolar.com

Undiagnosed Bipolar - Information on Bipolar Disorders

Signs that you may have an Undiagnosed Bipolar Disorder. The Characteristics of Bipolar Disorder. Bipolar disorder is the current name for the condition that psychiatrists used to call. Although there can be clues in childhood, bipolar-disorder usually first manifests itself in late adolescence or early adulthood. Untreated, bipolar disorder can be devastating, often leading to suicide or death from other risky behaviors. The depressive stage may also be less intense with a touch of insomnia and a lack o...

undiagnosedbutokay.blogspot.com undiagnosedbutokay.blogspot.com

Undiagnosed but Okay

The life and times of Boo. A girl without a diagnosis but with unlimited possibilities! Comments, photos and other stuff. A little about me. A little about Big Sister, Boo and Crazy Pup. Boo the medical enigma. Friday, October 24, 2014. Have you seen our new digs? Not sure if you know this or not, but Undiagnosed but Okay. Has moved. Come see our new place by following this link. Links to this post. Thursday, October 2, 2014. It's official. Undiagnosed but Okay. Links to this post. TBT- I was an idiot.

undiagnosedbutokay.com undiagnosedbutokay.com

(Un)Diagnosed and still okay | The life and times of Bridget's family as the navigate an unexpected journey with a rare genetic syndrome

Un)Diagnosed and still okay. The life and times of Bridget's family as the navigate an unexpected journey with a rare genetic syndrome. A little about me. Posts, pictures, etc…. You are not alone. Contact me, it’s fun. Last summer ended with Bridget dancing on the beach. It was a hard fought victory for her to overcome her fear of the beach. A video I personally never tire of (sorry if you have! This entry was posted in sensory. August 14, 2015. If we were having a glass of wine…. A fellow blogger, Jamie.

undiagnosedday.org undiagnosedday.org

World Undiagnosed Day March 5 Official Page

In the spirit of the international Rare Disease Day on February 28th, I started a petition on March 5, 2010 to ask Oprah for help in officially creating World Undiagnosed Day. Plight of the Undiagnosed. Patients who are undiagnosed often share a long road of searching with patients of rare diseases or rare presentations of more common diseases, and therefore deserve a day of their own to receive greater awareness, understanding, respect and compassion. Why a Special Day for the Undiagnosed? Stroke Often ...

undiagnoseddisease.blogspot.com undiagnoseddisease.blogspot.com

A CRIPPLING DISEASE STILL TOO OFTEN UNDIAGNOSED

A CRIPPLING DISEASE STILL TOO OFTEN UNDIAGNOSED. Monday, September 10, 2012. Why are many doctors still so ignorant when it comes to Hemochromatosis? Clear Symptoms Of Iron Overload Overlooked. 8216;Iron Filings”. Many years ago – it seems like a century ago although it was only in 1980 that I established the Canadian Hemochromatosis A CRIPPLING DISEASE STILL TOO OFTEN UNDIAGNOSED. Laboriously typed out on my little Olivetti portable - and I reckoned that Iron Filings. Is able to produce a really first-c...

undiagnosedfilm.com undiagnosedfilm.com

U N D I A G N O S E D

Click on the [CC] button to view the trailer in other languages! There is a hidden epidemic - millions of people living with perplexing illnesses that elude definition and treatment. Undiagnosed. Health Care Professionals Appearing on Trailer. In order of appearance):. Jennifer Friedman, M.D.,. Clinical Professor Neurosciences and Pediatrics,. Gurpreet Dhaliwal, M.D.,. Associate Professor of Clinical Medicine,. University of California San Francisco. Jonathan Hoffman, Ph.D., ABPP,. In Pain We Trust.

undiagnosedillness.org undiagnosedillness.org

※オレの睡眠障害【入眠障害】の治療体験談と対処方法