urourhope.org urourhope.org

urourhope.org

U. R. Our Hope | Hope for the Undiagnosed and RareU. R. Our Hope | Hope for the Undiagnosed and Rare

Hope for the Undiagnosed and Rare. With the medical advancements and technology available to us today, it is hard to believe that anyone could live without a diagnosis, but this is a reality faced by many of our families and countless others across the world. There are currently over 7,000 rare disease and the average journey to diagnosis is SEVEN YEARS! What we do section would say:. Hold monthly meetings for face- to- face support. Provide meals during hospitalization. Medical Liaison and Co-founder.

http://www.urourhope.org/

WEBSITE DETAILS
SEO
PAGES
SIMILAR SITES

TRAFFIC RANK FOR UROURHOPE.ORG

TODAY'S RATING

>1,000,000

TRAFFIC RANK - AVERAGE PER MONTH

BEST MONTH

December

AVERAGE PER DAY Of THE WEEK

HIGHEST TRAFFIC ON

Saturday

TRAFFIC BY CITY

CUSTOMER REVIEWS

Average Rating: 2.6 out of 5 with 7 reviews
5 star
0
4 star
1
3 star
4
2 star
0
1 star
2

Hey there! Start your review of urourhope.org

AVERAGE USER RATING

Write a Review

WEBSITE PREVIEW

Desktop Preview Tablet Preview Mobile Preview

LOAD TIME

4.6 seconds

FAVICON PREVIEW

  • urourhope.org

    16x16

  • urourhope.org

    32x32

  • urourhope.org

    64x64

  • urourhope.org

    128x128

CONTACTS AT UROURHOPE.ORG

Kailee Besserman

6421 ●●●●● Lane

Au●●in , Texas, 78749

US

1.51●●●●6205
ka●●●●●●●●@gmail.com

View this contact

Kailee Besserman

6421 ●●●●● Lane

Au●●in , Texas, 78749

US

1.51●●●●6205
ka●●●●●●●●@gmail.com

View this contact

Bluehost.com

Bluehost Inc

1958 S●●●●●●0 East

Pr●●vo , Utah, 84606

US

1.80●●●●9400
1.80●●●●1992
wh●●●@bluehost.com

View this contact

Login

TO VIEW CONTACTS

Remove Contacts

FOR PRIVACY ISSUES

DOMAIN REGISTRATION INFORMATION

REGISTERED
n/a
UPDATED
2014 July 16
EXPIRATION
EXPIRED REGISTER THIS DOMAIN

BUY YOUR DOMAIN

Network Solutions®

NAME SERVERS

1
ns1.bluehost.com
2
ns2.bluehost.com

REGISTRAR

FastDomain Inc. (R1455-LROR)

FastDomain Inc. (R1455-LROR)

WHOIS : whois.publicinterestregistry.net

REFERRED :

CONTENT

SCORE

6.2

PAGE TITLE
U. R. Our Hope | Hope for the Undiagnosed and RareU. R. Our Hope | Hope for the Undiagnosed and Rare | urourhope.org Reviews
<META>
DESCRIPTION
Hope for the Undiagnosed and Rare. With the medical advancements and technology available to us today, it is hard to believe that anyone could live without a diagnosis, but this is a reality faced by many of our families and countless others across the world. There are currently over 7,000 rare disease and the average journey to diagnosis is SEVEN YEARS! What we do section would say:. Hold monthly meetings for face- to- face support. Provide meals during hospitalization. Medical Liaison and Co-founder.
<META>
KEYWORDS
1 donate
2 events
3 blog
4 who we are
5 what we do
6 advocacy
7 board of directors
8 mary elizabeth parker
9 heather long
10 kailee johnson
CONTENT
Page content here
KEYWORDS ON
PAGE
donate,events,blog,who we are,what we do,advocacy,board of directors,mary elizabeth parker,heather long,kailee johnson,vanessa vaughan,director of communications,deborah gordon,director of finances,advisory board,isabel huerta,betsy furler,debora mcdowell
SERVER
nginx
POWERED BY
PHP/5.2.17
CONTENT-TYPE
utf-8
GOOGLE PREVIEW

U. R. Our Hope | Hope for the Undiagnosed and RareU. R. Our Hope | Hope for the Undiagnosed and Rare | urourhope.org Reviews

https://urourhope.org

Hope for the Undiagnosed and Rare. With the medical advancements and technology available to us today, it is hard to believe that anyone could live without a diagnosis, but this is a reality faced by many of our families and countless others across the world. There are currently over 7,000 rare disease and the average journey to diagnosis is SEVEN YEARS! What we do section would say:. Hold monthly meetings for face- to- face support. Provide meals during hospitalization. Medical Liaison and Co-founder.

INTERNAL PAGES

urourhope.org urourhope.org
1

Donate – U.R. Our Hope

http://urourhope.org/donate

Evening of Hope Gala. Evening of Hope Gala. UR Our Hope is a registered 501 (c)(3) organization and all donations are tax deductible. Currently, we use the donations we receive to support our families along the journey by:. Providing meals during hospitalization or times of crisis. Providing gas/meal cards to families traveling out-of-town or out-of-state for medical appointments. Covering a portion of funeral costs/arrangements when families lose a child. Covering the cost of genetic testing. And click ...

2

Blog – U.R. Our Hope

http://urourhope.org/blog

Evening of Hope Gala. Evening of Hope Gala. September Meeting: Concerts for a Cause. By UR Our Hope. August 31, 2016. Concerts for a cause. Join us at Pinballz Kingdom in Buda for our September Family Meeting and Event Saturday, September 10, 2016 from 5pm to 8pm. This event is brought to us by Concerts for A Cause! Live Music by Vanessa Lively and Bret Coats Music * Arcade Games for all * Craft Beer for the grown-ups * FREE games/activities for the kids *. By UR Our Hope. April 4, 2016. By UR Our Hope.

3

Events – U.R. Our Hope

http://urourhope.org/events

Evening of Hope Gala. Evening of Hope Gala. Stay tuned for more upcoming family meetings! Ly Meeting – September 10, 2016 – Pinballz Kingdom Buda, TX – Concerts for a Cause 5pm – 8pm. Join us at Pinballz Kingdom in Buda, TX for our Concerts for a Cause Event! We will have great local music by Vanessa Lively and Bret Coats, free games for the kiddos, and more! All donations received will benefit U.R. Our Hope. SAVE THE DATE *.*.*. 4th Annual Evening of Hope Gala. Saturday, December 3, 2016.

UPGRADE TO PREMIUM TO VIEW 0 MORE

TOTAL PAGES IN THIS WEBSITE

3

LINKS TO THIS WEBSITE

growingplacestherapy.com growingplacestherapy.com

Growing Places Resources

http://www.growingplacestherapy.com/resources

Growing Places Therapy would like to suggest some therapy related resources that may help address any questions you might have about your child's development. Please be sure to check our Facebook page. For more information on local resources and meetups. ARC of the Capital Area. Provides academic coaching, basic needs and crisis assistance, case management, community living and assistance, and family support services for children and adults with special needs. Bluebonnet Trails Community Services. Provid...

rareundiagnosed.org rareundiagnosed.org

Advisory Board - RUN

https://rareundiagnosed.org/advisory-board

Recent Posts & St. RUN’s NBA Initiative: NBA Teams to Host Rare and Undiagnosed Families! March 3, 2017. Rachel Nielsen: Harmons Cooking School Experience from Make-A-Wish. March 3, 2017. The RUN Advisory Board Mission. Raise awareness for families with children afflicted with undiagnosed or rare diagnosed conditions. Urge insurance companies to reimburse genome sequencing in clinical settings. Network with researchers, insurance providers, and industry stakeholders to meet these families’ needs. Chairpe...

therapycircles.com therapycircles.com

Therapy Circles - Blog

http://therapycircles.com/blog

ACT Apps and Autism Featured Therapy Circles. Posted on July 14th, 2014. Therapy Circles was recently featured on http:/ actonline.org/2014/06/apps-and-autism/. We are very excited to share this article with all of you and hope that it enlightens you on our practices with the iPad Applications and Autism. ACT Apps and Autism Featured Therapy Circles. Thank you so much for providing amazing therapy for my son! Using the iPad he has become more engaged in his program.". Mother of child with Down's Syndrome.

therapycircles.com therapycircles.com

Therapy Circles - Photos

http://therapycircles.com/photos.htm

Thank you so much for providing amazing therapy for my son! Using the iPad he has become more engaged in his program.". Mother of a child with Treacher Collins Syndrome. Since making the switch my daughter gets excited about therapy now. She just loves her therapist! Mother of child with Down's Syndrome. Thank you for going the extra mile to follow up with me on my child's program. It's great to know that services such as yours is out there for families like us." - Grandmother of child with Autism.

growingplacestherapy.com growingplacestherapy.com

Growing Places Therapy | Providing pediatric therapy where kids live, learn and play!

http://www.growingplacestherapy.com/wordpress

Growing Places Thanks YOU. November 24, 2014. Physical Therapist and Growing Places Owner. Mary Elizabeth and one of her “babies”. I am thankful that I have the physical ability to get out of bed each day and work with these wonderful children and families. What they give back to me is a hundred fold of what I give to them. I am truly blessed! I am so thankful for a career that is so rewarding. Whenever I hear a parent excitedly say “My child said ‘mama’ for the first time! 8220;If you could only sense h...

navigatelifetexas.org navigatelifetexas.org

Children with Multiple Disabilities, Rare Conditions or are Undiagnosed | Navigate Life Texas

https://www.navigatelifetexas.org/en/diagnosis-healthcare/children-with-multiple-disabilities-rare-conditions-undiagnosed

Navigate Life Texas: Resources for kids with disabilities and special needs. Diagnosis and Healthcare FAQ. Children with Multiple Disabilities, Rare Conditions or are Undiagnosed. What to Do If You Suspect Something Is Different. My Child Has a Diagnosis. Where Do I Start? What is the Early Childhood Intervention (ECI) Program? Mental and Behavioral Health. How To Talk To Your Doctor. Health-Care Specialty and Therapy Options. Medical Equipment and Supplies. Insurance and Financial Help. Ways to Build a ...

showyourhope.com showyourhope.com

What I’m Passionate About | Show Your Hope!

https://showyourhope.com/46-2

Me, Myself, and I. What I’m Passionate About. Hope is a Journey…. What I’m Passionate About. There are many things that I am passionate about…beyond my music. I think that everyone that is able to should donate blood! Before Will and Sasha started their gammaglobulin (product derived from blood) infusions, I had no idea just how many uses for blood. I also am passionate about the Immune Deficiency Foundation. As they have been astounding advocates for individuals with Primary Immunodeficiency Disease.

therapycircles.com therapycircles.com

Therapy Circles - About

http://therapycircles.com/about.htm

Betsy is also the mother of a child with special needs. She only hires therapists that she would want to do therapy with her own child. Training for Avondale House Staff. TCEA (Texas Computer Education Association). Apple Education: Special Education and Apple Accessibility Features with Region 4. The Ripley House Training. SXSWedu Inclusive App Room. SXSWInteractive Inclusive App Room. SXSWInteractive Apps for Independence. TATN Texas Assistive Technology Network Statewide Conference. Feb 2014 - Texas C...

hoperisingmusic.weebly.com hoperisingmusic.weebly.com

Links - Hope Rising: The Journey

http://hoperisingmusic.weebly.com/links.html

Join the Mailing List. United Mitochondrial Disease Foundation (UMDF). The UMDF's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Immune Deficiency Foundation (IDF). The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research. The American Red Cross. The vision of Children's Hospital Boston is to advance pe...

austinautismsociety.org austinautismsociety.org

Panel of Professional Advisors – Autism Society of Central Texas

http://www.austinautismsociety.org/panel-of-professional-advisors

Improving the Lives of All Affected by Autism. Improving the Lives of All Affected by Autism. The Autism Society of Central Texas. Panel of Professional Advisors. Hunter Hinze Transition Grant. 2016 Autism Film Festival. 2016 Bike Ride and Fun Run. Panel of Professional Advisors. Panel of Professional Advisors. Amy K Bartelt, MS, CCC-SLP, BCBA. Austin’s Communication Station. Andrea Bieberich, Ph.D., LP, PLLC. Christine Gaharan, OTR/L. KidSensations Pediatric Occupational Therapy. 512233.4000 x 2.

UPGRADE TO PREMIUM TO VIEW 26 MORE

TOTAL LINKS TO THIS WEBSITE

36

SOCIAL ENGAGEMENT



OTHER SITES

uroundup.com uroundup.com

uRoundup!

urououey.typepad.com urououey.typepad.com

Abhishek

Downloads Nebular Sammelband 1 - Die Triton-Basis (Episode Nr. 1-5) (German Edition). Nebular Sammelband 1 - Die Triton-Basis (Episode Nr. 1-5) (German Edition) book download. Thomas Rabenstein, Stephan Pilz, Nino Coviello and Karsten Loperick. Download Nebular Sammelband 1 - Die Triton-Basis (Episode Nr. 1-5) (German Edition). Online Villette - Charlotte Bronte [Annotated] (Bentley Loft Classics). Feldbluse: The German Army Field Tunic 1933-45 e-book. Download The Mob Files. The Mob in Vegas. Opposing V...

uroup.com uroup.com

JORNADA INTERNACIONAL SOBRE HOT SPOTS EN UROLOGIA (Una oportunidad para la innovación)

JORNADA INTERNACIONAL SOBRE HOT SPOTS EN UROLOGIA (Una oportunidad para la innovación).

urourbaby.blogspot.com urourbaby.blogspot.com

urbaby

Sunday, January 24, 2016. The Art of an Invite. We are 3 days shy of 1yr and 7 months of many potential babies and too many "no's" to count them. We have at times held our breath for hours waiting for the phone call letting us know that we would become parents but received an email instead. We have rejoiced with many friends who have announced their pregnancy's and have been ecstatic at our friends who have been chosen to be parents! Here is where my title comes in: The Art of an Invite:. I am the younge...

urouren.it-u.net urouren.it-u.net

It U

Find the best information and most relevant links on all topics related to it-u.net.

urourhope.org urourhope.org

U. R. Our Hope | Hope for the Undiagnosed and RareU. R. Our Hope | Hope for the Undiagnosed and Rare

Hope for the Undiagnosed and Rare. With the medical advancements and technology available to us today, it is hard to believe that anyone could live without a diagnosis, but this is a reality faced by many of our families and countless others across the world. There are currently over 7,000 rare disease and the average journey to diagnosis is SEVEN YEARS! What we do section would say:. Hold monthly meetings for face- to- face support. Provide meals during hospitalization. Medical Liaison and Co-founder.

urouro.net urouro.net

UROURO

IOS App / Web App Development. ハウスセゾン様の運営するサービス 賃貸モール の iOS / Android アプリの開発を担当させて頂きました。 EnterCreation 様のサービス Take Me の開発 (iOSアプリ, API, 管理画面) を担当させて頂きました。

urouro.org urouro.org

UROURO.org

Ring them bells, ye heathen From the city that dreams, Ring them bells from the sanctuaries Cross the valleys and streams, For they're deep and they're wide And the world's on its side And time is running backwards And so is the bride. Powered by Movable Type.

urourofl.blogspot.com urourofl.blogspot.com

Today is a good day to die

ブログタイトル「Today is a good day to die」. ブログアドレス「 http:/ urourofl.blog.fc2.com/. 公式サイト(http:/ www.archeage.jp/). 6月10日(月)~6月21日(金)10:00. 6月26日(水)17:00~7月4日(木)10:00. 20,000人(応募多数の為拡大). Http:/ www.archeage.jp/notices/38. Read more ⇒. アーキエイジは、建築、伐採、採掘、生産……. 12300;最後にログインしたキャラ(オフライン時)」でしたので、. Read more ⇒. 12304;ArcheAge】貿易 初めの一歩. アーキエイジでは、1に貿易、2に貿易、3,4が無くて……という感じなわけですが. 以下、流れをSSアリで……. Read more ⇒. Read more ⇒. AION→TERA→Wizardry Online(休止)→Archeageヌイアン(予定). ArcheAge 公式(日本語). ArcheAge 公式(英語).

urouron.net urouron.net

うろん訪問記 | 地理音痴なのによく人に道を訊ねられます

に カークランドシグネチャー ボディーウォッシュ ナチュラルシトラス 綺麗になりたい.

urourosuruotoko.net urourosuruotoko.net

お嬢様酵素の効果が不安だけど大丈夫?

約2ヶ月 60日 で3 5キロぐらい痩せる可能性が高い.