victorias-victory.blogspot.com

Victoria's Victory

Saturday, March 21, 2015. Ever since VX-809 and VX-770 combo was announced (I learned) as a treatment for people with Double DeltaF508, I've been just waiting for it to be available for my daughter. It's not a cure, but it does treat the underlying cause of cystic fibrosis. She has also stated many times that she likes cystic fibrosis and she likes who she is. She says cystic fibrosis is part of her. She likes treatments. I think mostly she likes cartoons. Learning to change the filter on her vest machine.

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Victoria's Victory | victorias-victory.blogspot.com Reviews

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Saturday, March 21, 2015. Ever since VX-809 and VX-770 combo was announced (I learned) as a treatment for people with Double DeltaF508, I've been just waiting for it to be available for my daughter. It's not a cure, but it does treat the underlying cause of cystic fibrosis. She has also stated many times that she likes cystic fibrosis and she likes who she is. She says cystic fibrosis is part of her. She likes treatments. I think mostly she likes cartoons. Learning to change the filter on her vest machine.

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Victoria's Victory | victorias-victory.blogspot.com Reviews

https://victorias-victory.blogspot.com

Saturday, March 21, 2015. Ever since VX-809 and VX-770 combo was announced (I learned) as a treatment for people with Double DeltaF508, I've been just waiting for it to be available for my daughter. It's not a cure, but it does treat the underlying cause of cystic fibrosis. She has also stated many times that she likes cystic fibrosis and she likes who she is. She says cystic fibrosis is part of her. She likes treatments. I think mostly she likes cartoons. Learning to change the filter on her vest machine.

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victorias-victory.blogspot.com

1

Victoria's Victory: September 2013

http://victorias-victory.blogspot.com/2013_09_01_archive.html

Saturday, September 28, 2013. She has been upset a few times that she doesn't have school on the weekends. Mostly I've been very pleased with the staff at her school. She got sick two weeks and two days after starting kindergarten. Next week she will finish the 44th consecutive day of antibiotics. And if all goes well, she can stay off of them for a while. She likes to do push-ups on the sofa. She just had to wear a tiara to school one day. Posted by Victoria's Mom. Subscribe to: Posts (Atom). THE DOOM A...

2

Victoria's Victory: May 2014

http://victorias-victory.blogspot.com/2014_05_01_archive.html

Saturday, May 31, 2014. Club Med - Day 13. There's a light at the end of the tunnel. I thought I'd update more frequently, but doing it from my tablet is quite cumbersome. Using the extra tubing to blow steam out the vent hole of the mask. She liked the Princesses but only from afar. Victoria loves blowing bubbles at the carnival. What does he know that I don't know? Is he joking with me? Breaking the rules out in the garden to blow bubbles! Working her new Plasma Car! Made a crown with a beauty queen.

3

Victoria's Victory: May 2012

http://victorias-victory.blogspot.com/2012_05_01_archive.html

Friday, May 18, 2012. It is very well written. And I agree almost totally. Napping in the recliner. Picnic blanket at the park. We went to the CF clinic today. But before we got there, we had to make our traditional stop at McDonald's for a chicken nugget happy meal. I'm happy to say she ate every last bite, plus a small fry. She might have eaten a medium if I'd gave her one. Of course the staff at the clinic comments that we have McDonald's again. Either could be true, but I agree with the doctor. No An...

4

Victoria's Victory: October 2013

http://victorias-victory.blogspot.com/2013_10_01_archive.html

Tuesday, October 15, 2013. 2013 Fall Clinic and fun times. Pumpkin Festival two days in a row. We had to make sure she was there for the costume 'contest'. No one wearing a costume got a trophy. It was worded poorly. But Victoria still had lots of fun. Lots of people commented on Dorthy and even Toto as we walked by. But with the dentist moving they had a new paint job too. She really should have worn her 'Dorthy' outfit. She would have fit right in. On the way to try and surprise Victoria's Daddy, she h...

5

Victoria's Victory: March 2015

http://victorias-victory.blogspot.com/2015_03_01_archive.html

Saturday, March 21, 2015. Ever since VX-809 and VX-770 combo was announced (I learned) as a treatment for people with Double DeltaF508, I've been just waiting for it to be available for my daughter. It's not a cure, but it does treat the underlying cause of cystic fibrosis. She has also stated many times that she likes cystic fibrosis and she likes who she is. She says cystic fibrosis is part of her. She likes treatments. I think mostly she likes cartoons. Learning to change the filter on her vest machine.

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victorias-victory.blogspot.com

Victoria's Victory

Saturday, March 21, 2015. Ever since VX-809 and VX-770 combo was announced (I learned) as a treatment for people with Double DeltaF508, I've been just waiting for it to be available for my daughter. It's not a cure, but it does treat the underlying cause of cystic fibrosis. She has also stated many times that she likes cystic fibrosis and she likes who she is. She says cystic fibrosis is part of her. She likes treatments. I think mostly she likes cartoons. Learning to change the filter on her vest machine.

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