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V Wooten World

Tuesday, January 7, 2014. Recently, as I was checking in on our fellow families with kids suffering with ROHHAD (on one of our Facebook group pages) I saw my name tagged in a post. It was a news post about a little girl being denied a gastric bypass surgery due to her age. Here is a link to that original story I saw: Obese, but starving: Girl, 12, denied weight-loss surgery. Alexis Shapiro before/after hypothalamus damage. Josh (age 8) in Feb 2005, days before going into respiratory failure. Since none o...

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V Wooten World | vwootenworld.blogspot.com Reviews
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Tuesday, January 7, 2014. Recently, as I was checking in on our fellow families with kids suffering with ROHHAD (on one of our Facebook group pages) I saw my name tagged in a post. It was a news post about a little girl being denied a gastric bypass surgery due to her age. Here is a link to that original story I saw: Obese, but starving: Girl, 12, denied weight-loss surgery. Alexis Shapiro before/after hypothalamus damage. Josh (age 8) in Feb 2005, days before going into respiratory failure. Since none o...
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V Wooten World | vwootenworld.blogspot.com Reviews

https://vwootenworld.blogspot.com

Tuesday, January 7, 2014. Recently, as I was checking in on our fellow families with kids suffering with ROHHAD (on one of our Facebook group pages) I saw my name tagged in a post. It was a news post about a little girl being denied a gastric bypass surgery due to her age. Here is a link to that original story I saw: Obese, but starving: Girl, 12, denied weight-loss surgery. Alexis Shapiro before/after hypothalamus damage. Josh (age 8) in Feb 2005, days before going into respiratory failure. Since none o...

INTERNAL PAGES

vwootenworld.blogspot.com vwootenworld.blogspot.com
1

V Wooten World: October 2010

http://vwootenworld.blogspot.com/2010_10_01_archive.html

Tuesday, October 5, 2010. The Medical Side of Josh. Just heard that one of the websites for chronically ill kids that featured Josh back in 2006, MACS (Make A Child Smile), is expecting a big media event soon. They say we may expect a little more traffic looking at our kids' sites with the links to our page there. So, I thought I'd write up a little about what my son, Josh has and how it affects him. Josh likes to think of himself as a normal boy. Everyone thought Josh was perfectly healthy. A part of th...

2

V Wooten World: April 2013

http://vwootenworld.blogspot.com/2013_04_01_archive.html

Wednesday, April 10, 2013. Busy, Busy, Busy. My, how time flies when you get busy. And this semester of Respiratory school has been BUSY! On Mondays and Fridays, we go to clinical rotations. We go to several different local hospitals where we work and learn in Pediatric Intensive Care Units, Neonatal Intensive Care Units, Adult Intensive Care Units, Cardiac Catheter Labs, Pulmonary Function Testing Clinics, Hyperbaric Units and much more. This picture is one I found online but shows some of what we do.

3

V Wooten World: April 2012

http://vwootenworld.blogspot.com/2012_04_01_archive.html

Saturday, April 28, 2012. Jan thru April 2012 Big Move, Spring Break Trip and more. My mom decided she liked it here with us so much that she decided to move here permanently. My sister's lease on her apartment was about to be up, and she thought it was a good time to think about buying a house instead. So, she and Mama decided to get a house together. My sister, Amanda and mother, Mary Jan 2012. My mom and sister's new house. The new house - which is less than 5 miles from ours - is gorgeous! Me at scho...

4

V Wooten World: June 2013

http://vwootenworld.blogspot.com/2013_06_01_archive.html

Friday, June 7, 2013. ROHHAD and My Son, Josh and my clinical update. My son, Josh (you see him standing beside me in the picture below) is one of a very few people in the entire world diagnosed with a syndrome called ROHHAD. My son Josh and me on Mother's Day 2013. What causes ROHHAD is still unknown. There is no specific test to take to prove a person has it. It is diagnosed by ruling out all other known causes of the symptoms. Here is a list of some ROHHAD symptoms:. 12 News KBMT and K-JAC. News, ...

5

V Wooten World: Close to Home

http://vwootenworld.blogspot.com/2014/01/close-to-home.html

Tuesday, January 7, 2014. Recently, as I was checking in on our fellow families with kids suffering with ROHHAD (on one of our Facebook group pages) I saw my name tagged in a post. It was a news post about a little girl being denied a gastric bypass surgery due to her age. Here is a link to that original story I saw: Obese, but starving: Girl, 12, denied weight-loss surgery. Alexis Shapiro before/after hypothalamus damage. Josh (age 8) in Feb 2005, days before going into respiratory failure. Since none o...

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haveyroo.blogspot.com haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: Photos never posted

http://haveyroo.blogspot.com/2009/10/photos-never-posted.html

Saturday, October 10, 2009. I found some photos that we had taken but never posted. Flushing the Hickman Line before the removal. Tubey - or the old Hickman Line - after being removed from Haven's chest. Building stuff with her dad. Haven loves to work with the tools and help dad build things. Haven's Prayer Blanket from Barbara in California. Haven's zodiac quilt from Jackie Bennett and Kim Lewis with Love Quilts to Make a Child Smile. Haven in clinic with Bongo her monkey. January 13, 2011 at 3:58 AM.

haveyroo.blogspot.com haveyroo.blogspot.com

Haven: Neuroblastoma Cancer and ROHHAD Syndrome: Letters From Haven

http://haveyroo.blogspot.com/p/letters-from-haven.html

Haven has decided to create her own blog.once it is ready to go we will update all of you. Subscribe to: Posts (Atom). Johns Hopkins about Haven. Our Fight For ROHHAD. Promotion, Josh Graduates, New Baby on the Way, IPV Letter and Much More. You may have noticed I've been absent on my blog page for the last what . almost 2 years? Sorry I have been incredibly busy and neglected my duty :). Cooling off at the mall. My Son's Rare Medical Condition. What are you doing? A cute film about Autism. We will conti...

friendsofhaven.blogspot.com friendsofhaven.blogspot.com

Friends Of Haven: December 2008

http://friendsofhaven.blogspot.com/2008_12_01_archive.html

This site is updated with Haven's friends that we meet through our illnesses. These are highlights of some of the bravest children I know! Sunday, December 21, 2008. Nikki - ROHHAD - Australia. If you remember my post about ROHHAD children. I hope to soon get Nikki's complete ROHHAD story and will share it with all of you. Above is a picture of Nikki and her mom, Karen. Thank you so much for sending your photo to us! Please keep Nikki in your thoughts and prayers and may she come home to her family soon!

stonedibbs.blogspot.com stonedibbs.blogspot.com

Just A Mom: November 2009

http://stonedibbs.blogspot.com/2009_11_01_archive.html

Wednesday, November 25, 2009. Hope everyone has a great Thanksgiving. Everyone on Facebook has been doing their daily things they are thankful for.so I made a list of some.but not all. 1 my sudden decision to move to CA at 21 with no family, meet some boy and get married - without this I wouldn't have my Haven. 2 Johns Hopkins - without their knowledge and skills I probably would've lost my baby. 8 Family for giving everything they could to Haven - paying for over a year of Lauren to be with Haven twice ...

thetagles.blogspot.com thetagles.blogspot.com

Life As It Happens: February 2009

http://thetagles.blogspot.com/2009_02_01_archive.html

Wednesday, February 25, 2009. The first time, I wanted a boy, Romeo wanted a girl. We got Nia! The second time, I wanted a girl, Romeo wanted a boy. We got Ian! Thank you Lord Again! This time, I wanted a boy, Romeo didn't really have a strong preference. I finally am going to get what I want. Of course I would have been very excited about a girl but I am SOOOO very excited about the BOY! Posted by Amy Tagle. Links to this post. Saturday, February 14, 2009. Nahh I'd rather have Pickles! Links to this post.

thetagles.blogspot.com thetagles.blogspot.com

Life As It Happens: June 2009

http://thetagles.blogspot.com/2009_06_01_archive.html

Monday, June 29, 2009. After lots of tugging and pulling, it finally came out. Posted by Amy Tagle. Links to this post. Thursday, June 25, 2009. Today I woke up and decided that we would go somewhere fun! Posted by Amy Tagle. Links to this post. Wednesday, June 24, 2009. Great Time and Great People. I will miss so much about this place. Especially the people God has placed in our path. Posted by Amy Tagle. Links to this post. Labels: home sweet home. Sunday, June 21, 2009. God gave me a great dad! We cel...

thetagles.blogspot.com thetagles.blogspot.com

Life As It Happens: 1st Tooth

http://thetagles.blogspot.com/2010/01/1st-tooth.html

Thursday, January 14, 2010. Kodah's first tooth broke through yesterday - 1/13/10 (6 months old). Posted by Amy Tagle. Subscribe to: Post Comments (Atom). I am Forgiven, I am a Child of the KING, I am Chosen, I am Fearfully and Wonderfully Made, I am Loved, I am Fashioned by Gods Hand, I am the Temple of God, I am Blessed, I am Lavished in Grace, I am also a wife, mom, daughter, sister, granddaughter, and friend. View my complete profile. Friends and Family Updates. David and Amy Handyside.

thetagles.blogspot.com thetagles.blogspot.com

Life As It Happens: September 2009

http://thetagles.blogspot.com/2009_09_01_archive.html

Tuesday, September 29, 2009. Yes, I'm still alive! Have lots to update you guys on but can't seem to get motivated to blog. I'm missing all my family from Oklahoma! Posted by Amy Tagle. Links to this post. Subscribe to: Posts (Atom). I am Forgiven, I am a Child of the KING, I am Chosen, I am Fearfully and Wonderfully Made, I am Loved, I am Fashioned by Gods Hand, I am the Temple of God, I am Blessed, I am Lavished in Grace, I am also a wife, mom, daughter, sister, granddaughter, and friend.

thetagles.blogspot.com thetagles.blogspot.com

Life As It Happens: January 2010

http://thetagles.blogspot.com/2010_01_01_archive.html

Thursday, January 14, 2010. Kodah's first tooth broke through yesterday - 1/13/10 (6 months old). Posted by Amy Tagle. Links to this post. Sunday, January 10, 2010. Not a whole lot to say about these pictures - just boys being silly. I will say this though, Ian is a hoot, he wanted me to take lots of pictures of his different poses. I am reminded of the previous post where I said that Ian was ALL boy! Spiderman - Climbing the Walls. Posted by Amy Tagle. Links to this post. Posted by Amy Tagle. I am Forgi...

thetagles.blogspot.com thetagles.blogspot.com

Life As It Happens: July 2009

http://thetagles.blogspot.com/2009_07_01_archive.html

Friday, July 24, 2009. Go Down, Death" by Wintley Phipps. Posted by Amy Tagle. Links to this post. Labels: God is Great. Thursday, July 23, 2009. Since about 3 months old, Ian has had a "squishy pillow". He has been through 2 already and today we say good bye to #3. I had painted Nia's toenails and she was drying them with the blow dryer. Ian was watching her and someone decided it would be fun to put the dryer to the pillow. Yep, it burnt a whole in it and it is now in the trash can. Posted by Amy Tagle.

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V Wooten World

Tuesday, January 7, 2014. Recently, as I was checking in on our fellow families with kids suffering with ROHHAD (on one of our Facebook group pages) I saw my name tagged in a post. It was a news post about a little girl being denied a gastric bypass surgery due to her age. Here is a link to that original story I saw: Obese, but starving: Girl, 12, denied weight-loss surgery. Alexis Shapiro before/after hypothalamus damage. Josh (age 8) in Feb 2005, days before going into respiratory failure. Since none o...

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Sunday, December 19, 2010. A few random snapshots of what the holidays have been here in Panama City, Panama. And, NO, that is not our house.just wanted to show how Christmas is done down here in the tropics! Para Su Gloria, Los Jones. 161;Feliz Navidad y Año Nuevo! The morning news is telling you to collect rain water to aid in using the toilet because the water is out. They also give the warning: "NO SE CONSUMAN ANIMALES AHOGADOS." Translation? Of all ages, and. Wherever they feel like! This is an acco...