ourlifewithalex.blogspot.com
Our Life With Alex: Happy Easter!
http://ourlifewithalex.blogspot.com/2009/04/happy-easter.html
Our Life With Alex. I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,. I see a miracle who doesn't need words. Monday, April 13, 2009. I wanted to do a quick post about Easter and upload a few pictures, but as most know, I'm very camera happy and I took over 150 pictures this weekend! So I decided to just put this quick montage together because I couldn't decide which pictures to post! April 13, 2009 at 8:18 PM.
ourlifewithalex.blogspot.com
Our Life With Alex: 2010 Angelman Syndrome Walk-A-Thon
http://ourlifewithalex.blogspot.com/2010/05/2010-angelman-sydrome-walk-thon.html
Our Life With Alex. I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,. I see a miracle who doesn't need words. Sunday, May 16, 2010. 2010 Angelman Syndrome Walk-A-Thon. Yesterday was the annual Angelman. Walk in Columbia, MD. A very, very big thank you to everyone who made up Team Allie Bean and made the long drive to be with and support us, we love and appreciate you. A huge thank you. Syndrome and a cure. Donna...
ourlifewithalex.blogspot.com
Our Life With Alex: Lucky vs. Blessed?
http://ourlifewithalex.blogspot.com/2015/06/lucky-vs-blessed.html
Our Life With Alex. I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,. I see a miracle who doesn't need words. Monday, June 22, 2015. Lucky vs. Blessed? If I were to walk down the same street every day and find a $50 bill every time, now that's LUCK! I would not say my circumstances are lucky - by any stretch of the imagination. Instead we start our day in her Universal Cage doing weighted exercises. Throw in the...
ourlifewithalex.blogspot.com
Our Life With Alex: Extra Bones, Seizures and Then Some!
http://ourlifewithalex.blogspot.com/2015/08/extra-bones-seizures-and-then-some.html
Our Life With Alex. I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,. I see a miracle who doesn't need words. Wednesday, August 5, 2015. Extra Bones, Seizures and Then Some! As I sometimes refer my life to a whack a mole game, I'm sad to say we are, unfortunately, in full whack a mole effect! Every single time I pop my head up for air.BOP! That's one way to get him to meet his summer reading requirements! Living...
ourlifewithalex.blogspot.com
Our Life With Alex: Inclusive Racing
http://ourlifewithalex.blogspot.com/2013/11/inclusive-racing.html
Our Life With Alex. I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,. I see a miracle who doesn't need words. Saturday, November 16, 2013. I really don't have words to describe today. Our day started really early - like 4:30AM early! But I would do it a million times over. Today Alex participated in the Richmond Marathons' 8K thanks to an amazing group called Inclusive Racing. Let me back up! How amazing is that?
ourlifewithalex.blogspot.com
Our Life With Alex: Genetic Testing
http://ourlifewithalex.blogspot.com/2015/07/genetic-testing.html
Our Life With Alex. I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,. I see a miracle who doesn't need words. Wednesday, July 22, 2015. I can't believe summer is half over and it's been almost a month since I have blogged. We have A LOT. Going on that I want to blog about! For now I'll start with our recent genetics appointment. Knowledge is power right? Subscribe to: Post Comments (Atom). 2009 Angelman Syndrome...
ourlifewithalex.blogspot.com
Our Life With Alex: April 2015
http://ourlifewithalex.blogspot.com/2015_04_01_archive.html
Our Life With Alex. I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,. I see a miracle who doesn't need words. Friday, April 24, 2015. Over Spring Break we got to enjoy some family time. Aaron and Zach went camping for a night, we visited some sites around town, went to our favorite family dinner place, went to the movies and probably the most fun for everyone was a quick trip to VA Beach. Some fun family pics.
ourlifewithalex.blogspot.com
Our Life With Alex: Happy Graduation Zach!
http://ourlifewithalex.blogspot.com/2015/06/happy-graduation-zach.html
Our Life With Alex. I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,. I see a miracle who doesn't need words. Thursday, June 18, 2015. It's official, Zach graduated last Friday so I have two Middle Schoolers now. After breakfast he got himself all suited up and ready to cross the stage! I cried through graduation - I know, I know, shocker for those of you that know me! MeMe and Papa too! After the ceremony we we...
ourlifewithalex.blogspot.com
Our Life With Alex: Little Feet Meet
http://ourlifewithalex.blogspot.com/2009/04/little-feet-meet.html
Our Life With Alex. I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,. I see a miracle who doesn't need words. Saturday, April 25, 2009. I cannot begin to tell you what an awesome day we had. Alex participated in the Special Olympics Little Feet Meet at Freeman High School this morning, and all I can say is, Wow! Labels: Little Feet Meet. I am so glad that it was such a great day for you all. I have no words to t...
marathondance.org
Recipients – Deep Run Marathon Dance
http://www.marathondance.org/recipients
Deep Run Marathon Dance. Follow Us on Twitter. Join Us on Facebook! Aidan Jack Seeger Foundation. The Aidan Jack Seeger Foundation. Addresses the need for information and newborn screening for Adrenoleukodystrophy. Aidan Jack Seeger Foundation gathers and provides current, functional information and provides financial support to families, funds research efforts that will identify new treatments, therapies and ultimately, a cure, as well as raise awareness of ALD. CureSearch for Children’s Cancer. Mission...
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