miracleformegan.blogspot.com
A Miracle For Megan: June 2015
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A Miracle For Megan. Tuesday, June 30, 2015. Copy of an email sent to provider looking for updates on Megan. Sorry for the delayed respond time. It has been a rollercoaster around here between Maxim, nurses, all-nighters and Megan's GI and seizures. Maxim is patching our nights but at this point each week I have been up 1 - 2 nights per week all night long which knocks me out for the following day to be good for anything. Work and dr. appts have been being juggled around this. There are no plans for anyo...
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A Miracle For Megan: Megan's Movie
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A Miracle For Megan. Friday, February 20, 2015. Subscribe to: Post Comments (Atom). Find the blogs of your friends. Donating to the trust fund. You can donate to the Miracle for Megan Irrevocable Trust Fund online via PayPal. Hide And Seek - Lysosomal Storage Diseases. United Mitochondrial Disease Foundation. A Miracle for Megan. Letter for help.waiting to hear back with high h. Ethereal template. Powered by Blogger.
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A Miracle For Megan: December 2013
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A Miracle For Megan. Wednesday, December 11, 2013. Not damaged - does not make any sense - they were expecting to see some bad stuff in there but they are clear and look just like the way they should - they attribute it to all of the work done in keeping them this way - I think she is stronger there than anyone thinks - but yet more vulnerable of course which is tricky! To say the least they are definitely puzzled at how she presents. Tell me something I don't know? Subscribe to: Posts (Atom).
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A Miracle For Megan: June 2014
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A Miracle For Megan. Sunday, June 22, 2014. Kenzie dancing with her dad-reminds me of Meg and Pat. Subscribe to: Posts (Atom). Find the blogs of your friends. Donating to the trust fund. You can donate to the Miracle for Megan Irrevocable Trust Fund online via PayPal. Hide And Seek - Lysosomal Storage Diseases. United Mitochondrial Disease Foundation. A Miracle for Megan. Kenzie dancing with her dad-reminds me of Meg and . Ethereal template. Powered by Blogger.
miracleformegan.blogspot.com
A Miracle For Megan: September 2012
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A Miracle For Megan. Monday, September 17, 2012. Hope they publish correction. So happy to see the article this morning in the paper and the front page! I hope that it gets some well deserved attention. Thank you for taking the time to speak with me and investing your efforts and time into this story. There is one item that I wanted to comment on directly to you as it is not correct and wanted to clarify:. Please feel free to contact me with any other questions or comments. We call them "medically fragil...
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A Miracle For Megan: August 2012
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A Miracle For Megan. Saturday, August 18, 2012. Her reflux is still a nightmare - but one thing at a time. Life is calling. Have to write more later. Subscribe to: Posts (Atom). Find the blogs of your friends. Donating to the trust fund. You can donate to the Miracle for Megan Irrevocable Trust Fund online via PayPal. Hide And Seek - Lysosomal Storage Diseases. United Mitochondrial Disease Foundation. A Miracle for Megan. It has been a whirlwind of a summer. I cant beli.
miracleformegan.blogspot.com
A Miracle For Megan: February 2015
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A Miracle For Megan. Friday, February 20, 2015. Letter for help.waiting to hear back with high hopes. My dauughter, Megan, is currently 8 years old. To date her primary diagnosis is encephelopathy with white matter demylenation and disorder of mitochondrial function that is suspected to be seondary to a primary metabolic defect (lysosomal? Once again, thank you for receiving and reviewing my email to you. Subscribe to: Posts (Atom). Find the blogs of your friends. Donating to the trust fund.
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A Miracle For Megan: Temple Terrace Girl Scouts triathlon helps girl | Breaking Tampa Bay, Florida and national news and weather from Tampa Bay Online and The Tampa Tribune | TBO.com
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A Miracle For Megan. Friday, April 26, 2013. Temple Terrace Girl Scouts triathlon helps girl Breaking Tampa Bay, Florida and national news and weather from Tampa Bay Online and The Tampa Tribune TBO.com. Temple Terrace Girl Scouts triathlon helps girl Breaking Tampa Bay, Florida and national news and weather from Tampa Bay Online and The Tampa Tribune TBO.com. Subscribe to: Post Comments (Atom). Find the blogs of your friends. Donating to the trust fund. Hide And Seek - Lysosomal Storage Diseases.
miracleformegan.blogspot.com
A Miracle For Megan: March 2012
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A Miracle For Megan. Thursday, March 22, 2012. I know this family - helped mom with some of her information. Disabled kids should get home care, lawsuits say. Monday, March 19, 2012. Home - Tri It Get Fit Triathlon. Home - Tri It Get Fit Triathlon. Registration for Tri Fit on Apr 21, 2012. ImATHLETE Temple Terrace Triathlon Temple Terrace, Florida, USA Apr 21, 2012. Thursday, March 15, 2012. I can look at Megan and see that she has gained a little weight! Subscribe to: Posts (Atom). A Miracle for Megan.
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A Miracle For Megan: Letter for help...waiting to hear back with high hopes
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A Miracle For Megan. Friday, February 20, 2015. Letter for help.waiting to hear back with high hopes. My dauughter, Megan, is currently 8 years old. To date her primary diagnosis is encephelopathy with white matter demylenation and disorder of mitochondrial function that is suspected to be seondary to a primary metabolic defect (lysosomal? Once again, thank you for receiving and reviewing my email to you. January 21, 2016 at 11:48 AM. Subscribe to: Post Comments (Atom). Find the blogs of your friends.