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Wings For Destiny

Thursday, July 4, 2013. Wings For Destiny REBIRTH! You know when you really wanna do something but it seems like such an huge undertaking, especially amidst all the tasks you HAVE TO complete just to keep your world turning, and so this undertaking becomes a tumor-like guilt task, always applying almost unbearable pressure on your brain and then you just begin to resent the thing you wish you could do, and you really do NEED to do it? Well, that is my relationship with Destiny's blog! I am in love with h...

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Wings For Destiny | wingsfordestiny.blogspot.com Reviews
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Thursday, July 4, 2013. Wings For Destiny REBIRTH! You know when you really wanna do something but it seems like such an huge undertaking, especially amidst all the tasks you HAVE TO complete just to keep your world turning, and so this undertaking becomes a tumor-like guilt task, always applying almost unbearable pressure on your brain and then you just begin to resent the thing you wish you could do, and you really do NEED to do it? Well, that is my relationship with Destiny's blog! I am in love with h...
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Wings For Destiny | wingsfordestiny.blogspot.com Reviews

https://wingsfordestiny.blogspot.com

Thursday, July 4, 2013. Wings For Destiny REBIRTH! You know when you really wanna do something but it seems like such an huge undertaking, especially amidst all the tasks you HAVE TO complete just to keep your world turning, and so this undertaking becomes a tumor-like guilt task, always applying almost unbearable pressure on your brain and then you just begin to resent the thing you wish you could do, and you really do NEED to do it? Well, that is my relationship with Destiny's blog! I am in love with h...

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Wings For Destiny: Erie High School Girl's Basketball Team Plays With Heart'

http://wingsfordestiny.blogspot.com/2012/01/erie-high-school-girl-basketball-team.html

Wednesday, January 25, 2012. Erie High School Girls Basketball Team Plays With Heart. DESTINY BURTON.YOURE OUR INSPIRATION TO PLAY WITH HEART. Tammy, our whole team wrote this on our wrists tonight, in honor of you and your family :]". Was the message from Nicole, my friend, assistant and sitter. I woke to Benny's asthma attack at 1:15 this morning to find this. Words cannot express our gratitude for Nicole, and for the members of her basketball team at Erie High for thinking of us. Posted by Destiny Ann.

2

Wings For Destiny: January 2012

http://wingsfordestiny.blogspot.com/2012_01_01_archive.html

Wednesday, January 25, 2012. Erie High School Girls Basketball Team Plays With Heart. DESTINY BURTON.YOURE OUR INSPIRATION TO PLAY WITH HEART. Tammy, our whole team wrote this on our wrists tonight, in honor of you and your family :]". Was the message from Nicole, my friend, assistant and sitter. I woke to Benny's asthma attack at 1:15 this morning to find this. Words cannot express our gratitude for Nicole, and for the members of her basketball team at Erie High for thinking of us. Posted by Destiny Ann.

3

Wings For Destiny: Dravet Syndrome and Destiny

http://wingsfordestiny.blogspot.com/p/dravet-syndrome-and-destiny.html

Dravet Syndrome and Destiny. This site is dedicated to our Destiny - the love of our lives and the joy in our hearts. Destiny is an innately happy, loving, infectiously jolly little girl who happens to be struggling with a rare seizure disorder, called Dravet Syndrome. Destiny was born with a SCN1A mutation. The SCN1A gene contains instructions for the creation of proteins that regulate the function of sodium ion channels within the brain. This mutation of the gene causes Destiny's seizures. Destiny's Ne...

4

Wings For Destiny: September 2011

http://wingsfordestiny.blogspot.com/2011_09_01_archive.html

Friday, September 30, 2011. A Poem For Dravet Angels All Over. A fellow Dravet Mom just posted this beautiful, powerful poem today, and it took me by surprise how personally relevant it is to me. A sadness is woven throughout, but so is the joy of life. There, I say, is my Angel! It's taken me a long time to get to a place where, during a seizure I take on Emergency Management role, and I'm really able to smile as she opens her eyes and be happy everything is OK! Darkness Imparts – We Drift Away. My frie...

5

Wings For Destiny: Wings For Destiny REBIRTH!! (hopefully!!)

http://wingsfordestiny.blogspot.com/2013/07/wings-for-destiny-rebirth-hopefully.html

Thursday, July 4, 2013. Wings For Destiny REBIRTH! You know when you really wanna do something but it seems like such an huge undertaking, especially amidst all the tasks you HAVE TO complete just to keep your world turning, and so this undertaking becomes a tumor-like guilt task, always applying almost unbearable pressure on your brain and then you just begin to resent the thing you wish you could do, and you really do NEED to do it? Well, that is my relationship with Destiny's blog! I am in love with h...

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The Life and Times of a Mom On WheelZ: June 2011

http://bouldermomonwheelz.blogspot.com/2011_06_01_archive.html

The Life and Times of a Mom On WheelZ. Tuesday, June 28, 2011. Ready 4 Anything Around Here! It is impossible to fully appreciate the divinity of carbohydrates until one has spent time without them. Tammy Burton, June 28, 2011. That I have totally given up carbs in solidarity with my daughter, a practically Born Again Child since Saturday. My Dr. Pepper is my main carb/sugar intake now. All mothers need fuel and fixes! To keep Desty's ketones at a count of 160 morning and night. Directly after this feast...

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The Life and Times of a Mom On WheelZ: September 2011

http://bouldermomonwheelz.blogspot.com/2011_09_01_archive.html

The Life and Times of a Mom On WheelZ. Sunday, September 25, 2011. Stickmen and Homemade Space Shuttle. Seriously - did you enjoy that as much as I did? Make sure you clicked the link ;-) for your adventure! Cheap and simple entertainment! Here's my big headed stickman. Our study of the rainforest ended, and now we are in space. My logic is that in order to study the solar system, 'ya gotta have a way to get there.thus, Destiny needed a Space Shuttle! Next step: making paper mâché of each planet! After t...

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The Life and Times of a Mom On WheelZ: August 2009

http://bouldermomonwheelz.blogspot.com/2009_08_01_archive.html

The Life and Times of a Mom On WheelZ. Sunday, August 30, 2009. Yes, I am alive and doing very well, if I do say so myself! This may come as a shock to those of you not on Facebook. I believe my last mass e-mail was written from ICU after I tore my MCL and stopped breathing, etc. LOL, life is great, ain’t it? 8211; You never know what loop-dee-doo is going to sneak up on you. When I think about my 2009, I visualize my favorite Six Flags Magic Mountain. Ride of all time:. This post is intended to catch my...

bouldermomonwheelz.blogspot.com bouldermomonwheelz.blogspot.com

The Life and Times of a Mom On WheelZ: October 2011

http://bouldermomonwheelz.blogspot.com/2011_10_01_archive.html

The Life and Times of a Mom On WheelZ. Sunday, October 9, 2011. I Belong In The Zoo! Is it possible to enjoy a miserable time? I think it is. Yesterday I took Benny and his friend to the zoo. They played in a warm class, doing tie-dye, touring the tropics exhibit and learning about VENOM! This is what I did. My friend, the boy's mom, gave me a way out of taking them because it's been such a sleepless week for us, but the crazy person in me said, "Oh, thank you! And no matter what I meant! Awesome Inc&#46...

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The Life and Times of a Mom On WheelZ: February 2012

http://bouldermomonwheelz.blogspot.com/2012_02_01_archive.html

The Life and Times of a Mom On WheelZ. Wednesday, February 15, 2012. Take Chances and Get Messy! Take chances and GET MESSY! That's what my daughter sang every time I came to check on her and her friend's "Magic Potion", on my counter, in my sink, on my floor.with EVERY spice and ingredient they could find! No matter what anyone says, Destiny is absolutely BRILLIANT! Well, it's been quite an interesting several weeks! Let me first show off some of my favorite things the kids have done in school lately.

bouldermomonwheelz.blogspot.com bouldermomonwheelz.blogspot.com

The Life and Times of a Mom On WheelZ: August 2011

http://bouldermomonwheelz.blogspot.com/2011_08_01_archive.html

The Life and Times of a Mom On WheelZ. Saturday, August 20, 2011. This is my blog, gosh dangit! And that's what I'm gonna do! After all, no one called Child Protection when I let my 'medically fragile' daughter go down a Zip Line! The thought did cross my mind! My point is: This is my real life! Well, hmmm, where do I begin tonight? Once upon a time, I was told, "I'm positive, and so are you! I can think of several pros and cons of teaching him myself off-hand. But I want to really think it through, ...

bouldermomonwheelz.blogspot.com bouldermomonwheelz.blogspot.com

The Life and Times of a Mom On WheelZ: Snapshots of "Benny and Destiny's World Homeschool"

http://bouldermomonwheelz.blogspot.com/2012/01/snapshots-of-and-destiny-world.html

The Life and Times of a Mom On WheelZ. Wednesday, January 25, 2012. Snapshots of Benny and Destinys World Homeschool. It's no Secret - I love teaching my children and taking a 'non-traditional' approach to education. While schools are cramming academics into kid's brains (which they may or may not retain, much due to the ridiculous standardized requirements that teacher's are forced to meet nowadays), I'm nurturing and educating my kids in using a "child-centered approach". Here we all are studying away.

bouldermomonwheelz.blogspot.com bouldermomonwheelz.blogspot.com

The Life and Times of a Mom On WheelZ: July 2009

http://bouldermomonwheelz.blogspot.com/2009_07_01_archive.html

The Life and Times of a Mom On WheelZ. Saturday, July 18, 2009. Cute and Sporty Kiddos. Benny was born a Kicker. Those of you that were close to me durinng my pregnancy with him may recall him practicing Goalie Kicks on my right ribcage for months. It's true, it was insane and painful, but it became a beloved pain of security - On the rare d. Oh well, that's what this blog is all about, right? Now the great soccer news! And "which of these programs are you on? Thank you NOVA SOCER CLUB! Benny will be pla...

bouldermomonwheelz.blogspot.com bouldermomonwheelz.blogspot.com

The Life and Times of a Mom On WheelZ: Pride

http://bouldermomonwheelz.blogspot.com/2012/01/pride.html

The Life and Times of a Mom On WheelZ. Wednesday, January 18, 2012. Benny spent the day on a wonderful playdate with a new friend and his new friend's father. He made this new friend at The Patchwork School. And this was his first playdate from his new school, so it was pretty special! This evening, on my way out to my first Patchwork School "Learning Dialogue", I gave him three assignments to do before bed. When I returned, my son handed me this report. I hope you can read it.it's pretty impressive!

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Thursday, July 4, 2013. Wings For Destiny REBIRTH! You know when you really wanna do something but it seems like such an huge undertaking, especially amidst all the tasks you HAVE TO complete just to keep your world turning, and so this undertaking becomes a tumor-like guilt task, always applying almost unbearable pressure on your brain and then you just begin to resent the thing you wish you could do, and you really do NEED to do it? Well, that is my relationship with Destiny's blog! I am in love with h...

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