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HomeThe International Pompe Association (IPA) is an International federation of Pompe disease patients groups.
http://www.worldpompe.info/
The International Pompe Association (IPA) is an International federation of Pompe disease patients groups.
http://www.worldpompe.info/
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Home | worldpompe.info Reviews
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The International Pompe Association (IPA) is an International federation of Pompe disease patients groups.
worldpompe.info
Therapy (2007)
http://www.worldpompe.info/index.php/pompe-disease/therapy-2007
IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. Created: 05 September 2007. Written by Allan Muir. Enzyme Replacement Therapy for Pompe Disease: Expert Opinion from a Leading Pediatrician. An interview with Dr Ans van der Ploeg, MD, PhD, Erasmus Medical Centre, Rotterdam. By Allan Muir, Chairman, International Pompe Association. Of all the ERT variants that you ...
Int*l Pompe Day
http://www.worldpompe.info/index.php/international-pompe-day
IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. The IPA is excited to announce that the international Pompe community has chosen April 15 as the annual International Pompe Day! There are several ways that you can participate:. Upload a photo to the International Pompe Day website. Participate in the International Pompe Day Art Contest! Created: 14 April 2016.
Pompe Links
http://www.worldpompe.info/index.php/more/links
IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. International Funds For Children In Need. Please refer also to the list of Individuals affiliated with the IPA. Please refer also to the list of IPA Affiliates. For national Pompe organizations. Glycogen Storage Disease Network (GSDnet). Phone 31(35)5480480, Fax 31(35)5480499, E-mail info@worldpompe.org.
Home
http://www.worldpompe.info/index.php
IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. Welcome to the International Pompe Association (IPA). Statement from IPA on Biomarin. Created: 04 July 2016. July 4, 2016. As the International Pompe Association (IPA) has previously announced, on Thursday, June 9. The IPA Board appreciates that many factors must have gone into Biomarin’s decision to disconti...
Pompe Disease
http://www.worldpompe.info/index.php/pompe-disease
IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. Created: 06 January 2011. What is Pompe Disease? Is there any treatment? What is the prognosis? What research is being done? Contact: IPA secretariat, Paula Waddell, c/o VSN, Luitenant Generaal van Heutszlaan 6, 3743 JN Baarn, The Netherlands. Phone 31(35)5480480, Fax 31(35)5480499, E-mail info@worldpompe.org.
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International Pompe Association
IPA - International Pompe Association. Affects the lives of an estimated 5,000 to 10,000 people all over the world. A progressive, debilitating and life-threatening disease, infants, children and adults who inherit the defective gene from each parent are susceptible to getting Pompe. More information on Pompe Disease. Patients need a network of support in order to ease the hardships that these patients and their families go through. Support not only for medical reasons but also to deal with emotions ...
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IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. About this Forum / How to Register. Welcome to the International Pompe Association (IPA). Pause for Pompe" Fundraiser is open. More information: Press Release. Other options for donations see How to donate to the 2015 International Pompe Day Fundraiser. Australia has admitted life-saving drug for Pompe disease in the Australian Life-Saving Drug Programme. In Australia, in...
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IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. About this Forum / How to Register. Welcome to the International Pompe Association (IPA). Pause for Pompe" Fundraiser is open. More information: Press Release. Other options for donations see How to donate to the 2015 International Pompe Day Fundraiser. Australia has admitted life-saving drug for Pompe disease in the Australian Life-Saving Drug Programme. In Australia, in...
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IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. About this Forum / How to Register. Welcome to the International Pompe Association (IPA). Pause for Pompe" Fundraiser is open. More information: Press Release. Other options for donations see How to donate to the 2015 International Pompe Day Fundraiser. Australia has admitted life-saving drug for Pompe disease in the Australian Life-Saving Drug Programme. In Australia, in...
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