niemannpick.blogspot.com
Kaitlyn's Korner: My Verse
http://niemannpick.blogspot.com/2014/06/my-verse.html
In April 2010, our precious daughter Kaitlyn was diagnosed with Niemann-Pick Disease (Type A), a rare, fatal genetic disease with no cure. We decided to create this website for our family, friends and other families confronted with Niemann-Pick. It is our hope that we can help others by sharing Kaitlyn's journey. Our sweet girl lived a full life from July 1st, 2009 - March 22nd, 2012. Friday, June 27, 2014. At Elevation Church, we are currently in a series called Your Verse. Miscarriage. Life was not.
newkummerfamily.blogspot.com
The Kummer Family: December 2014
http://newkummerfamily.blogspot.com/2014_12_01_archive.html
This is our story. We created this blog in order to share our journey with friends and family! Sunday, December 14, 2014. Mckenna's School Christmas Performance! Mckenna had her Pre-K Christmas performance yesterday and she was a sheep! She is a very happy and proud girl in front of an audience. She had her first speaking part and she did GREAT! She was such a lucky girl to have Grandma and Grandpa and Nana and Papa there! We were so proud of her! Christmas Party- Adults only! Saturday, December 6, 2014.
wyldernation.org
Wylder James
http://wyldernation.org/wylder-james
Living Like a Warrior Sponsors. 50 Known Lysosomal Storage Disorders. The many faces of sweet Wylder James Laffoon. REMEMBERING A WARRIOR VIDEO TRIBUTE FROM WYLDER’S CELEBRATION OF LIFE. NIEMANN PICK A DISEASE. Niemann-Pick Type A (NPA) falls under the larger class of diseases known as lysosomal storage diseases and is caused by genetic mutations on the SMPD1 gene. READ WYLDER’S MEDICAL JOURNEY FROM HIS BIRTH IN MAY 2009 TO HIS MEMORIAL AT SEA JULY 2012 BY CLICKING HERE;. October 15 @ 5:30 pm.
newkummerfamily.blogspot.com
The Kummer Family: April 2015
http://newkummerfamily.blogspot.com/2015_04_01_archive.html
This is our story. We created this blog in order to share our journey with friends and family! Sunday, April 5, 2015. We went down to The Kummer's for Easter weekend and cousin Maggie's 1st birthday party. We had an Easter egg hunt, got to fly kites, the Easter bunny came and we got to see lots of family! Thursday, April 2, 2015. Happy 5th Birthday Mckenna! Subscribe to: Posts (Atom). Jeff, Shannon, Mckenna, Elin, Mattie and Phoebe! View my complete profile. Happy 5th Birthday Mckenna! Dax and Mia Blog.
newkummerfamily.blogspot.com
The Kummer Family: February 2014
http://newkummerfamily.blogspot.com/2014_02_01_archive.html
This is our story. We created this blog in order to share our journey with friends and family! Friday, February 14, 2014. Here are the current happenings around the Kummer house. Elin can do puzzles and shape sorters like nobody's business! We got outside to ride bikes earlier this month but it's been pretty snowy and cold since. Elin loves eating cereal and has been eating it like a big girl for months now. We cheered on the super bowl even though we lost miserably! Subscribe to: Posts (Atom).
newkummerfamily.blogspot.com
The Kummer Family: August 2015
http://newkummerfamily.blogspot.com/2015_08_01_archive.html
This is our story. We created this blog in order to share our journey with friends and family! Sunday, August 9, 2015. And we saw a moose and her baby in one of the lakes! I am a bit behind on blogging.too much fun I guess:). We ended our trip with the big slide in Estes Park and both girls rode it but Mckenna LOVED it! She would have stayed all afternoon if we let her! Subscribe to: Posts (Atom). Jeff, Shannon, Mckenna, Elin, Mattie and Phoebe! View my complete profile. Ross and Kelley Madden.
niemannpick.blogspot.com
Kaitlyn's Korner: May 2012
http://niemannpick.blogspot.com/2012_05_01_archive.html
In April 2010, our precious daughter Kaitlyn was diagnosed with Niemann-Pick Disease (Type A), a rare, fatal genetic disease with no cure. We decided to create this website for our family, friends and other families confronted with Niemann-Pick. It is our hope that we can help others by sharing Kaitlyn's journey. Our sweet girl lived a full life from July 1st, 2009 - March 22nd, 2012. Thursday, May 31, 2012. An Angel for My Angel. Angel of Grief" (Rome, Italy). Tuesday, May 22, 2012. That we will not dou...
niemannpick.blogspot.com
Kaitlyn's Korner: March 2013
http://niemannpick.blogspot.com/2013_03_01_archive.html
In April 2010, our precious daughter Kaitlyn was diagnosed with Niemann-Pick Disease (Type A), a rare, fatal genetic disease with no cure. We decided to create this website for our family, friends and other families confronted with Niemann-Pick. It is our hope that we can help others by sharing Kaitlyn's journey. Our sweet girl lived a full life from July 1st, 2009 - March 22nd, 2012. Monday, March 25, 2013. One Year Later- 3/22/13. Would it be the memories of how it happened? During the morning hours th...
niemannpick.blogspot.com
Kaitlyn's Korner: August 2012
http://niemannpick.blogspot.com/2012_08_01_archive.html
In April 2010, our precious daughter Kaitlyn was diagnosed with Niemann-Pick Disease (Type A), a rare, fatal genetic disease with no cure. We decided to create this website for our family, friends and other families confronted with Niemann-Pick. It is our hope that we can help others by sharing Kaitlyn's journey. Our sweet girl lived a full life from July 1st, 2009 - March 22nd, 2012. Wednesday, August 22, 2012. This morning I planned. Sorry God, but I fell asleep! I have a journal with eleven 4 leaf clo...
niemannpick.blogspot.com
Kaitlyn's Korner: October 2012
http://niemannpick.blogspot.com/2012_10_01_archive.html
In April 2010, our precious daughter Kaitlyn was diagnosed with Niemann-Pick Disease (Type A), a rare, fatal genetic disease with no cure. We decided to create this website for our family, friends and other families confronted with Niemann-Pick. It is our hope that we can help others by sharing Kaitlyn's journey. Our sweet girl lived a full life from July 1st, 2009 - March 22nd, 2012. Friday, October 26, 2012. October is Niemann-Pick Disease Awareness Month. Click here to donate to the NNPDF. I have been...
