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Baby Steps of Hope

Living our life with a very special little boy!

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Baby Steps of Hope | babystepsofhope.blogspot.com Reviews
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Living our life with a very special little boy!
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1 finally
2 seriously
3 lane and emily
4 meet emily
5 posted by
6 ddeisher
7 no comments
8 pictures to follow
9 danielle
10 a quick update
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finally,seriously,lane and emily,meet emily,posted by,ddeisher,no comments,pictures to follow,danielle,a quick update,christmas break update,merry christmas,always happy,latest endeavor climbing,more to come,2 comments,mountains,1 comment,an update
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Baby Steps of Hope | babystepsofhope.blogspot.com Reviews

https://babystepsofhope.blogspot.com

Living our life with a very special little boy!

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1

Baby Steps of Hope: A quick update!

http://babystepsofhope.blogspot.com/2012/04/quick-update.html

Baby Steps of Hope. Living our life with a very special little boy! Tuesday, April 3, 2012. Lane is doing awesome! He is now walking with a walker for fairly decent distances! Our little guy is starting to talk with and without his speaking valve. He is saying about 10 words regularly and most frequently we are hearing go and out. He LOVES being outside this year. This little guy is already sporting a slight farmers tan! We just heard yesterday and it is music to my ears! View my complete profile.

2

Baby Steps of Hope: July 2013

http://babystepsofhope.blogspot.com/2013_07_01_archive.html

Baby Steps of Hope. Living our life with a very special little boy! Friday, July 26, 2013. Hi everyone we have some major updating to do! I can't believe I have been so lax since September. Lane has lots of news for everyone! I'll start with the fact that Lane is three now! I cannot believe my baby is three, where did the time go? Lane started preschool this spring and after a couple weeks he really loved it! There is so much more he does but these were some major things we were working on! Lane is enjoy...

3

Baby Steps of Hope: an update

http://babystepsofhope.blogspot.com/2011/10/update.html

Baby Steps of Hope. Living our life with a very special little boy! Thursday, October 6, 2011. Here it is october and i am just now updating. O I have been so bad on my blogging! I am super busy with my FINAL year of nursing school and Lane has been busy himself. He is making leaps and bounds. First, I cannot keep track of this kid! I am going to try to upload some videos next time. We recieved our walker this month and lane is standing at it but we are not walking yet but that is coming soon I'm sure.

4

Baby Steps of Hope: Dear Mom...

http://babystepsofhope.blogspot.com/2011/05/dear-mom.html

Baby Steps of Hope. Living our life with a very special little boy! Sunday, May 8, 2011. May 9, 2011 at 7:05 AM. Thank You baby girl! You are a wonderful mother, wife, daughter, and just an all around person. You are mature beyond your years and I so proud to say I am your mother. Just want to say that while i have tried to teach you life lessons you, Lane, your sister, and brother has taught me what life is really all about. I love you! Subscribe to: Post Comments (Atom). A couple of pictures.

5

Baby Steps of Hope: Finally!

http://babystepsofhope.blogspot.com/2013/07/finally.html

Baby Steps of Hope. Living our life with a very special little boy! Friday, July 26, 2013. Hi everyone we have some major updating to do! I can't believe I have been so lax since September. Lane has lots of news for everyone! I'll start with the fact that Lane is three now! I cannot believe my baby is three, where did the time go? Lane started preschool this spring and after a couple weeks he really loved it! There is so much more he does but these were some major things we were working on! Lane is enjoy...

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A Joyful Journey: December 2014

http://theholtsjourney.blogspot.com/2014_12_01_archive.html

Tuesday, December 23, 2014. We also received startling news that held much fear and trepidation. I would like to put a disclaimer in here, and clearly state that I am respectfully making this analogy. In no way do I equate Toby to Jesus. Just think about that. If you are a parent, God chose your children just for you, just as God chose His plan of redemption from the beginning of time. Subscribe to: Posts (Atom). You can subscribe to my updates by submitting your e-mail address here! Garrett is our secon...

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A Joyful Journey: Mobility and Independence

http://theholtsjourney.blogspot.com/2014/10/mobility-and-independence.html

Wednesday, October 15, 2014. Spina Bifida is a diagnosis with varying degrees. Some kids walk with very little bracing, some walk with more support and a walker or crutches, and some can't walk at all. The process of getting casted for braces can appear medieval in some ways, but it's painless, and doesn't take very long! Toby's also had a mobile stander that we purchased used to help him put weight on his legs. He loves it when we get him into it, but alas last week we sold it and passed it on to an...

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A Joyful Journey: Toby's Story

http://theholtsjourney.blogspot.com/p/tobys-story.html

Toby also struggles with autonomic issues like the Harlequinn sign (turning red on half his body), nystagmus, slow motility, severe belly distension, scoliosis (41 degrees lying down and 70 degrees sitting up). He wears a night-time back bending brace at night to help correct the scoliosis. It's helping, but we now VEPTER rod surgery and the MACE/Mitrofanoff are in his future - his surgery list is currently at 13. Subscribe to: Posts (Atom). View my complete profile. Conor is our oldest son. He's 11 ...

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A Joyful Journey: Expectations

http://theholtsjourney.blogspot.com/2015/07/expectations.html

Tuesday, July 21, 2015. When I called my husband to explain the broken dryer, that just so happened to stop working on the day he was flying to Atlanta. Don't you think enough bad has happened to us recently, can't we get a break? No, that's life, Carrie.". Do I need to change my expectations? I DO NOT believe we should live without hope or look at life negatively, but the Bible does instruct us NOT to be surprised when bad things happen. Jesus said in John 16:33, "These things I have spoken to you, so t...

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A Joyful Journey: The Need for a Shunt

http://theholtsjourney.blogspot.com/2014/10/the-need-for-shunt.html

Sunday, October 19, 2014. The Need for a Shunt. They state his condition as " meningomyelocele"). Is where I found this picture of the shunt. That same site also has a great MRI picture of the brain with normal ventricles and ones that are swollen with fluid. Here is a link. To more information on the shunt. There have been other times when we've suspected it wasn't working - the mamas in the Spina Bifida community affectionately or unaffectionately call it SMP. After getting all of Toby's tests and wait...

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A Joyful Journey: February 2014

http://theholtsjourney.blogspot.com/2014_02_01_archive.html

Sunday, February 23, 2014. Walking on the Water. The last few Sundays the messages at church have really been convicting my heart and encouraging me at the same time. We have been talking about missions and our responsibility to step out in obedience to whatever God calls us to do. We've asked ourselves, "What is God calling me to step out in obedience to? Our worship band began singing Hillsong's Oceans. To reveal some things. But none of us can even begin to truly understand. You know what you gotta do.

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A Joyful Journey: March 2014

http://theholtsjourney.blogspot.com/2014_03_01_archive.html

Thursday, March 6, 2014. Finding the Right One. And we have our training on the ventilator today! Thank you in advance for praying specifically about the nurses. Subscribe to: Posts (Atom). You can subscribe to my updates by submitting your e-mail address here! View my complete profile. Toby is 7 years old and loves basketball, baseball, playing sword fighting on the Wii. He is very witty, loving, and easy going. He happens to have Spina Bifida, Hydrocephalus, a trach, feeding tube, ventilator de...Caris...

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A Joyful Journey: April 2015

http://theholtsjourney.blogspot.com/2015_04_01_archive.html

Friday, April 3, 2015. It's a Good Friday For Many Reasons. Today is Good Friday. It's an amazing day of remembrance of our deliverance from sin through Jesus' death on the cross. We now await to celebrate His victory over death on Resurrection Sunday. I am always in awe of these verses:. But He was wounded for our transgressions, He was bruised for our iniquities; The chastisement for our peace was upon Him, and by His stripes we are healed" (Isaiah 53:5). D-Day or Diagnosis Day (August 31, 2006),.

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A Joyful Journey: November 2013

http://theholtsjourney.blogspot.com/2013_11_01_archive.html

Saturday, November 9, 2013. Shunt, Shunt, Shunt. I apologize for not finishing out my series during the rest of October; as you can probably tell, my blogging can be inconsistent! Do you mean that having four children, one with major medical and special needs, doctor appointments, dentist appointments, traveling to visit family, home schooling, sports practices, running a half marathon, and just being a wife and mom doesn't lend itself to copious amounts of time to blog? To more information on the shunt.

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A Joyful Journey: Toby's Summer Update

http://theholtsjourney.blogspot.com/2015/07/tobys-summer-update.html

Tuesday, July 14, 2015. No news is always good news where Toby is concerned. Although, we have had some things going on, it’s been hard to find the time to sit down long enough to let you know how he’s doing. Overall, he’s doing well. We have gone four months without a hospital stay and that is always a success in my book, and I’m truly thankful for the downtime. Which leads me to….spinal cord detethering surgery. Subscribe to: Post Comments (Atom). I am married to a wonderful man named Bruce and have fo...

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Friday, November 14, 2014. I am so looking forward to this new study by Kelly Minter. Check out the link before for a preview. Life is not a career path or an attentive husband or a new home.Life is Jesus. #WhatLoveIs. Friday, November 7, 2014. Wednesday, November 5, 2014. I am so very much looking forward to doing this new study by Kelly Minter! Check out this clip. Wednesday, October 22, 2014. God's love for us grants us the capacity to love others." - Kelly Minter #WhatLoveIs. Monday, November 11, 2013.

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Baby Steps of Faith. Stepping away from the familiar and into the unknown.step by step. Sunday, 15 September 2013. Things I Love About Senegal / A Normal Day For Me. Things I Love About Senegal. Eating mangoes (although the season is almost over). Washing clothes by hand. Playing card games with my friends. Eating Yassa Poulet, Thiebougien, and Mafe. Trying to catch two foot lizards (they're the small ones). Getting water from the well. Wearing my 5 color paine. Getting my hair braided. As most of you kn...

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Baby Steps of Hope

Baby Steps of Hope. Living our life with a very special little boy! Friday, July 26, 2013. Hi everyone we have some major updating to do! I can't believe I have been so lax since September. Lane has lots of news for everyone! I'll start with the fact that Lane is three now! I cannot believe my baby is three, where did the time go? Lane started preschool this spring and after a couple weeks he really loved it! There is so much more he does but these were some major things we were working on! Lane is enjoy...

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The Baby Steps I Take Each Day

The Baby Steps I Take Each Day. Each step we take shape the person as we are. These are the few small steps that might seem insignificant, but means a whole lot to my destiny. I've been given Wings to Fly. And so I will Soar. Sunday, February 19, 2012. Finding Life in Death. Sitting here tonight, thinking about how things have changed and grown. I forget who i am every time. I feel like I am an absolute mess in this circumstance. I discriminate, manipulate and . When will I truly love myself? I am NOT FU...

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Monday, July 25, 2011. Thank you, Ma'am. A blurred shot of our class's last day with Ma'am Simbulan. Forty days after someone dies—that is the time to say goodbye. It is the time the soul leaves Earth and makes its way to heaven. It is final. I learned my teachers are human. Their bones break; they bleed; and they can ride taxis on a “killer highway.” Their luck can turn against them, put their taxis in buses’ ways, and wait for inertia to do its job. To make up for it. It is not like I knew Ma’am ...

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Welcome to the Baby Steps blog, the place where you can catch. A sneak peek of the gorgeous little ones we are so lucky to meet. Saturday, August 21, 2010. Our Blog Has Moved! We have a new and exciting blog with BEAUTIFUL big photos! Check it out here:. Http:/ babystepsphotographyanddesign.blogspot.com/. Posted by Baby Steps Photography and Design. Our Blog Has Moved! We have a new and exciting blog with BEAUTIFUL big photos! Check it out here:. Http:/ babystepsphotographyanddesign.blogspot.com/. Stella...