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Joni's JourneyJoni-Mai's story, a battle against Ewing's Sarcoma
http://beautifulbravejoni.blogspot.com/
Joni-Mai's story, a battle against Ewing's Sarcoma
http://beautifulbravejoni.blogspot.com/
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Joni-Mai's story, a battle against Ewing's Sarcoma
beautifulbravejoni.blogspot.com
Joni's Journey: Fund Raising!
http://beautifulbravejoni.blogspot.com/2011/12/fund-raising.html
Joni-Mai's story, a battle against Ewing's Sarcoma. Thursday, 29 December 2011. I have 2 wonderful friends who are both fund raising for Joni-Mai and her hospitals. Katy is throwing herself out of a plane, for more info please click HERE. Lauren is holding a sponsored pyjama day, you can take part if you'd like to help out. Please let me know if you're taking part, too and I can keep a list of names etc. You can find the sponsor form HERE. Subscribe to: Post Comments (Atom). Follow my blog by Email.
Joni's Journey: VIDE 4
http://beautifulbravejoni.blogspot.com/2011/12/vide-4.html
Joni-Mai's story, a battle against Ewing's Sarcoma. Thursday, 29 December 2011. This week saw the completion of VIDE 4. After discussing the anti-sickness program and what was working, it was decided to put the next level into play. The introduction of a drug called Nozinan. Finally stopped the sickness. Although it makes Joni-Mai VERY sleepy and turns her into a zombie, it stops her from feeling sick which in turn, stops the vomiting! Subscribe to: Post Comments (Atom). Follow my blog by Email.
Joni's Journey: Run for Joni
http://beautifulbravejoni.blogspot.com/2012/02/run-for-joni.html
Joni-Mai's story, a battle against Ewing's Sarcoma. Friday, 10 February 2012. A team of mums and dads from Joni-Mai's school have signed up for the Brentwood half marathon on Sunday 25th March. We have decided that we would like the team to run and raise funds for CLIC Sargent. Because without their help through this, we'd probably be in a terrible, terrible place. Through CLIC Sargent. I'd love if you'd go along and have a look at the team's Just Giving. Page Every penny goes to CLIC Sargent.
Joni's Journey: Surgery!
http://beautifulbravejoni.blogspot.com/2012/01/surgery.html
Joni-Mai's story, a battle against Ewing's Sarcoma. Friday, 20 January 2012. So, as promised, here I am with details of Joni's surgery. You might recall that we were shocked recently with the news that Joni-Mai would be needing a hip replacement. Last Thursday, we had the chance to sit down and discuss with Chris Henry - a specialist sarcoma nurse - the surgery, procedures and implications on Joni-Mai's life. How long is the operation? How long is recovery? How will replacing the ball part of the joint a...
Joni's Journey: Post surgery chemotherapy
http://beautifulbravejoni.blogspot.com/2012/02/post-surgery-chemotherapy.html
Joni-Mai's story, a battle against Ewing's Sarcoma. Friday, 10 February 2012. This is probably a good opportunity to explain a little about the post surgery chemotherapy. After the surgery, Joni-Mai will still continue on a 3 weekly chemotherapy regime. Where before, she was having the combination VIDE ( Vincristine. After she will have a new combination - VAI ( Vincristine. The first chemotherapy week after surgery is scheduled for the 5th March and then will be every 3 weeks from here!
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beautifulbravejoni.blogspot.com
Joni's Journey
Joni-Mai's story, a battle against Ewing's Sarcoma. Saturday, 11 August 2012. It's been a while. I have to apologise sincerely for my lack of posts recently. A long time has passed and a lot has happened and I will do my best to put it all down in words for you all to see and read. As I type, we have a 6 year old enjoying a day out at the seaside before she goes into hospital for her last course of chemo for this treatment. It has been a long year for our Joni but, the end is in sight! And we'd like to s...
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beautifulbrazilamazonflorest.blogspot.com
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