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Cardiac Inherited Diseases Group
Links of Interest
http://www.cmaa.org.au/links.html
National Genetic Heart Disease Registry. The NGHD Registry aims to enrol every family in Australia with an inherited cardiomyopathy (e.g. hypertrophic cardiomyopathy) and inherited electrical disorders (e.g. long QT syndrome). The website includes information sheets on each of the diseases, details and genetic testing availability and links to new research programs. Our Community - CMAA Donations page. On-line donations and volunteers service and practical information. This group was formed in 1990 by a ...
Long QT Syndrome - One Heart Cardiology
http://oneheartcardiology.com.au/service/long-qt-syndrome
Download Printable Referral PDF. Our Specialists, Services & Locations. Implantable Cardioverter Defibrillator (ICD). Ventricular Tachycardia in Normal Hearts. Ventricular Tachycardia in Structural Heart Disease. 24 Hour Holter Monitor. 24 Hour ABPM (Privately Charged). Cardiac Resynchronization Therapy (CRT). SVT EP Study & Ablation. Ventricular Tachycardia Ablation in Normal Hearts. Ventricular Tachycardia Ablation in Structural Heart Disease. Coronary & Structural Heart Procedures. LQTS may be diagnos...
NZORD - Rare disease support group directory
http://www.nzord.org.nz/support-groups
Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. Rare disease support group directory. Rare disease support group directory. NZORD has compiled a list of rare disease support groups. Can’t find your group? Phone: 07 896 7452.
Cardiac Genetic Services - Australian Genetic Heart Disease Registry
http://www.heartregistry.org.au/patients-families/cardiac-genetic-services
Patients & Families. Familial Dilated Cardiomyopathy (FDC). Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC). Long QT Syndrome (LQTS). Catecholaminergic Polymorphic VT (CPVT). Left Ventricular Noncompaction (LVNC). Testing for Genetic Heart Disease. Genetic Inheritance and Testing. Sudden Cardiac Death and Grief. Patients & Families. Cardiac Genetic Services in Australia and New Zealand. Hypertrophic Cardiomyopathy Clinic and Genetic Heart Disease Clinic. Royal Prince Alfred Hospital. Contact: Vane...
NZORD (old) - Rare disease support group directory
http://www.nzordgroups.org.nz/support-groups
Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Charities Commission Registration CC22512. Rare disease support group directory. NZORD has compiled a list of rare disease support groups. Can’t find your group? Phone: 07 896 7452.
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Sudden Death in the Young. Cardiac Inherited Disease Group. Welcome to the website for the Cardiac Inherited Disease Group supported by Cure Kids. We aim to reduce sudden death in young people due to inherited cardiac diseases. For new developments, research and other important events go to the news section. About Cardiac Inherited Heart Disease. Sudden Death in the Young. Some of the CIDG Team from 2006, with three family members from the registry. Another key aim of the group is to develop a truly nati...
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Areas of operation ». Energy and Environment ». Business assumptions of KFx. Technology for calculating and verifying heat rate deviation and GHG emission levels ». CIDG Technology for the power industry. CIDG Technology for agriculture. Infrastructure and Telecommunication ». Business Development ». Latest environmentally friendly technologies. Airport projects and regional networks. Crowley Infrastructure Development Group. CIDG at the Second Innovation Forum in Rzeszów. Crowley Infrastructure Developm...
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