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Ella's Corner

Following our "Squishy" as she lives with Spinal Muscular Atrophy (SMA), Type 2

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Following our &quot;Squishy&quot; as she lives with Spinal Muscular Atrophy (SMA), Type 2
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Ella's Corner | ellas-corner.blogspot.com Reviews

https://ellas-corner.blogspot.com

Following our &quot;Squishy&quot; as she lives with Spinal Muscular Atrophy (SMA), Type 2

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1

Ella's Corner: October 2011

http://ellas-corner.blogspot.com/2011_10_01_archive.html

Monday, October 31, 2011. I've Noticed.(by Michael). Two-and-a-half months ago Ella was diagnosed with Spinal Muscular Atrophy Type 2. So much has happened since that day. I've noticed much in the past two-and-a-half months- more so in the past week. Ella has regressed physically yet has progressed mentally. She fights her SMA by being smarter than it is. She finds ways to do what she wants and if she cannot- she finds ways to get the help she needs. We will have to move for her, with her. Technology...

2

Ella's Corner: Helping Hands

http://ellas-corner.blogspot.com/p/helping-hands.html

Here you will find three ways that you can support Ella and/or SMA research. Donate to Cure SMA. Formerly Families of Spinal Muscular Atrophy) to help them in their research efforts. To help them in their research efforts. Donate directly to Ella Casten. To help her with her immediate and long-term needs. Subscribe to: Posts (Atom). Summer 2016 Tutoring with Casten's Key to Learning. Click the key to visit Casten's Key to Learning's Website. Help with Ella's Daily Expenses! Check Around Ella's Corner.

3

Ella's Corner: Simply Asking...(by Michael & Lindsay)

http://ellas-corner.blogspot.com/2015/07/simply-askingby-michael-lindsay.html

Sunday, July 5, 2015. Simply Asking.(by Michael and Lindsay). Surgery is set for Thursday, July 9, 2015. As this is written it is Sunday, July 5, 2015. We've worked out plans for Ava, Henry and Sasa. We're still working on Doublestuff (the cat.that should be no problem, though). While pride often hinders us in asking for help we know we must set it aside for now and simply ask. Sunday, July 05, 2015. July 6, 2015 at 1:36 AM. Please could you post the address to which we can send Ella a card? You can be n...

4

Ella's Corner: December 2011

http://ellas-corner.blogspot.com/2011_12_01_archive.html

Saturday, December 31, 2011. There could be a lot said for the past year, 2011. There could also be a lot not. Said Looking back over the year in review I cannot help but sit back, take a deep breath, and sigh. I sigh for lives lost and for precious lives gifted to us. I sigh for dreams lost and for depth of soul gained. I sigh for arguments waged and for forgiveness expressed. I sigh for seemingly endless moments of fear and for comforts found in an embrace. I sigh for the darkness that covers our minds...

5

Ella's Corner: A Beach. A Boat. A Wish...(by Michael & Lindsay)

http://ellas-corner.blogspot.com/2015/05/a-beach-boat-wishby-michael-lindsay.html

Friday, May 8, 2015. A Beach. A Boat. A Wish.(by Michael and Lindsay). If you could have any wish, what would it be? After much thought she answered our question, "To sleep on a boat and visit a real beach.". Ella has been granted her wish through the "Make-a-Wish" Foundation. They will be sending our whole family on a Disney Cruise! Make-a-Wish and those who are a part of it have shown us how spectacular they really are.and we haven't even left our house yet! Friday, May 08, 2015. May 8, 2015 at 8:15 PM.

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oursmajourney.blogspot.com oursmajourney.blogspot.com

Our SMA Journey: What's Happened, What's Coming Up.....

http://oursmajourney.blogspot.com/p/timeline-of-events.html

Our life since our perfect little Noah was diagnosed with SMA type 2. What's Happened, What's Coming Up. 2/29/2012- Meeting with orthotic specialist to get Noah casted for a RGO brace. 2/27/2012- Went to DME supply and picked up Bi-pap. 02/21/2012- Results are in- Baby Eli is SMA FREE! 2/16/2012- New stander is in! 2/1/2012- Meeting with Donota (Dr. Swoboda's team PT). 1/6/2012- Getting AFO's and meeting vendor to get Noah a stander. 12/19/2011- Noah has gained 2 pounds! 9/29/2011- Met Neurologist (Dr&#4...

oursmajourney.blogspot.com oursmajourney.blogspot.com

Our SMA Journey: Our Story- coming to a diagnosis........

http://oursmajourney.blogspot.com/p/our-story-coming-to-diagnosis.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Our Story- coming to a diagnosis. It has been a hard road, he uses a feeding tube to eat and relies on many other machines to keep him healthy. These machines that I hated in the beginning I am thankful for. They keep my baby strong and healthy. Subscribe to: Posts (Atom). Accessible Van Fundraiser for Noah. Our Story- coming to a diagnosis. What's Happened, What's Coming Up. Nightly routine- A glimpse at a portion of our day.

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Our SMA Journey: August 2013

http://oursmajourney.blogspot.com/2013_08_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Friday, August 2, 2013. August is SMA awareness month! What does it mean to be aware? Per Webster being aware is: having or showing realization, perception, or knowledge. While most people in our lives know that Noah has SMA, but how many REALLY know what SMA is? While most aren't aware of what exactly SMA is, know that it's much more than a little boy being in a wheelchair. Awareness is key to a cure! Lauren, Lane, Noah and Eli.

oursmajourney.blogspot.com oursmajourney.blogspot.com

Our SMA Journey: Bad at updates :)

http://oursmajourney.blogspot.com/2013/07/bad-at-updates.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Monday, July 1, 2013. Bad at updates :). So I have been sitting here thinking at how much has happened since I last updated our blog. Time is majorly lacking and I am exhausted all of the time. In March, Noah finally got his very own power wheelchair. He loves it and I am so proud of him. He does amazing in it and I love that he has his independence. Lauren, Lane, Noah and Eli. August 2, 2013 at 8:47 AM. I have some questions for you!

oursmajourney.blogspot.com oursmajourney.blogspot.com

Our SMA Journey: May 2012

http://oursmajourney.blogspot.com/2012_05_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Thursday, May 3, 2012. Please at the very least tell everyone you know about SMA. Awareness is the key. It could happen to you! Please spread the word. 183; SMA is the #1 genetic killer of children under 2. 183; SMA is estimated to occur in nearly 1 out of every 6,000 births. 183; 1 in every 40 people, or nearly 10 million Americans, UNKNOWINGLY carry the gene responsible for SMA. Few have any known family history. Growing Pains.(b...

oursmajourney.blogspot.com oursmajourney.blogspot.com

Our SMA Journey: April 2012

http://oursmajourney.blogspot.com/2012_04_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Monday, April 2, 2012. Does it ever get better. I laugh at the title of this entry because if I don't laugh, I'll cry. So back to the real reason for this blog.Noah. Friday, Lane took him and had new AFO's made. We have noticed that the are starting to get tight around his calves and leaving impressions. Since we are in our 90 days period of getting his first set, then he gets a new set at no charge. Woohoo. Lauren, Lane, Noah and Eli.

oursmajourney.blogspot.com oursmajourney.blogspot.com

Our SMA Journey: July 2012

http://oursmajourney.blogspot.com/2012_07_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Sunday, July 8, 2012. The Birth of Eli. Lane and I had wanted to do a natural birth with Noah, but laws in Alabama made it impossible to have an out of hospital natural birth with a midwife. This time around we got what we wanted. I remember him repeating you can do this, and telling me how great I was doing. He was an amazing supporter. Eli was born at 10:06 pm 1 hour and 26 minutes after we got to the birthing center. Noah was born o...

oursmajourney.blogspot.com oursmajourney.blogspot.com

Our SMA Journey: August is SMA awareness month!

http://oursmajourney.blogspot.com/2013/08/august-is-sma-awareness-month.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Friday, August 2, 2013. August is SMA awareness month! What does it mean to be aware? Per Webster being aware is: having or showing realization, perception, or knowledge. While most people in our lives know that Noah has SMA, but how many REALLY know what SMA is? While most aren't aware of what exactly SMA is, know that it's much more than a little boy being in a wheelchair. Awareness is key to a cure! Lauren, Lane, Noah and Eli.

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