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Family Synapse - Thoughts on life, disability, and the power of connection.

Aidan In the News. Thoughts on life, disability, and the power of connection. 12 Aug, 2015. 7 Aug, 2015. Receiving a Rare Diagnosis. 6 Aug, 2015. Meet Anthony – The Face of Resilience. 5 Aug, 2015. My PURA Gene Family – In Pictures. 4 Aug, 2015. My PURA Gene Family – In Poetry. 3 Aug, 2015. My PURA Gene Family – In Words. 21 Jul, 2015. 13 Jul, 2015. 8 Jul, 2015. The Making of a Man. 6 Jul, 2015. 29 Jun, 2015. Why I’m Not Writing. Page 1 of 64. Wishing Him Gone: My Messy Beautiful. 7 Apr, 2014. 3 Oct, 2012.

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Family Synapse - Thoughts on life, disability, and the power of connection. | familysynapse.com Reviews
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Aidan In the News. Thoughts on life, disability, and the power of connection. 12 Aug, 2015. 7 Aug, 2015. Receiving a Rare Diagnosis. 6 Aug, 2015. Meet Anthony – The Face of Resilience. 5 Aug, 2015. My PURA Gene Family – In Pictures. 4 Aug, 2015. My PURA Gene Family – In Poetry. 3 Aug, 2015. My PURA Gene Family – In Words. 21 Jul, 2015. 13 Jul, 2015. 8 Jul, 2015. The Making of a Man. 6 Jul, 2015. 29 Jun, 2015. Why I’m Not Writing. Page 1 of 64. Wishing Him Gone: My Messy Beautiful. 7 Apr, 2014. 3 Oct, 2012.
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1 about us
2 epilepsy
3 pura gene
4 mobility journey
5 in the news
6 word gets around
7 contact heather
8 speaking
9 being a parent
10 summer of adventure
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about us,epilepsy,pura gene,mobility journey,in the news,word gets around,contact heather,speaking,being a parent,summer of adventure,family synapse,communication,my one regret,food for thought,meeting glennon,mobility,raquo;,last »,follow,popular posts
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Family Synapse - Thoughts on life, disability, and the power of connection. | familysynapse.com Reviews

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Aidan In the News. Thoughts on life, disability, and the power of connection. 12 Aug, 2015. 7 Aug, 2015. Receiving a Rare Diagnosis. 6 Aug, 2015. Meet Anthony – The Face of Resilience. 5 Aug, 2015. My PURA Gene Family – In Pictures. 4 Aug, 2015. My PURA Gene Family – In Poetry. 3 Aug, 2015. My PURA Gene Family – In Words. 21 Jul, 2015. 13 Jul, 2015. 8 Jul, 2015. The Making of a Man. 6 Jul, 2015. 29 Jun, 2015. Why I’m Not Writing. Page 1 of 64. Wishing Him Gone: My Messy Beautiful. 7 Apr, 2014. 3 Oct, 2012.

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1

Food for Thought - Family Synapse

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Aidan In the News. Category: Food for Thought. 7 Dec, 2015. 2 Nov, 2015. 26 Oct, 2015. 12 Oct, 2015. 13 Jul, 2015. 1 Apr, 2015. Food for Thought – April 6, 2015 Edition When a Little Girl at the Pool Realized My Son Had Autism Here, get on the float, I’ll pull you, I’ll throw the ball, and you catch, OK? Was I really seeing what I was seeing? Was my son playing? Did my son finally have a friend? 23 Mar, 2015. 9 Mar, 2015. 28 Feb, 2015. Susannah Cahalan Ghost Boy. 23 Feb, 2015. Page 1 of 6. 7 Apr, 2014.

2

My PURA Gene Family – In Poetry - Family Synapse

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Aidan In the News. My PURA Gene Family – In Poetry. Middot; August 4, 2015. I’m very excited to introduce you to a fellow PURA mom. This is Sarah, mom of the adorable Audrey and Alvie. Here is her reflection of our get together. Photo – Faith Light Photography. I am at the PURA Conference in Connecticut. I am here for you but I am also here for me. I am here to breathe. To take breaths. I n a n d o u t. That make us tired. That make us stressed. I am here to learn to take breaths everyday. I am here to h...

3

My PURA Gene Family – In Pictures - Family Synapse

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Aidan In the News. My PURA Gene Family – In Pictures. Middot; August 5, 2015. The quick and dirty – Aidan lived without a diagnosis for 13 years. Last year we found out he has two mutations on his PURA gene. Shortly after that we started meeting other families online with the same diagnosis. The longer version is here. And the poetic version is here. In May we gathered in person. It was incredible in so many ways. Here’s the story in pictures (all the good pictures credit to Rick Allen). And then a reall...

4

Food for Thought - Family Synapse

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Aidan In the News. Middot; July 13, 2015. Food for Thought – July 13, 2015. Now, I’m all for disability pride. I like to think of myself as a bit of an advocate, not just for my son but for the rights of people with disabilities in general. I want to end the stigma. I want to change the conversation. I want to bridge the gap between them and us. But also, I want a mother. 5 Ways Able-Bodied People Can do Better by People in Wheelchairs. World’s Okayest Mom. The Making of a Man. You may also like. Http:/ ...

5

My One Regret - Family Synapse

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Aidan In the News. Middot; July 21, 2015. I have few regrets about the choices I’ve made raising Aidan. It’s been an intense lesson in winging it; gathering as much information as possible, filtering it through layers of emotion, and making the best decision I could at any given moment. I don’t regret putting in and then taking out Aidan’s feeding tube. I don’t regret pumping breatmilk for only six short weeks while taking care of my toddler and being separated from my sick baby. But it’s also about.

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April 2015 | oneofthewonders

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Life with a child with atypical Rett Syndrome. What am I doing here? 27 April 2015 – Another fracture! Located just above the knee on the right femur – the third time she has had a fracture in that location. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. Notify me of new comments via email. Let m...

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Showing support | oneofthewonders

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Life with a child with atypical Rett Syndrome. What am I doing here? I wasn’t expecting that…. A new girl →. August 11, 2015. But it is important to me to talk about children’s hospice. Because Vegemite and I have been raising money for Hummingbird House. Which when it is completed, will be the first children’s hospice in Queensland and the third in the whole of Australia. Which is crazy, considering there are over 300,000 life-limited kids in Queensland alone. To start with, we did the usual thing of se...

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Outrageous Fortune: Adventures in Hippotherapy

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Monday, April 28, 2014. You might think hippotherapy is some bizarre form of exercise with highly dangerous two-ton water cows. You would be wrong. Even though it is not called equi. Therapy, it has to do with horses. Some kind of Latin thing. If only the Romans were around to explain. Malachi having the time of his life on said horse! He absolutely loved it! Did the therapist inadvertently do something wrong? Where is Caracas again? What kind of demented mind came up with that? It took us four weekly vi...

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Outrageous Fortune: Diagnosis Day: Shattered expectations

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Sunday, March 20, 2011. Diagnosis Day: Shattered expectations. I always enjoyed the first class of the term. I would sit there — be it in a class of 15 or 200 — and look at the teacher with a clean slate. This teacher didn’t yet know me from any of the other students in the class. This teacher couldn’t yet tell that I would be one of his or her best students. It’s arrogant to say that, I know, but that doesn’t make it untrue. I graduated from college with higher. 8220;I want you. 8220;Fix it.”. There was...

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Outrageous Fortune: Seeing the breast half full

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Saturday, April 09, 2011. Seeing the breast half full. My breastmilk and what I came to call my "yellow, plastic triplet.". It's hard to remember what I thought about breastfeeding before I became pregnant. I think it went something like this: "My mom breastfed me and I'm awesome, so I'll breastfeed my kids and then they'll be awesome. Great idea! After I got pregnant I read books like La Leche League's " The Womanly Art of Breastfeeding. Be easy. Some day. Right? Therapist) said that she's seeing a lot ...

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Outrageous Fortune: Shasta: The Return to Journalism

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Wednesday, July 09, 2014. Shasta: The Return to Journalism. Life can change so quickly. Little more than a month ago, I was a stay-at-home mom, and seemed destined to stay that way at least until the kids went to full-time school. Tired, drained and pulled in a million directions, I was ready to quit my tiny freelance reporting gig — because: who am I kidding? There's no way I'm getting my career in print news back. And it was true. And I love it. It's just really not for me. Is this my life? Don't get m...

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Outrageous Fortune: How to Answer the Screen Time Challenge (Especially with Challenged Kids)

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Thursday, April 17, 2014. How to Answer the Screen Time Challenge (Especially with Challenged Kids). Screen Time" is a BFD in our house. Episodic wars are fought over it throughout the day, every day. Limiting young children's exposure to technology is difficult in most households, but when you have a child who requires a whole lot of assistance to do much else, it's nearly impossible. During our medical trip to New York. And I know that lots of people. That said, I do think that limiting screen time:.

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Outrageous Fortune: How to Make a Medicine Spreadsheet Chart on Excel

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Tuesday, April 29, 2014. How to Make a Medicine Spreadsheet Chart on Excel. OK, I admit it. I have trouble remembering to give Malachi his medicine. Even when I do, later I don't remember whether or not I actually did give it to him. Part of this has to do with the fact that his medicines are in liquid form so those cool pill cases don't work for us. Add to the mix a few more caregivers and things get pretty confusing. Here's what you do to make one of your own in about 5 minutes:. 8212; click on that ce...

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Outrageous Fortune: Policies

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Yes, it's true. I am the eleventy-five billionth person to try to make money by giving content away for free on the Internet. Since that makes me an uncomfortable marriage of reporter-photographer-editor-publisher-ad rep, I'm telling you here exactly what that means in the hopes that you won't feel hoodwinked in any way. Well, not you. Of course, since you. Are very media-savvy, so what I really mean is that other guy. You know the one. He's such an idiot. So, here's how I make money. You can post anonym...

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Outrageous Fortune: Silent Sunday: OMSI

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Sunday, April 27, 2014. Cutest kids on the planet. Subscribe to: Post Comments (Atom). Portland, Oregon, United States. Writer, author, self-publisher and stay-at-home mama to twins JJ and Malachi, who has cerebral palsy. See the "Who I Am" page link below for more info. View my complete profile. Feel free to subscribe to my RSS feed. Follow me on Twitter. Or like me on Facebook. Also, check out my new children's book, Dark and Light: A Love Story in Black and White. What type of CP does he have? Why doe...

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Family Symphony

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キャバクラ・ガールズバー・ニュークラブを楽しもう

また、特定のパートナーがいたとしても、 他の女の子とのおしゃべりを楽しみたい でも、浮気をするつもりはない と考える方も少なくはありません。 そう考える男性にオススメなサービス店として、 キャバクラ や ガールズバー 、 ニュークラブ があげられます。 その種類とは、 夜キャバ と 昼キャバ です。 営業時間は、20 00 深夜1 00時までのところが多く、夜に営業することから お酒を. 営業時間は、だいたい9 00 17 00時までのところが多く、昼間に営業することからソフトドリンクを頼む男性客が多く見られます。

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Family Symptoms

Learn about the health and medical conditions that can affect all members of the family. Review information about the many possible symptoms and find out about the diseases that cause them. This site is for informational purposes only and is not medical advice. See your doctor or other qualified medical professional for all your medical needs.

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Family Synapse - Thoughts on life, disability, and the power of connection.

Aidan In the News. Thoughts on life, disability, and the power of connection. 12 Aug, 2015. 7 Aug, 2015. Receiving a Rare Diagnosis. 6 Aug, 2015. Meet Anthony – The Face of Resilience. 5 Aug, 2015. My PURA Gene Family – In Pictures. 4 Aug, 2015. My PURA Gene Family – In Poetry. 3 Aug, 2015. My PURA Gene Family – In Words. 21 Jul, 2015. 13 Jul, 2015. 8 Jul, 2015. The Making of a Man. 6 Jul, 2015. 29 Jun, 2015. Why I’m Not Writing. Page 1 of 64. Wishing Him Gone: My Messy Beautiful. 7 Apr, 2014. 3 Oct, 2012.

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familysync.com - family sync Resources and Information.

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Family Synergy - Polyamory in Southern California

FS) is a Social/Educational Club. In Southern California supporting Open Relationships. It is a place to explore alternatives to traditional monogamy in a warm, supportive, humanistic atmosphere. Is this club for ME? Women, with or without partners, are especially welcome to join. Big Bear, CA -. He 2005 conference was a big success! More info to come later or sign-up. For membership and get ALL of the reports in the Newsletter. See the Conference page. Subscribe to the FamilySynergy Yahoo Group.

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Family Synergy Restoration Center |

Restoring Families One At A Time. Family Synergy Restoration Center, Inc. located in Tulsa, OK is a faith based organization bridging gaps for families throughout the nation. Since its inception numerous families have received support, participated in workshops and attended various events. Our focus is to help families face life challenges and develop a healthy confidence in their ability to overcome any obstacle through personal development:. Seminars for Individual Families/Groups.

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Home - Family Synod 2015

Wijngaards Institute for Catholic Research. Birth Control – History. What is an ICSA? ICSA – data gathering stage. Scholars’ Statement 2014. English text & signatures. Dutch text & signatures. Catholics and Birth Control. Assessments and recommendations by Catholic Scholars. Here we will bring together the considered judgments of Catholic family doctors, psychologists, church lawyers, theologians and other experts in all fields of family life. Read the Statement here. Paragraps 18 and 57 of the official ...