fsh-group.org

FSH-MD Support Group UK » FSH-MD Support Group UK is a National, voluntary help group dedicated to improving the lives of people with facioscapulohumeral muscular dystrophy (FSHD) and their families.

25 Questions about FSH. What is scapular fixation? Scapular fixation Leanne’s story. Scapular fixation James’ story. Scapular fixation Ian’s story. South West Neuromuscular News. Action on FSH Appeal Muscular Dystrophy Campaign. As a support group partner of the Muscular Dystrophy UK, we are here to help improve the quality of life for those who have Facioscapulohumeral Muscular Dystrophy (FSH-MD). We help provide support to those with FSH-MD as well as their carers, family and friends. There are also pr...

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FSH-MD Support Group UK » FSH-MD Support Group UK is a National, voluntary help group dedicated to improving the lives of people with facioscapulohumeral muscular dystrophy (FSHD) and their families. | fsh-group.org Reviews

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25 Questions about FSH. What is scapular fixation? Scapular fixation Leanne’s story. Scapular fixation James’ story. Scapular fixation Ian’s story. South West Neuromuscular News. Action on FSH Appeal Muscular Dystrophy Campaign. As a support group partner of the Muscular Dystrophy UK, we are here to help improve the quality of life for those who have Facioscapulohumeral Muscular Dystrophy (FSH-MD). We help provide support to those with FSH-MD as well as their carers, family and friends. There are also pr...

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2 present and future

3 current committee

4 in the beginning

5 feedback

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7 newsletter 27

8 newsletter 26

9 newsletter 25

10 newsletter 24

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FSH-MD Support Group UK » FSH-MD Support Group UK is a National, voluntary help group dedicated to improving the lives of people with facioscapulohumeral muscular dystrophy (FSHD) and their families. | fsh-group.org Reviews

https://fsh-group.org

25 Questions about FSH. What is scapular fixation? Scapular fixation Leanne’s story. Scapular fixation James’ story. Scapular fixation Ian’s story. South West Neuromuscular News. Action on FSH Appeal Muscular Dystrophy Campaign. As a support group partner of the Muscular Dystrophy UK, we are here to help improve the quality of life for those who have Facioscapulohumeral Muscular Dystrophy (FSH-MD). We help provide support to those with FSH-MD as well as their carers, family and friends. There are also pr...

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fshd-registry.org

Useful Organisations - UK Patient Registry for FSHD

https://www.fshd-registry.org/uk/useful_organisations/index.en.html

UK Patient Registry for FSHD. FSHD is one of the most common muscular dystrophies worldwide. There are many organisations across the UK and Europe who help support people dealing with this condition. More information about these groups is listed below. For more information: www.muscular-dystrophy.org. For more information: www.fsh-group.org. For more information: www.fshd-europe.org. This global network provides an infrastructure to promote the development of therapies for neuromuscular disorders; it foc...

karensfshjourney.blogspot.com

Karen's FSH Journey

http://karensfshjourney.blogspot.com/2008/04/karens-fsh-journey.html

On going story of life with Facioscapulohumeral Muscular Dystrophy(FSH-MD). Monday, 21 April 2008. Karen’s FSH Journey. An everyday account of living with Fasio Scapulo Humeral Muscular Dystrophy. the ups and the downs the frustrations and the positives.oh yes there are positives. I’ve had FSH all my life. I was born with a defective gene passed on from my Dad. There’s a 50-50 chance of it being passed on. Even now I can still hear my mums voice “Will you turn that leg in when you walk no wonder yo...

schoolforparents.org

Frequently asked questions | School For Parents

http://www.schoolforparents.org/frequently-asked-questions

How you can help. How you can help. We’ve included most of the questions that parents often ask us about our services, or about their child’s development or disability. If your question isn’t answered here email us. Your question and we’ll get back to you as soon as we can. What exactly do you do at School for Parents? Please read the What we do. How much does it cost to attend School for Parents? How will my child and I benefit from attending School for Parents? Read our success stories. A specialised s...

caremanagementservices.co.uk

Who we cater for | Care Management Services

http://caremanagementservices.co.uk/services/who-we-cater-for

Who we cater for. England (West) & Wales. Who we cater for. We supply a full body of care service to disabled people who want to live independently; we specialise in delivering fully supported care for young adults with neuromuscular conditions and complex care needs. I know that sounds very specific, however it does cover a full spectrum of conditions; Muscular Dystrophy. If you want to live independently and would like more information then please contact us. I’ve listed a few of the condition specific...

sheffieldmndcentre.group.shef.ac.uk

SHEFFIELD MND CARE AND RESEARCH

http://www.sheffieldmndcentre.group.shef.ac.uk/nmservice.html

SHEFFIELD MND CARE AND RESEARCH CENTRE. About the Neuromuscular Service. There are over 60 Neuromuscular conditions. Within South Yorkshire the 10 most prevalent conditions seen are (in order of prevalence):. Duchenne Muscular Dystrophy (DMD). Charcot-Marie-Tooth Disease (Hereditary motor and Sensory Neuropathy). Facioscapulohumeral muscular dystrophy (FSH). Limb Gurdle Muscular Dystrophy. Inflammatory Myopathies including Inclusion Body Myositis. Hereditary Spastic Paraparesis (HSP). Individuals who are...

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fsh-group.org

FSH-MD Support Group UK » FSH-MD Support Group UK is a National, voluntary help group dedicated to improving the lives of people with facioscapulohumeral muscular dystrophy (FSHD) and their families.

25 Questions about FSH. What is scapular fixation? Scapular fixation Leanne’s story. Scapular fixation James’ story. Scapular fixation Ian’s story. South West Neuromuscular News. Action on FSH Appeal Muscular Dystrophy Campaign. As a support group partner of the Muscular Dystrophy UK, we are here to help improve the quality of life for those who have Facioscapulohumeral Muscular Dystrophy (FSH-MD). We help provide support to those with FSH-MD as well as their carers, family and friends. There are also pr...

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Freundeskreis Stadtbücherei Hamm e.V. Freitag, 25. November 2016. 20.00 Uhr,. O90 Ostenallee 90, 59071 Hamm. Ein Hammer Lyriker auf dem Weg:. Lesung und Gespräch mit Prof. Dr. Walter Gödden. Um eine angemessene Spende für den fsh wird gebeten. Eine Veranstaltung des Freundeskreises Stadtbücherei Hamm e.V. (fsh). Lohauserholzstraße 18, 59067 Hamm. Sonntag, 06.11.2016 ab 18:00 Uhr. Vom 14. - 15.10.2016. Während der sehr informativen Führung durch das Haus, erhielten wir wunderbare Eindrücke der neuen Stadt...

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