haei.org

HAEi – International Patient Organization for C1 Inhibitor Deficiencies – International Patient Organization for C1 Inhibitor Deficiencies

HAEi is the international umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups. HAEi is dedicated to raising awareness of C1-inhibitor deficiencies around the world. We strive to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies, which will enable lifelong health for all patients – no matter where

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HAEI - International Patient Organization for C1 Inhibitor Deficiencies

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HAEI - International Patient Organization for C1 Inhibitor Deficiencies

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HAEi – International Patient Organization for C1 Inhibitor Deficiencies – International Patient Organization for C1 Inhibitor Deficiencies | haei.org Reviews

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HAEi is the international umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups. HAEi is dedicated to raising awareness of C1-inhibitor deficiencies around the world. We strive to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies, which will enable lifelong health for all patients – no matter where

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HAEi – International Patient Organization for C1 Inhibitor Deficiencies – International Patient Organization for C1 Inhibitor Deficiencies | haei.org Reviews

https://haei.org

HAEi is the international umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups. HAEi is dedicated to raising awareness of C1-inhibitor deficiencies around the world. We strive to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies, which will enable lifelong health for all patients – no matter where

INTERNAL PAGES

haei.org

1

HAEi Global Access ProgramHAEi – International Patient Organization for C1 Inhibitor Deficiencies

http://haei.org/hae/global_access_program

HAEi Global Access Program HAEi – International Patient Organization for C1 Inhibitor Deficiencies. How can HAE be treated? News & Events. Sign up for newsletter. HAEi Global Access Program. HAEi Global Access Program. Guidelines and Consensus documents. HAEi Global Access Program. HAEi Global Access Program. HAEi Global Access Program is now live! HAEi Global Access Program is now live! HAEi is proud to announce that the HAEi Global Access Program (HAEi GAP) now is live. The HAEi GAP program enables pat...

2

Social mediaHAEi – International Patient Organization for C1 Inhibitor Deficiencies

http://haei.org/resources/advise/social-media

Social media HAEi – International Patient Organization for C1 Inhibitor Deficiencies. How can HAE be treated? News & Events. Sign up for newsletter. HAEi Global Access Program. HAEi Global Access Program. Guidelines and Consensus documents. Naturally you will find HAEi on the most common social media. Join the HAEi community on Facebook. Share your story, your questions or your concerns and get inspiration and support from fellow patients and others with interest in HAE. Check us out on Facebook here.

3

How can HAE be treated?HAEi – International Patient Organization for C1 Inhibitor Deficiencies

http://haei.org/hae/how-can-hae-be-treated

How can HAE be treated? HAEi – International Patient Organization for C1 Inhibitor Deficiencies. How can HAE be treated? News & Events. Sign up for newsletter. HAEi Global Access Program. HAEi Global Access Program. Guidelines and Consensus documents. How can HAE be treated? How can HAE be treated? Until now, there is neither a cure for patients who suffer from HAE attacks nor a therapeutic concept to prevent these attacks completely. The aim of acute treatment is to halt the progression of the edema and...

4

Patient storiesHAEi – International Patient Organization for C1 Inhibitor Deficiencies

http://haei.org/resources/advise/patientstories

Patient stories HAEi – International Patient Organization for C1 Inhibitor Deficiencies. How can HAE be treated? News & Events. Sign up for newsletter. HAEi Global Access Program. HAEi Global Access Program. Guidelines and Consensus documents. Bosmat Friedenreich-Wertzberger, Israel (1974). Bosmat Friedenreich-Wertzberger, Israel (1974). Benedikte Hellevik, Norway (1974-2016). Benedikte Hellevik, Norway (1974-2016). Viktar Lebedz, Belarus (1979). Viktar Lebedz, Belarus (1979). Viktar Lebedz has been suff...

5

Dyax and US HAEA Launch Essay ContestHAEi – International Patient Organization for C1 Inhibitor Deficiencies

http://haei.org/es

Dyax and US HAEA Launch Essay Contest HAEi – International Patient Organization for C1 Inhibitor Deficiencies. How can HAE be treated? News & Events. Sign up for newsletter. HAEi Global Access Program. HAEi Global Access Program. Guidelines and Consensus documents. Dyax and US HAEA Launch Essay Contest. Dyax and US HAEA Launch Essay Contest. To mark the fourth annual hae day :-). Dyax Corp. and the HAEA today announced the launch of the HAE Hope Essay Contest. Or 2) I have HAE, HAE does not have me.

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hereditary-angioedema.org

Наследственный ангиоотек (ангионевротический отек) :: Обзор лекарственных препаратов для лечения острых приступов Наследственного Ангиоотёка

http://www.hereditary-angioedema.org/hae-articles/70-hae-medication-review

Пропустить и перейти к материалам. Пропустить и перейти к главной навигации. Пропустить и перейти к первому столбцу. Пропустить и перейти ко второму столбцу. Недостаточность C1-ингибитора - наследственный ангиоотек (НАО). Наследственный ангионевротический отек (НАО) : Hereditary Angioedema (HAE). Обзор лекарственных препаратов для лечения острых приступов Наследственного Ангиоотёка. Обзор лекарственных препаратов для лечения острых приступов Наследственного Ангиоотёка. Http:/ www.haei.org/? P O Box 61501.

aliasali.de

cure together « Ali Gezginoglu – Online Producer. Beratung, Konzept, Kreation, Technik.

http://www.aliasali.de/tag/cure-together

Online Producer / Webdesigner. Beratung, Konzept, Kreation, Technik. Komplette oder partielle Abwicklung von Web- und App-Projekten für Agenturen, Unternehmen, Organisationen, Geschäftsleute, Start-ups. 8217; getaggte Artikel. HAEi Teil 1 – Projektmanagement für Werbeagentur Lühmann, Hamburg. HAEi International Patient Organization for C1 Inhibitor Deficiencies. Beendet ist die erste Phase der neuen Website der HAE-Dachorganisation. HAE steht für Hederitäres Angioödem und ist eine seltene Krankheit v...

hae-info.jp

HAE情報センター｜HAE情報センターサイトマップ

http://www.hae-info.jp/OtoiawaseForm.aspx

berinet.at

BeriNet - Initiative zur Diagnose und Therapie des hereditären Angioödems - Links

http://www.berinet.at/links.html

Wissenswertes für den Arzt. Infos für Betroffene. HAE in Social Media. Ouml;sterreichische Selbsthilfegruppe für H. HAE - OnlineDeutschland e.V.

haeuk.org

HAE UK: Links & resources

http://www.haeuk.org/links-resources

HAE UK is an Association of HAE Patients, working together to improve the situation for all HAE Patients in the UK. Children & young people. Travel & insurance. Getting a second opinion. Employment & benefits. Advice & support. Links & resources. News & events. Fundraising for HAE UK. Links & resources. You can download a copy of the patient booklet here. If you would like a printed copy please e-mail: support@haeuk.org and we will be happy to send one to you. Download the HAE UK weekly attack diary sheet.

hae-info.jp

遺伝性血管性浮腫　HAE情報センター

http://www.hae-info.jp/sitemap.html

hae-info.jp

HAE情報センターについて | 遺伝性血管性浮腫　HAE情報センター

http://www.hae-info.jp/infocenter.html

angioedemaereditario.org

AAEE | Centro di riferimento AAEE a Torino

http://www.angioedemaereditario.org/Centro

Centro di riferimento AAEE a Torino. Carissimi associati e amici,. Con la presente vi informiamo che a Torino presso l’ospedale Mauriziano entrerà in funzione un centro di riferimento che svolgerà attività di ambulatorio per i pazienti affetti da Angioedema ereditario e altre forme di Angioedema. Sperando di avere fatto cosa gradita a quanti di voi avevano richiesto la possibilità di avere un riferimento a Torino, vi invitiamo a contattarci per dare inizio a questa nuova attività e dare la possibilità al...

haenet.hu

H A E N E T

http://www.haenet.hu/hu/hanorolbetegeknek.html

Megkönnyebbülést jelent számunkra, hogy nem vagyunk csodabogarak, sem képzelt betegek. Új fejezet kezdődött az életemben. Egyszerűen szédülök a lehetőségtől, hogy majdnem teljesen szabadon mozoghatok, nem kell magyarázkodnom. A ma biztonságáért meg kellett küzdeni. Szemelvények a betegek naplóiból). Kérdések, válaszok a HANO-ról. Miért nevezik herediternek a betegséget? Mi okozza a HANO-t? Mi okozza a HANO-s rohamot? Milyen életkorban kezdõdnek a HANO-s tünetek? Milyen hosszan tart a roham? A belekben ki...

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The domain name HAEI.COM is for sale. Get On The Web Limited some years ago registered for its websites, portals and client projects a number of generic domain names (including this one), which are now no longer required. We are offering for sale the domain name HAEI.COM. If you are interested in the 4-letter acronym HAEI and would like to purchase the domain name HAEI.COM please complete this offer form. Why choose a 4-letter acronym like HAEI for your business?

haei.org

HAEi – International Patient Organization for C1 Inhibitor Deficiencies – International Patient Organization for C1 Inhibitor Deficiencies

How can HAE be treated? News & Events. Sign up for news. HAE Global Conference 2018. HAEi Youngster’s Summer Camp 2017. HAEi Global Access Program. HAEi Global Access Program. Guidelines and Consensus documents. In Vienna we set the scene. Take control of your HAE. TAKE ME TO THE CONFERENCE PAGE. You are not alone! Let me join the HAEi family. Plan a safe trip with the HAEi world map. TAKE ME TO THE MAP NOW! Six hour drive from any major hospital. This gives you a whole new perspective on life. HAE Austr...

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Allmänheten - HAE i Fokus

På den här webbplatsen ges information till allmänheten och till patienter och familjer som drabbats av hereditärt angioödem (HAE). HAE är en sällsynt genetisk sjukdom som orsakas av en ärftlig defekt i eller brist på ett visst protein i kroppen, kallat C1-INH (C1-esterashämmare). Läs mer om sjukdomen. Förekomsten, varaktigheten, svårigheten och. Varningssignaler på att ett anfall är på gång. Kirurgi, sjukdom, tandläkaringrepp, insektsbett, infektioner, överansträngning, känslomässig stress såsom ångest,...