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Harvey's Journal: The Story of an Elective Cord Blood Stem Cell Transplant

The Story of an Elective Cord Blood Stem Cell Transplant. Welcome to Harvey’s Journal. Posted on July 22nd, 2008. This is the journal of Harvey , a chronic lymphocytic leukemia (CLL) patient, as he went through a. Umbilical cord blood stem cell transplant at the University of Minnesota. If you are a new reader to this journal, you may want to read earlier installments. Of Harvey’s story on the CLL Topics website. I am told there is an uncanny resemblance between Harvey and my husband PC! 2008-04-04 A Day...

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Harvey's Journal: The Story of an Elective Cord Blood Stem Cell Transplant | journal.clltopics.org Reviews

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The Story of an Elective Cord Blood Stem Cell Transplant. Welcome to Harvey’s Journal. Posted on July 22nd, 2008. This is the journal of Harvey , a chronic lymphocytic leukemia (CLL) patient, as he went through a. Umbilical cord blood stem cell transplant at the University of Minnesota. If you are a new reader to this journal, you may want to read earlier installments. Of Harvey’s story on the CLL Topics website. I am told there is an uncanny resemblance between Harvey and my husband PC! 2008-04-04 A Day...

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Harvey's Journal: The Story of an Elective Cord Blood Stem Cell Transplant | journal.clltopics.org Reviews

https://journal.clltopics.org

The Story of an Elective Cord Blood Stem Cell Transplant. Welcome to Harvey’s Journal. Posted on July 22nd, 2008. This is the journal of Harvey , a chronic lymphocytic leukemia (CLL) patient, as he went through a. Umbilical cord blood stem cell transplant at the University of Minnesota. If you are a new reader to this journal, you may want to read earlier installments. Of Harvey’s story on the CLL Topics website. I am told there is an uncanny resemblance between Harvey and my husband PC! 2008-04-04 A Day...

INTERNAL PAGES

journal.clltopics.org

1

» A Different Kind of Watch & Wait Harvey's Journal: The Story of an Elective Cord Blood Stem Cell Transplant

http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait

The Story of an Elective Cord Blood Stem Cell Transplant. A Different Kind of Watch & Wait. Posted on April 2nd, 2008. Waiting for Signs of Life. Most of us who have dealt with CLL for any length of time know all too well that most infamous acronym, W&W. Some call it “Watch and Wait”, but most of us call it Watch and Worry. Patients are given G-CSF (Granulocyte Colony Stimulating Factor, brand name “Neupogen”) every night starting Day Zero in an effort to encourage the new immune system to st...After all...

2

» Making Therapy Decisions With Eyes Wide Open Harvey's Journal: The Story of an Elective Cord Blood Stem Cell Transplant

http://www.journal.clltopics.org/2008/03/06/making-therapy-decisions-with-eyes-wide-open

The Story of an Elective Cord Blood Stem Cell Transplant. Making Therapy Decisions With Eyes Wide Open. Posted on March 6th, 2008. Hope and Reality Check. That is the million dollar question and I certainly do not claim to have cornered the market on wisdom. Best I can do is give you my two cents, free of charge of course, which makes it the best deal you are going to get today. Time frames are important. On results of early phase clinical trial “ gene therapy. 8221; at UCSD was published in ‘Blood...

3

» Bring On the Heavy Guns Harvey's Journal: The Story of an Elective Cord Blood Stem Cell Transplant

http://www.journal.clltopics.org/2008/03/22/bring-on-the-heavy-guns

The Story of an Elective Cord Blood Stem Cell Transplant. Bring On the Heavy Guns. Posted on March 22nd, 2008. Believe It Or Not,. Is the Kinder / Gentler Version. The Minneapolis preconditioning protocol has three drug components that are the mainstay of their preconditioning protocol:. And, for a select few, they also add ATG. Getting Ready, the Night Before. 500 mg of levaquin (broad spectrum anti-bacterial). 640 mg of acyclovir (anti-viral). And 300 mg of ursodiol (drug to protect the liver). From on...

4

» A Day in the Transplant Ward Harvey's Journal: The Story of an Elective Cord Blood Stem Cell Transplant

http://www.journal.clltopics.org/2008/04/04/a-day-in-the-transplant-ward

The Story of an Elective Cord Blood Stem Cell Transplant. A Day in the Transplant Ward. Posted on April 4th, 2008. Do Gold Fish Remember Day-to-Day? Harvey is doing great! T-cells would cause me concern about the potential for the graft getting killed by the host immune system. On Day 21 they will do a bone marrow biopsy and they will test the aspirate (as well as blood) for “ chimerism. If a transplant is in your future, it is very important that you get religion when it comes to oral and dental hygiene.

5

» An Introduction to this Journal Harvey's Journal: The Story of an Elective Cord Blood Stem Cell Transplant

http://www.journal.clltopics.org/2008/02/25/17

The Story of an Elective Cord Blood Stem Cell Transplant. An Introduction to this Journal. Posted on February 25th, 2008. This journal records the story of Harvey as he goes through an umbilical cord blood. Stem cell transplant that he hopes will get the CLL monkey off his back once and forever. If you are a new reader to this journal, you may want to read earlier installments. Of this story by visiting our website www.clltopics.org. For the long haul. Frankly, the only demonstrable cure for CLL. Getting...

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clldiary.blogspot.com

CLL Diary: Red cell rebound

http://clldiary.blogspot.com/2013/01/red-cell-rebound.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Thursday, January 03, 2013. I knew I was feeling more energetic recently when, after going up and down the stairs moving a dozen cardboard boxes, I didn't feel especially winded. Contrast this with not all that long ago, when just getting myself up the 14 steps was challenge enough. I'll also ask him about possible maintenance treatments and/or treatments at relapse, including what may be available in clinical...

clldiary.blogspot.com

CLL Diary: Bendamustine and rituximab: the verdict

http://clldiary.blogspot.com/2013/03/bendamustine-and-rituximab-verdict.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, March 17, 2013. Bendamustine and rituximab: the verdict. The results are in. After five cycles of bendamustine (Treanda) and rituximab, which ended in mid-November, I can report that the treatment worked better than I expected. I have to admit that I just about fell out of my chair upon hearing the news. I was hoping, at best, for maybe 20% CLL in the marrow, a significant reduction, to be sure&#46...

clldiary.blogspot.com

CLL Diary: April nightmare; May resolve

http://clldiary.blogspot.com/2013/06/april-nightmare-may-resolve-part-1.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, June 02, 2013. April nightmare; May resolve. When last I wrote. Things were looking pretty good. I had gotten a better-than-expected result from bendamustine and rituximab. I was planning on seeing expert Dr. Thomas Kipps at UC San Diego on April 25 to discuss maintenance ideas or what to do at relapse; perhaps one of the BTK inhibitor trials would be a possibility. Now, for those who don't know. A dro...

clldiary.blogspot.com

CLL Diary: The road ahead

http://clldiary.blogspot.com/2014/02/the-road-ahead.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Thursday, February 13, 2014. I've met with my transplant/CLL doctor, Jose Leis, at the Mayo Clinic in Phoenix. He was pleased with my response to Ibrutinib - dramatic shrinkage of abdominal nodes - and laid out the course I will be following in the coming months. And get those nodes down. Meanwhile, a donor has been found. Somewhere out there is a man in his 40s. With most varieties of CLL, time is not of the ...

clldiary.blogspot.com

CLL Diary

http://clldiary.blogspot.com/2014/04/my-beloved-soulmate-david-died-on-march.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Friday, April 04, 2014. My beloved soulmate, David, died on March 6. I'll post details when I'm emotionally able. Carolina Creations - Jan and Michael Francoeur. Oh Marilyn we are so sorry. April 4, 2014 at 6:50:00 PM MST. May he rest in peace. April 4, 2014 at 7:20:00 PM MST. April 5, 2014 at 5:28:00 AM MST. Skin Plus plastic surgery facility and consult with an experienced breast lift delhi. Dear Marilyn ,.

clldiary.blogspot.com

CLL Diary: August 2013

http://clldiary.blogspot.com/2013_08_01_archive.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, August 25, 2013. The cancer survivors park. Marilyn and I ran across a sculpture garden devoted to cancer survivors in a park near downtown Santa Rosa, California. It's properly known as the Richard and Annette Bloch Cancer Survivors Plaza at Fremont Park. Was an unexpected pleasure and an inspirational place. Links to this post. Subscribe to: Posts (Atom). ME AND MY DIARY. And so, my life has changed&...

clldiary.blogspot.com

CLL Diary: I'm finally not feeling like crap

http://clldiary.blogspot.com/2013/07/im-finally-not-feeling-like-crap.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Wednesday, July 17, 2013. I'm finally not feeling like crap. Greetings from the cancer ward. During the weeks prior to treatment, as my belly grew, pain grew with it. The burgeoning tumors put stress on my lower back, pushing against nerves there. This required that I sleep sitting up in a chair, and even then it took oxycodone to be pain-free. Laying on my back was an invitation to torture. I could have put u...

updates.clltopics.org

CLL Topics Updates » Au revoir, not good-bye.

http://updates.clltopics.org/4751-au-revoir-not-good-bye

Au revoir, not good-bye. October 6th, 2012. I have been doing this for so long, I can barely remember the person I was before I started writing about CLL, back in 2002. It has been a pretty wild ride! I would like to think. This is just a “so long” and not a “good-bye”. Before you freak out, I want to make sure you understand we are. Not (repeat, not). Shutting down the websites. And Harvey’s Journal. Websites will continue to be hosted and available. You know who you are! You are not just “members...

updates.clltopics.org

CLL Topics Updates » Time to say good-bye

http://updates.clltopics.org/4874-time-to-say-good-bye

Time to say good-bye. June 23rd, 2013. All things come to an end. My “sabbatical” has ended, it has now become full fledged retirement. Today is a particularly poignant day for me to say my farewells to all of you. It has been exactly five years since my husband PC died. I have tried to document his transplant journey. For those of you who might find it interesting or helpful in your own future travels. Several months ago I read a book titled Year of magical thinking. One of my reasons for walking away f...

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Harvey's Journal: The Story of an Elective Cord Blood Stem Cell Transplant

The Story of an Elective Cord Blood Stem Cell Transplant. Welcome to Harvey’s Journal. Posted on July 22nd, 2008. This is the journal of Harvey , a chronic lymphocytic leukemia (CLL) patient, as he went through a. Umbilical cord blood stem cell transplant at the University of Minnesota. If you are a new reader to this journal, you may want to read earlier installments. Of Harvey’s story on the CLL Topics website. I am told there is an uncanny resemblance between Harvey and my husband PC! 2008-04-04 A Day...

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