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CLL Topics Updates: Dedicated to the Fight Against Chronic Lymphocytic Leukemia

Dedicated to the Fight Against Chronic Lymphocytic Leukemia

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CLL Topics Updates: Dedicated to the Fight Against Chronic Lymphocytic Leukemia | updates.clltopics.org Reviews

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CLL Topics Updates » Newly Diagnosed?

http://updates.clltopics.org/newly-diagnosed

A good place to start reading is A CLL Primer. CLL diagnosis can be a time of emotional stress and confusion. You are told this is a “good cancer”, and at the same time that it is an “incurable cancer”. It pays to get your bearings straight before you do much of anything else. CLL comes in many flavors. You can hope to be one of the lucky ones with an indolent “smoldering” variety, or you could be looking at a much more aggressive version. Which is your risk bucket? What Type of CLL Do You Have? Skin can...

2

CLL Topics Updates » End of Chemotherapy in Our Lifetime?

http://updates.clltopics.org/4544-end-of-chemotherapy-in-our-lifetime

End of Chemotherapy in Our Lifetime? June 20th, 2012. Breakthroughs in T-cell therapy. Some of you may have read about the University of Pennsylvania researchers treating a very small number of CLL patients with very advanced disease, using a novel T-cell therapy. All of the lay-press carried reports of this new development and for a change the hype was almost justified. We reported on it as well in an earlier article. Limitations of conventional chemotherapy. You have probably heard of another T-cell ba...

3

CLL Topics Updates » Latest Comments

http://updates.clltopics.org/latest-comments

Time to say good-bye. End of Chemotherapy in Our Lifetime? Notes from a Richter’s Transformation Survivor. Compassionate use access programs. Au revoir, not good-bye. CAL-101: Phase 3 Trial in Combination With Rituxan. Complete Blood Counts: Red Blood Cells. Mini-Allo Stem Cell Transplants: Who Should Get Them? Bendamustine Rituxan: better than FCR? Chemoprevention" Approach to High Risk CLL. News you can use. Does Positive Thinking Influence Cancer Outcome? Doc, How Long Do I Have? FC versus FC R. Neupo...

4

CLL Topics Updates » Kinase Inhibitors

http://updates.clltopics.org/kinase-inhibitors

Kinase Inhibitors to Watch. Inases are extremely important enzymes that control much of how the cells in our body function. Mutations, deletions or mangling of the structure of a regulatory kinase can play havoc with the particular protein and the cell function it is supposed to control. Most if not all human cancers are thought to be caused by one or more malfunctioning kinases. PCI-32765. Are two targeted, designer-made oral drugs currently in clinical trials. CAL-101: Update at ASH-2010.

5

CLL Topics Updates » PCI-32765 (ibrutinib): What We Know Thus Far

http://updates.clltopics.org/4606-pci-32765-ibrutinib-what-we-know-thus-far

PCI-32765 (ibrutinib): What We Know Thus Far. July 7th, 2012. There were three papers on PCI-32765. You might as well start getting familiar with it). After discussing the three abstracts, I decided to write a longish editorial section. On stuff I am hearing as anecdotal stories from members. Since some of my concerns arising out of member feedback are not based on official clinical trial results. These are best discussed in an editorial section. Single agent PCI-32765 in chemo naive patients. I would de...

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CLL Diary: Red cell rebound

http://clldiary.blogspot.com/2013/01/red-cell-rebound.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Thursday, January 03, 2013. I knew I was feeling more energetic recently when, after going up and down the stairs moving a dozen cardboard boxes, I didn't feel especially winded. Contrast this with not all that long ago, when just getting myself up the 14 steps was challenge enough. I'll also ask him about possible maintenance treatments and/or treatments at relapse, including what may be available in clinical...

clldiary.blogspot.com clldiary.blogspot.com

CLL Diary: Bendamustine and rituximab: the verdict

http://clldiary.blogspot.com/2013/03/bendamustine-and-rituximab-verdict.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, March 17, 2013. Bendamustine and rituximab: the verdict. The results are in. After five cycles of bendamustine (Treanda) and rituximab, which ended in mid-November, I can report that the treatment worked better than I expected. I have to admit that I just about fell out of my chair upon hearing the news. I was hoping, at best, for maybe 20% CLL in the marrow, a significant reduction, to be sure&#46...

clldiary.blogspot.com clldiary.blogspot.com

CLL Diary: April nightmare; May resolve

http://clldiary.blogspot.com/2013/06/april-nightmare-may-resolve-part-1.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, June 02, 2013. April nightmare; May resolve. When last I wrote. Things were looking pretty good. I had gotten a better-than-expected result from bendamustine and rituximab. I was planning on seeing expert Dr. Thomas Kipps at UC San Diego on April 25 to discuss maintenance ideas or what to do at relapse; perhaps one of the BTK inhibitor trials would be a possibility. Now, for those who don't know. A dro...

clldiary.blogspot.com clldiary.blogspot.com

CLL Diary: The road ahead

http://clldiary.blogspot.com/2014/02/the-road-ahead.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Thursday, February 13, 2014. I've met with my transplant/CLL doctor, Jose Leis, at the Mayo Clinic in Phoenix. He was pleased with my response to Ibrutinib - dramatic shrinkage of abdominal nodes - and laid out the course I will be following in the coming months. And get those nodes down. Meanwhile, a donor has been found. Somewhere out there is a man in his 40s. With most varieties of CLL, time is not of the ...

clldiary.blogspot.com clldiary.blogspot.com

CLL Diary

http://clldiary.blogspot.com/2014/04/my-beloved-soulmate-david-died-on-march.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Friday, April 04, 2014. My beloved soulmate, David, died on March 6. I'll post details when I'm emotionally able. Carolina Creations - Jan and Michael Francoeur. Oh Marilyn we are so sorry. April 4, 2014 at 6:50:00 PM MST. May he rest in peace. April 4, 2014 at 7:20:00 PM MST. April 5, 2014 at 5:28:00 AM MST. Skin Plus plastic surgery facility and consult with an experienced breast lift delhi. Dear Marilyn ,.

clldiary.blogspot.com clldiary.blogspot.com

CLL Diary: August 2013

http://clldiary.blogspot.com/2013_08_01_archive.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, August 25, 2013. The cancer survivors park. Marilyn and I ran across a sculpture garden devoted to cancer survivors in a park near downtown Santa Rosa, California. It's properly known as the Richard and Annette Bloch Cancer Survivors Plaza at Fremont Park. Was an unexpected pleasure and an inspirational place. Links to this post. Subscribe to: Posts (Atom). ME AND MY DIARY. And so, my life has changed&...

clldiary.blogspot.com clldiary.blogspot.com

CLL Diary: I'm finally not feeling like crap

http://clldiary.blogspot.com/2013/07/im-finally-not-feeling-like-crap.html

LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Wednesday, July 17, 2013. I'm finally not feeling like crap. Greetings from the cancer ward. During the weeks prior to treatment, as my belly grew, pain grew with it. The burgeoning tumors put stress on my lower back, pushing against nerves there. This required that I sleep sitting up in a chair, and even then it took oxycodone to be pain-free. Laying on my back was an invitation to torture. I could have put u...

lymphomaniac-musings.blogspot.com lymphomaniac-musings.blogspot.com

Musings of a Lymphomaniac...: Game on! A fork in the road of my SLL/CLL journey...

http://lymphomaniac-musings.blogspot.com/2013/02/game-on-fork-in-road-of-my-sllcll.html

Musings of a Lymphomaniac. My Journey with Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma. Friday, February 1, 2013. A fork in the road of my SLL/CLL journey. Example - Not My Toe :-). No, lets face it, as a middle-aged male of northern-European ancestry with fair skin, light eyes, numerous freckles, irregular moles; and topped off with SLL/CLL, I fear that if you look up the definition of "skin cancer" in a dictionary you'll find my photo! The main event for the day was my quarterly appointment...

lymphomaniac-musings.blogspot.com lymphomaniac-musings.blogspot.com

Musings of a Lymphomaniac...: 5/23/10 - 5/30/10

http://lymphomaniac-musings.blogspot.com/2010_05_23_archive.html

Musings of a Lymphomaniac. My Journey with Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma. Wednesday, May 26, 2010. The beginning of a new phase. Well, you may ask, how are you doing? My smart-ass response nowadays is "I still have a pulse"! Actually, I'm doing pretty well. Today was the first regular "check-up" appointment with my best friend the Oncologist; the beginning of the next phase in my "life with Lymphoma". What does the future hold? If you find out anything, let me know! National Ins...

lymphomaniac-musings.blogspot.com lymphomaniac-musings.blogspot.com

Musings of a Lymphomaniac...: "As Good as it Gets..."

http://lymphomaniac-musings.blogspot.com/2014/10/as-good-as-it-gets.html

Musings of a Lymphomaniac. My Journey with Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma. Thursday, October 30, 2014. As Good as it Gets.". Today I was reminded of a statement made to me by Dr. Kaplan nearly four years ago when I first transferred the care and feeding of my CLL/SLL to his clinic at UCSF - "You will never be any better than you are today". Kind of an ominous statement, but very true when heard in the context of living with CLL/SLL. Subscribe to: Post Comments (Atom).

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The email subscription service has been removed/suspended due to a glitch at FeedBurner which effectively stopped it working. Twitter. And remain the best way of keeping up with what's going on. I don't have enough time at the moment to actively add content to the site beyond News articles. Sorry about that. Page updated at long last (sorry Rachel). 1979 industrial face mask. Labels: Central Station Design. An unknown glitch seems to have crept into our news template at some point. It's now fixed but...

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CLL Topics Updates: Dedicated to the Fight Against Chronic Lymphocytic Leukemia

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