joyinthejourney-anopenbook.blogspot.com
Joy In the JourneyLife with Faith-Family- and Rare Disease
http://joyinthejourney-anopenbook.blogspot.com/
Life with Faith-Family- and Rare Disease
http://joyinthejourney-anopenbook.blogspot.com/
TODAY'S RATING
>1,000,000
Date Range
HIGHEST TRAFFIC ON
Sunday
LOAD TIME
0.8 seconds
16x16
32x32
PAGES IN
THIS WEBSITE
15
SSL
EXTERNAL LINKS
34
SITE IP
172.217.9.225
LOAD TIME
0.75 sec
SCORE
6.2
Joy In the Journey | joyinthejourney-anopenbook.blogspot.com Reviews
https://joyinthejourney-anopenbook.blogspot.com
Life with Faith-Family- and Rare Disease
joyinthejourney-anopenbook.blogspot.com
Joy In the Journey: July 2011
http://joyinthejourney-anopenbook.blogspot.com/2011_07_01_archive.html
Joy In the Journey. Life with Faith-Family- and Rare Disease. Tuesday, July 19, 2011. Why don't we ask for help? Stand, believe, support. Sometimes we need a doctor to help us to get our head around what is happening if we neglect us. I hid in him and neglected me in my storm, while waiting on God to move, to help and show up as I needed him. Hebrews 14:14-16 -The message: The High Priest Who Cried Out in Pain:. In the help needed hour, there is restoration, redemption, and "real support" if we ask.
Joy In the Journey: February 2011
http://joyinthejourney-anopenbook.blogspot.com/2011_02_01_archive.html
Joy In the Journey. Life with Faith-Family- and Rare Disease. Monday, February 7, 2011. We run yellow lights most days. Right? He is reading chart as I am explaining his rare disease. He speaks out loud while reading and listening to me. “He has Russell Silver- woo that changes everything.”. FINALLY someone with a LITTLE bit of experience. The next 35 minutes hold a call to pediatric Dr, pulling up x-rays and a WAIT and HOLD… Caution ahead. A very welcomed yellow light for this mom. Coffee On The Dock.
Joy In the Journey: February 2012
http://joyinthejourney-anopenbook.blogspot.com/2012_02_01_archive.html
Joy In the Journey. Life with Faith-Family- and Rare Disease. Friday, February 10, 2012. Partnering in the Growing. And is going on her first mission trip in July. We have many common people who cross over our lives. Subscribe to: Posts (Atom). Partnering in the Growing. Coffee On The Dock. Eleanor Rose's Birth Story. News Update Steroid-based Treatment May. Confessions of a Reluctant Housewife. And, it’s official. There is a River. These Farmhouse Bookshelves (And The Ministry Of Flowers).
Joy In the Journey: March 2014
http://joyinthejourney-anopenbook.blogspot.com/2014_03_01_archive.html
Joy In the Journey. Life with Faith-Family- and Rare Disease. Thursday, March 27, 2014. The daily world, trials, broken dreams, disappointment, pushes to the side away from our sight something important: We have a hope in him. one we can count on, believe in, and TRUST. Don't let the present pull you down. Grab a hold of this and live fully in the day! He IS working on our behalf-. God can do anything, you know—far more than you could ever imagine or guess or request in your wildest dreams!
Joy In the Journey: Amazed, Blown away and Grateful.
http://joyinthejourney-anopenbook.blogspot.com/2013/01/amazed-blown-away-and-grateful.html
Joy In the Journey. Life with Faith-Family- and Rare Disease. Friday, January 4, 2013. Amazed, Blown away and Grateful. We have had several family needs for some time. Both Bowen and I needing new cars was at the top of the list. We have been contently (some days). Waiting for the blessing. provision, deal, and clarity on what to do and not do. Some day in weariness I would feel deserted- Where are you God? He did not have AC for a year while driving that car. S o we were at a cross roads. Could we trade...
TOTAL PAGES IN THIS WEBSITE
15
News Update MAST ANNOUNCES PLANS for DEV | Russell-Silver Syndrome
https://rssadvocate.wordpress.com/2014/12/09/news-update-mast-announces-plans-for-dev
About Advocacy and Me. Published Journals / Education. What is Russell-Silver Syndrome. We Grow… In Our Own Time. News Update MAST ANNOUNCES PLANS for DEV. December 9, 2014. News Update MAST ANNOUNCES PLANS for DEVELOPMENT of VEPOLOXAMER (MST-188) in HEART FAILURE http:/ ow.ly/2RPy6u. News Update Seattle Genetics Highlights. News Update Amicus Therapeutics to Submi. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public).
About Advocacy and Me | Russell-Silver Syndrome
https://rssadvocate.wordpress.com/about
About Advocacy and Me. Published Journals / Education. What is Russell-Silver Syndrome. We Grow… In Our Own Time. About Advocacy and Me. I’m an advocate…and always will be. When I was younger, my mother called me “difficult”. LOL It was my way or the highway! Certainly, I have had my share of experiences – and even as a young child – my willingness to put my neck out there for someone else, express my opinions without fear of retribution were the building blocks of the future. Although th...Your story is...
News Update Synageva BioPharma Announces | Russell-Silver Syndrome
https://rssadvocate.wordpress.com/2014/12/15/news-update-synageva-biopharma-announces
About Advocacy and Me. Published Journals / Education. What is Russell-Silver Syndrome. We Grow… In Our Own Time. News Update Synageva BioPharma Announces. December 15, 2014. News Update Synageva BioPharma Announces Active Investigational New Drug Application for SBC-103 for the Treatment of Mucopolysaccharidosis IIIB http:/ ow.ly/2S86vc. News Update Rare Syndrome Spurs Family’. News Update BerGenBio Completes NOK90 Mi. Leave a Reply Cancel reply. Enter your comment here. Address never made public).
What is Russell-Silver Syndrome | Russell-Silver Syndrome
https://rssadvocate.wordpress.com/what-is-russell-silver-syndrome
About Advocacy and Me. Published Journals / Education. What is Russell-Silver Syndrome. We Grow… In Our Own Time. What is Russell-Silver Syndrome. Russell-Silver Syndrome (RSS) is an undefined genetic form of primordial dwarfism. Although it affects approximately 1/75,000 – 1/100,000 births annually, until recently, diagnosis has primarily been made based on a combination of skeletal and crania-facial features. In addition to maternal uniparental disomy of chromosome 7, hypomethylation of the imprinting ...
News Update Steroid-based Treatment May | Russell-Silver Syndrome
https://rssadvocate.wordpress.com/2015/01/02/news-update-steroid-based-treatment-may
About Advocacy and Me. Published Journals / Education. What is Russell-Silver Syndrome. We Grow… In Our Own Time. News Update Steroid-based Treatment May. January 2, 2015. News Update Steroid-based Treatment May Answer Needs of Pediatric EoE Patients http:/ ow.ly/2SOAru. News Update Season Greetings – Season Gr. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your Google account. ( Log Out.
Published Journals / Education | Russell-Silver Syndrome
https://rssadvocate.wordpress.com/published-journals-educational-reading-russell-silver-syndrome
About Advocacy and Me. Published Journals / Education. What is Russell-Silver Syndrome. We Grow… In Our Own Time. Published Journals / Education. J Obstet Gynaecol Can. 2014 Jan;36(1):64-83. Pregnancy outcomes after assisted. The relative risk for an imprinting phenotype such as Silver-Russell syndrome. Is increased in the assisted. Reproduction population, but the actual risk for one of these phenotypes to occur in an assisted. Epigenetic anomalies in childhood growth disorders. In 5-10% of the patients...
News Update Mutations Prevent Programmed | Russell-Silver Syndrome
https://rssadvocate.wordpress.com/2014/12/19/news-update-mutations-prevent-programmed
About Advocacy and Me. Published Journals / Education. What is Russell-Silver Syndrome. We Grow… In Our Own Time. News Update Mutations Prevent Programmed. December 19, 2014. News Update Mutations Prevent Programmed Cell Death – New disease mechanism discovered in lymphoma. http:/ ow.ly/2SlQFB. News Update Orphan Receptor Proteins Del. News Update Season Greetings – Season Gr. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. RSS – People. Colora...
News Update Season Greetings – Season Gr | Russell-Silver Syndrome
https://rssadvocate.wordpress.com/2014/12/23/news-update-season-greetings-season-gr
About Advocacy and Me. Published Journals / Education. What is Russell-Silver Syndrome. We Grow… In Our Own Time. News Update Season Greetings – Season Gr. December 23, 2014. News Update Season Greetings – Season Greetings http:/ ow.ly/2SuPMe. News Update Mutations Prevent Programmed. News Update Steroid-based Treatment May. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Notify me of new comments via email. Follow B...
News Update Antibodies Discovery Could L | Russell-Silver Syndrome
https://rssadvocate.wordpress.com/2014/12/17/news-update-antibodies-discovery-could-l
About Advocacy and Me. Published Journals / Education. What is Russell-Silver Syndrome. We Grow… In Our Own Time. News Update Antibodies Discovery Could L. December 17, 2014. News Update Antibodies Discovery Could Lead to Universal Dengue Vaccine http:/ ow.ly/2SfuEj. News Update BerGenBio Completes NOK90 Mi. News Update Orphan Receptor Proteins Del. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). RSS – People. Colora...
News Update Orphan Receptor Proteins Del | Russell-Silver Syndrome
https://rssadvocate.wordpress.com/2014/12/18/news-update-orphan-receptor-proteins-del
About Advocacy and Me. Published Journals / Education. What is Russell-Silver Syndrome. We Grow… In Our Own Time. News Update Orphan Receptor Proteins Del. December 18, 2014. News Update Orphan Receptor Proteins Deliver 2 Knock-out Punches to Glioblastoma Cells http:/ ow.ly/2SiYaQ. News Update Antibodies Discovery Could L. News Update Mutations Prevent Programmed. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Color...
TOTAL LINKS TO THIS WEBSITE
34
There's Joy in the House | Internet television show oriented towards middle aged women.
There's Joy in the House. Internet television show oriented towards middle aged women. There’s Joy in Helping the Homeless. December 13, 2011. There’s Joy in Dog Training: Part II. October 28, 2011. There’s Joy in Dog Training: Part I. October 10, 2011. There’s Joy in Reading Hissy Fit. October 9, 2011. There’s Joy in Planning a Wedding. May 8, 2011. There’s Joy in Jazzercise for the Cure. April 8, 2011. Joy visits with Colleen Manji and Fran Lasher, who are Jazzercise instructors, regarding their effort...
Joy in the House of Prayer
In His Presence is fullness of joy". These I will bring to my holy mountain and give them joy in my house of prayer for my house will be called a house of prayer for all nations." Isaiah 56:7. Welcome to our website. Here you will find out about our ministry and the resources that we offer. We hope that you will consider either hosting or participating in a seminar or retreat. May God bless you with joy in his presence as you seek him in prayer! Bringing Joy in Personal Prayer. OPEN UP YOUR HEART.
Finding Joy in the Journey
Thursday, June 11, 2015. Out with the old and in with the new? Especially now with a new man on campus? Links to this post. Sunday, October 12, 2014. Links to this post. Wednesday, July 16, 2014. To my Mormon Daughters,. Hallie, Laila, and Charlotte,. Links to this post. Friday, July 11, 2014. Links to this post. Thursday, July 10, 2014. I'm in summer school. I've been in summer school now for two summers. I graduate from college in May. Yes this coming May. It feels surreal to say that. In light of all ...
joy in the journey | …It's a small world after all
Joy in the journey. 8230;It's a small world after all. February 20, 2015. Travel expo – Brisbane 2015. The Travel Expo is on again in Brisbane this weekend. Entry is free and a wealth of information and exclusive deals are assured. It was two years ago we decided to take the advertisers up on their claims and investigate for ourselves. Then there was the luxury tour area, the grey nomad focused travel, international and domestic cruises, adventure tours and backpacker oriented companies. We located the l...
joy in the journey | …It's a small world after all
Joy in the journey. 8230;It's a small world after all. February 20, 2015. Travel expo – Brisbane 2015. The Travel Expo is on again in Brisbane this weekend. Entry is free and a wealth of information and exclusive deals are assured. It was two years ago we decided to take the advertisers up on their claims and investigate for ourselves. Then there was the luxury tour area, the grey nomad focused travel, international and domestic cruises, adventure tours and backpacker oriented companies. We located the l...
joyinthejourney-anopenbook.blogspot.com
Joy In the Journey
Joy In the Journey. Life with Faith-Family- and Rare Disease. Thursday, March 27, 2014. The daily world, trials, broken dreams, disappointment, pushes to the side away from our sight something important: We have a hope in him. one we can count on, believe in, and TRUST. Don't let the present pull you down. Grab a hold of this and live fully in the day! He IS working on our behalf-. God can do anything, you know—far more than you could ever imagine or guess or request in your wildest dreams! Being content...
joyinthejourney-burgin.blogspot.com
Joy in the Journey
Joy in the Journey. Sunday, March 23, 2014. My birthday was at the beginning of February, and by that time of year, we needed a break from the routine so we decided to take a birthday trip to Great Wold Lodge in Charlotte. We've been twice before, but only stayed one night. This time, through a friend who works there, we were able to snag a great rate and decided to stay two nights. It was perfect as they also have four children, whose ages match up well to our kids. Here we are, all 12 of us! Staying a ...
joyinthejourney-jess.blogspot.com
Joy in the Journey
Joy in the Journey. Thursday, July 7, 2011. Ever since we have arrived back in Grenada after a two week trip to the states (which by the way, was WAY too short), I have been busy getting the nursery ready for little, miss? The top half of the closet, as you can see has a clothes rod, on which I hung all the cutsie, little dress, and the bottom half is where we store some large, ugly totes and so I used some of my excess curtain fabric (also from IKEA) and made little curtains to cover the ugliness. Here ...
joyinthejourney-karen.blogspot.com
Joy in the Journey
Wednesday, January 6, 2010. I've had sick kids off and on for a week and a half. It wasn't too bad with Tessa now with Lilly and Eli it's been a little hairy but there isn't puke so for that I am most thankful! He asked. "Sure." Not long after munching beside me for half an hour or so. "may I have wet cereal after my dry cereal? 160;So cute. . Tuesday, December 22, 2009. How many years have we waited to play "fun" games with our kids? Friday, December 18, 2009. Tuesday, December 15, 2009. I know God ...
joyinthejourney-lisa.blogspot.com
Joy in the journey
Joy in the journey. Joy in the journey! Friday, August 24, 2012. Joy in dark places.with a party hat. It was not the news I was expecting. In fact as I sat listening to the test results for my sweet Mamma, hearing that her cancer was no longer responding to the chemo, it was as if someone had placed a plastic bag over my head and I was suf. Focating. The house was quiet. Everyone was gone for the day and I listened to the silence. Is there a word to describe what I felt? We were cracking up! The news was...
joyinthejourney-mjg.blogspot.com
Joy in the Journey
Joy in the Journey. This Blog is being created to document our journeys.and to keep in touch with family and friends that are a great distance from us. We are thankful for this avenue of communicating over the miles. Friday, June 12, 2009. She is a good cook, although she tends to fry everything. Our meals mostly consist of a very good rice and something to put on top of it (ie. soup.) Also, cucumber and tomato salad is almost served daily. Saturday, May 16, 2009. A day in the mountains for N. Iraq.
