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Essays, observations and news about Charcot-Marie-Tooth
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The Power of a Post | mycmtworld
https://mycmtworld.wordpress.com/2011/09/26/the-power-of-a-post
Essays, observations and news about Charcot-Marie-Tooth. Laquo; When the MDA telethon hits home. The Power of a Post. September 26, 2011. I’d almost forgotten how healing it is to write. Blank journals are everywhere these days. Bookstores, gift shops, even the dollar store. In fact, I own a number of them myself. They are still blank. Purchased with every good intention after a particularly difficult time in life. But blank, nonetheless. I knew I would love writing, really. I am a writer. I kept...Writi...
A Dubious Anniversary | mycmtworld
https://mycmtworld.wordpress.com/2011/12/18/a-dubious-anniversary
Essays, observations and news about Charcot-Marie-Tooth. Laquo; The Power of a Post. December 18, 2011. As the year comes to a close I can’t believe it’s been three months since I’ve visited mycmtworld. So long overdue. But it’s an appropriate time for a post. It’s been almost a year since CMT really changed my world. It was exactly one year ago this week I had a sudden progression in nerve damage. These new AFOs are a lot more rigid. They’re called Allard Blue Rockers. I got rid of the shoes and freed u...
When the MDA telethon hits home | mycmtworld
https://mycmtworld.wordpress.com/2011/09/05/when-the-mda-telethon-hit-home
Essays, observations and news about Charcot-Marie-Tooth. Laquo; We interrupt this blog for an important announcement. The Power of a Post. When the MDA telethon hits home. September 5, 2011. I’ve always been aware of the MDA Telethon. Or the Jerry Lewis Telethon as it seemed until this year, anyway. Growing up, I’d watch the first few hours then I’d check in toward the end on Labor Day, wondering how in the world Jerry Lewis could stay awake for so long. This year. Nearly two years ago, I asked her about...
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emBRACING MY CMT: January 2013
http://embracingmycmt.blogspot.com/2013_01_01_archive.html
My name is Virginia. I have Charcot-Marie Tooth disorder. My vision is to spread awareness about this funny name disorder that is so common that not everyone has heard off. And since it is inherited, yes. My kids have it too. Hope you follow my journey. Wednesday, January 30, 2013. Trying new things and keep on moving/ Tratando cosas nuevas y seguir moviendo. I kept hearing that yoga is good for Charcot-MarieTooth as it helps in stretching your muscle and helps with balance. Wednesday, January 23, 2013.
mitofusin2projectblog.wordpress.com
Mitofusin 2 Project Blog – Pagina 2 – Talking about CMT2A
https://mitofusin2projectblog.wordpress.com/page/2
Mitofusin 2 Project Blog. ATTENTION PLEASE, CANCELLED SYMPOSIUM! Gene therapy for inherited neuromuscular disorders. PLEASE NOTE, for technical reason the symposium is postponed until further notice. We apologize for the inconvenience. THANK YOU. Clicca per condividere su Twitter (Si apre in una nuova finestra). Condividi su Facebook (Si apre in una nuova finestra). Clicca per condividere su Google (Si apre in una nuova finestra). Clicca per condividere su Pinterest (Si apre in una nuova finestra). Clicc...
emBRACING MY CMT: August 2013
http://embracingmycmt.blogspot.com/2013_08_01_archive.html
My name is Virginia. I have Charcot-Marie Tooth disorder. My vision is to spread awareness about this funny name disorder that is so common that not everyone has heard off. And since it is inherited, yes. My kids have it too. Hope you follow my journey. Wednesday, August 14, 2013. How I came to find Allard braces. I encourage anyone suffering from Foot Drop to look into this braces it will change your life as it has change my life. WWW.ALLARDUSA.COM. Subscribe to: Posts (Atom). View my complete profile.
emBRACING MY CMT: May 2013
http://embracingmycmt.blogspot.com/2013_05_01_archive.html
My name is Virginia. I have Charcot-Marie Tooth disorder. My vision is to spread awareness about this funny name disorder that is so common that not everyone has heard off. And since it is inherited, yes. My kids have it too. Hope you follow my journey. Monday, May 13, 2013. Gym bunny. Not yet. Well, hello there. Along with family issues, kids and an addition to the family. I am also busy adding other stuff to my daily schedule. Lets just say there is never a dull moment in my life. Saturday, May 11, 2013.
emBRACING MY CMT: Being away
http://embracingmycmt.blogspot.com/2013/04/being-away.html
My name is Virginia. I have Charcot-Marie Tooth disorder. My vision is to spread awareness about this funny name disorder that is so common that not everyone has heard off. And since it is inherited, yes. My kids have it too. Hope you follow my journey. Friday, April 12, 2013. Just wanted to apologize for being away this long. I have been working on a few things that have required my full attention. It seems like things are falling right into place and I am excited about all that is to come. Well, until ...
emBRACING MY CMT: February 2013
http://embracingmycmt.blogspot.com/2013_02_01_archive.html
My name is Virginia. I have Charcot-Marie Tooth disorder. My vision is to spread awareness about this funny name disorder that is so common that not everyone has heard off. And since it is inherited, yes. My kids have it too. Hope you follow my journey. Monday, February 18, 2013. So This is me. I finally decided to let you see me. But it's not all about how I look but to celebrate that I walked. Yes, walked my first 5k. let me tell you that it was such an amazing experience! Subscribe to: Posts (Atom).
emBRACING MY CMT: CMTA VIDEO in English and/y en (video en español)
http://embracingmycmt.blogspot.com/2013/11/getting-back-to-blogging.html
My name is Virginia. I have Charcot-Marie Tooth disorder. My vision is to spread awareness about this funny name disorder that is so common that not everyone has heard off. And since it is inherited, yes. My kids have it too. Hope you follow my journey. Wednesday, November 20, 2013. CMTA VIDEO in English and/y en (video en español). Getting back to blogging. So many stories to share but for today this will do. Http:/ www.reviewjournal.com/sports/marathon-perfect-vehicle-spread-uplifting-theme.
emBRACING MY CMT: "Mom, why does everything bad happens to me?"
http://embracingmycmt.blogspot.com/2013/09/mom-why-does-everything-bad-happens-to.html
My name is Virginia. I have Charcot-Marie Tooth disorder. My vision is to spread awareness about this funny name disorder that is so common that not everyone has heard off. And since it is inherited, yes. My kids have it too. Hope you follow my journey. Saturday, September 28, 2013. Mom, why does everything bad happens to me? Mom, why does all bad things happen to me? Words that I will never forget and will forever touch me deep down in my soul. How do you answer that question? View my complete profile.
emBRACING MY CMT: My disability doesn't bother me.
http://embracingmycmt.blogspot.com/2013/04/my-disability-doesn-bother-me.html
My name is Virginia. I have Charcot-Marie Tooth disorder. My vision is to spread awareness about this funny name disorder that is so common that not everyone has heard off. And since it is inherited, yes. My kids have it too. Hope you follow my journey. Sunday, April 14, 2013. My disability doesnt bother me. Why are people so uncomfortable staring at someone with leg braces? My disability doesn't bother me, I'm not sorry. I'm only sorry it bothers you. So please don't tell me that you feel sorry! Contemp...
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Find us on Facebook. What’s on TV? View Daily and weekly channel listings here. Find your favorite programs to watch! Set up your own Voicemail options, Call Forwarding and more by accessing the CM Portal. Access rates, services, installation information, channel line-ups and more here. User Guides and Forms. If you are having Internet or Email issues, please contact netINS Technical Support. Technical Support is available 24/7/365. 124; netINS Support. 114 W Jefferson St. Bloomfield, IA 52537.
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mycmtworld | Essays, observations and news about Charcot-Marie-Tooth
Essays, observations and news about Charcot-Marie-Tooth. December 18, 2011. As the year comes to a close I can’t believe it’s been three months since I’ve visited mycmtworld. So long overdue. But it’s an appropriate time for a post. It’s been almost a year since CMT really changed my world. It was exactly one year ago this week I had a sudden progression in nerve damage. These new AFOs are a lot more rigid. They’re called Allard Blue Rockers. Well, almost. What is it about the shoes? I got rid of the sho...
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If you have been suffering from pain don’t wait another second to begin your road to recovery! Pain relief and pain prevention are two of the reasons that chiropractic services have become so popular. At Community Chiropractic we want to help you move better, feel better, and live better. We believe that we are our best selves when we are experiencing good health! While many of us wish there was some sort of magic spell we could say to get and stay healthy, we also realize that getting and staying health...
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#myCMUlife - Stories of student life at Canadian Mennonite University
To post or not to post? January 11, 2017. As I go through my Facebook or Instagram feeds, I often come across posts which show that my contact had an amazing night or is having the worst day of their life. But whether it’s a picture at a party or a comment about home life, remember that whatever you put out there is there forever. Sometimes it feels easier to rant about something, knowing that your friends will agree and make you feel better (I do this all the time! If we think twice about what we post, ...
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