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Life in detailAchromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision)
http://nystagmusandcones.blogspot.com/
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision)
http://nystagmusandcones.blogspot.com/
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Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision)
nystagmusandcones.blogspot.com
Life in detail: February 2014
https://nystagmusandcones.blogspot.com/2014_02_01_archive.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 28 February 2014. Charlotte's first trip to the cinema was not a great success. I admit, I had high hopes. After reading a few adult Achromat comments about how they loved the movies, I was expecting that she would be enthralled by the size of the screen and the darkness of the surrounding room. I guess she just didn't like the movie. Friday, 21 February 2014. It does not refer t...
Life in detail: December 2013
https://nystagmusandcones.blogspot.com/2013_12_01_archive.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 6 December 2013. I have to share this. It is an transcript of interview with Charlotte where she has been asked her opinion about school. I can just imagine this conversation unfolding and. Her answers are so adorable! What I feel about my class. I like it because it is higher and closer to Year 1.". I like them because they are fun and they play games with me.". I can do this .
Life in detail: May 2013
https://nystagmusandcones.blogspot.com/2013_05_01_archive.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 24 May 2013. Charlotte has a new teaching assistant assigned to her. She will be there 4 days a week which is what the statement funding will cover. It will be great to see how she makes progress in the classroom with a bit of extra support. On a practical level, I briefed the new teacher by giving her a copy of the incredibly helpful Teachers Guide to Helping a Student with Achr...
Life in detail: February 2013
https://nystagmusandcones.blogspot.com/2013_02_01_archive.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Monday, 4 February 2013. I finally picked up Charlotte's new sunglasses from Moorfields. The only issue with them is that the lenses are much heavier than her plastic sunglasses. They slide off her face and I don't think she likes wearing them that much. Hopefully they will fit her a bit better as she grows. Subscribe to: Posts (Atom). London, United Kingdom. View my complete profile.
Life in detail: White Cane Assessment
https://nystagmusandcones.blogspot.com/2014/09/white-cane-assessment.html
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Wednesday, 17 September 2014. Charlotte has had an evaluation for a white cane. I set it up because I want her to have access to all the tools that she might need but I think I was also hoping that the verdict would be: "She's fine, she doesn't need a cane.". Not so, she does qualify. Will this make her less physically adventurous? What about riding a bike, or going for a run? But it was...
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ANN – American Nystagmus Network
To improve the quality of life for all persons and families affected by nystagmus, through organized community support, education and public awareness. The knowledge that I am truly not alone . Nystagmus is complex condition where the eyes move involuntary in a small, repeated back and forth motion. This makes it harder to see clearly. What is the American Nystagmus Network? I live not to cover up my flaws, but to express myself, to stand out, to make a difference. Join Our Mailing List. Join and receive...
Nystagmus - L'oeil d'une journaliste catholique dans le tourbillon de l'actu
Heurts interconfessionnels, mode d'emploi. Imaginons. Madame D. arrive aux urgences pour la douzième fois en trois mois. Et pour les mêmes raisons. Son mari l'a encore frappée. Cette fois, il a eu la main encore plus lourde que les autres fois. Traumatisme crânien sévère, mâchoire défoncée, six côtes cassées, poumon perforé: c'est la fois de trop pour madame D. qui ne survivra pas. Dans la presse, on titre: ". Un différend entre conjoints qui tourne mal. Choquant, n'est-ce pas? Par exemple. Ou ". Et de "...
Livet med nystagmus
En personlig blog der beskriver livet med et barn, der har nystagmus. Tirsdag den 2. september 2014. OUH undersøgelse 18.08.14 med mere. Johanna var til rutineundersøgelse på OUH hos Roy d. 18. august. Der gik fint. Roy vurderede, at hendes syn ikke har ændret sig, og hun behøvede ikke at blive dryppet (heldigvis, for hun hader det). Hun har det nogle gange lidt svært i børnehaven. Hendes bedste venner er begyndt at udelukke hende fra legen, og hun oplever, at der er ting, de kan, som hun ikke kan. Johan...
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NystagmusAlbino (Nystagmus Henry) - DeviantArt
Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) " class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ". Join DeviantArt for FREE. Forgot Password or Username? Deviant for 5 Years. This deviant's full pageview. This is the place where you can personalize your profile! By moving, adding and personalizing widgets. You can drag and drop to rearrange. Why," you ask?
nystagmusandcones.blogspot.com
Life in detail
Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Thursday, 1 February 2018. MyGuide with Guide Dogs. I have finished my volunteer training with Guide Dogs and I have been matched with my first My Guide client. We are going to meet on Fridays just after lunch and mainly go out for walks to give her an opportunity to get out and about. Tuesday, 30 January 2018. Volunteer training for Guide Dogs. One of these, My Guide, is the service for...
Nystagmus Aware Australia - Raising awareness of Nystagmus
Raising awareness to the plight of Nystagmus in Australia. Photos of our fundraiser. ABN 26244055474 A REGISTERED HEALTH CHARITY. Nystagmus is also affected by outside influences like bright sunshine, tiredness, medication, stress, so the severity of it can vary at different times of the day. Most people with Nystagmus can never hold a driver’s licence, thus severely limiting their chances of finding work especially if they live outside a capital city where public transport is not as good. It is almo...
Nystagmus Hope – Effective and Hopeful
Skip to primary navigation. Skip to secondary navigation. Skip to primary sidebar. Welcome to Nystagmus Hope. Nystagmus Hope provides information on both surgical procedures and none-invasive techniques as well as products that focus on. The simple act of being able to look someone in the eye without being uncomfortable is life changing. You’ll experience a flutter of joy that has very few equals. Many people are affected by the condition, whether it’s acquired or congenital, and only someone havin...
nystagmusinanutshell.wordpress.com
Living, Laughing & Loving With Wobbly Eyes
Living, Laughing and Loving With Wobbly Eyes. 5 Things NEVER to Say to Someone with Nystagmus. Nystagmus isn’t exactly the most recognised eye sight condition around 1 in 1000-2000 people have it (that’s actually quite a lot if you think about it.) Most people don’t know how to react or what to say when I explain the complexity of my visual impairment. After a while, a majority of them forget… Read More 5 Things NEVER to Say to Someone with Nystagmus. March 28, 2016. March 28, 2016. February 27, 2016.
nystagmusmum | Seeing the world through wobbly eyes
If you’d like to have a chat about nystagmus, you can contact nystagmusmum by email:. For more information and support go to the Nystagmus Network. Http:/ www.nystagmusnet.org/. 1 Comment ». 8212; December 28, 2013 @ 9:27 am. Feed for comments on this post. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Notify me of new comments via email.
Nystagmus Music - Nystagmus Music - Home
I am a passionate musician who has been creating music for around 4 years. Styles of music that I am interested in are Electronic, Dance, Drum and Bass, Chillout and Dubstep. I have set up and recorded numerous bands and acts, done post-production work with short films and radio advertisements and also have been a crew member during live shows at the Piazza in Brisbane. I have a Diploma of Sound Production from Southbank Institute of Technology.
