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nystagmusmum | Seeing the world through wobbly eyes

When my daughter was just a few weeks old, a doctor told me she was blind.  She wasn't blind, of course.  I knew that already.  But I also knew that there was something wrong with her eyes.  It turned out that she had something called nystagmus.  We had never heard of it and there was…

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When my daughter was just a few weeks old, a doctor told me she was blind.  She wasn't blind, of course.  I knew that already.  But I also knew that there was something wrong with her eyes.  It turned out that she had something called nystagmus.  We had never heard of it and there was…
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nystagmusmum | Seeing the world through wobbly eyes | nystagmusmum.wordpress.com Reviews

https://nystagmusmum.wordpress.com

When my daughter was just a few weeks old, a doctor told me she was blind.  She wasn't blind, of course.  I knew that already.  But I also knew that there was something wrong with her eyes.  It turned out that she had something called nystagmus.  We had never heard of it and there was…

INTERNAL PAGES

nystagmusmum.wordpress.com nystagmusmum.wordpress.com
1

May | 2012 | nystagmusmum

https://nystagmusmum.wordpress.com/2012/05

May 16, 2012. Going to big school. Filed under: Going to big school. 8212; by nystagmusmum @ 11:02 am. On Tuesday 17 September 2002 our 11-year-old daughter gave a talk at Kent Association for the Blind about the transition from primary to secondary school. This blog has published some of her thoughts. Here’s a note from Mum:. This article was first published in Focus magazine in December 2002. Find out more about nystagmus from the Nystagmus Network. May 15, 2012. Going to big school. May 14, 2012.

2

November | 2013 | nystagmusmum

https://nystagmusmum.wordpress.com/2013/11

November 6, 2013. Filed under: Wobbly Wednesday. 8212; by nystagmusmum @ 1:00 pm. It’s about time everyone knew about nystagmus, so let’s get the social networks buzzing! Wobble along with us on Twitter #WobblyWednesday. It’s Wobbly Wednesday! Filed under: Wobbly Wednesday. 8212; by nystagmusmum @ 8:30 am. It’s about time everyone knew about nystagmus, so let’s get the social networks buzzing! Wobble along with us on Twitter #WobblyWednesday. November 5, 2013. Wobbly Wednesday is nearly here! Filed under...

3

April | 2012 | nystagmusmum

https://nystagmusmum.wordpress.com/2012/04

April 29, 2012. The world through wobbly eyes – a diary. Filed under: The world through wobbly eyes - a diary. 8212; by nystagmusmum @ 9:07 pm. When I was a baby a doctor told my mum I was blind. I wasn’t blind, of course, but I did have nystagmus. Now I’m ten and I’ve still got nystagmus. This is how I see the world through wobbly eyes …. Extract of a diary first published in FOCUS magazine in June 2002. Find out more about nystagmus from the Nystagmus Network. April 26, 2012. April 25, 2012. The last d...

4

August | 2015 | nystagmusmum

https://nystagmusmum.wordpress.com/2015/08

August 20, 2015. Get your Wobbly Wednesday Twibbon now! Filed under: Wobbly Wednesday. 8212; by nystagmusmum @ 12:34 pm. Show your support for Wobbly Wednesday 2015 by clicking the link, here: http:/ twibbon.com/support/wobblywednesday. August 10, 2015. Knitting for Wobbly Wednesday? Filed under: Wobbly Wednesday. 8212; by nystagmusmum @ 9:16 am. And some people just go a little bit too far and knit a whole lot of jelly babies! Http:/ www.nystagmusnet.org. Https:/ www.facebook.com/NystagmusNetwork.

5

December | 2011 | nystagmusmum

https://nystagmusmum.wordpress.com/2011/12

December 24, 2011. Happy Christmas from nystagmusmum! 8212; by nystagmusmum @ 11:59 pm. Wishing you all a very happy Christmas. Find out more about nystagmus from the Nystagmus Network. The world through wobbly eyes – a diary. Filed under: The world through wobbly eyes - a diary. 8212; by nystagmusmum @ 6:31 pm. Mum’s just asked me about the school photos. My stupid brother brought his home. Trust him to ruin everything! Extract of a diary first published in FOCUS magazine in June 2000. December 23, 2011.

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Life in detail

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Thursday, 1 February 2018. MyGuide with Guide Dogs. I have finished my volunteer training with Guide Dogs and I have been matched with my first My Guide client. We are going to meet on Fridays just after lunch and mainly go out for walks to give her an opportunity to get out and about. Tuesday, 30 January 2018. Volunteer training for Guide Dogs. One of these, My Guide, is the service for...

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Nystagmus Aware Australia - Raising awareness of Nystagmus

Raising awareness to the plight of Nystagmus in Australia. Photos of our fundraiser. ABN 26244055474 A REGISTERED HEALTH CHARITY. Nystagmus is also affected by outside influences like bright sunshine, tiredness, medication, stress, so the severity of it can vary at different times of the day. Most people with Nystagmus can never hold a driver’s licence, thus severely limiting their chances of finding work especially if they live outside a capital city where public transport is not as good. It is almo...

nystagmushope.org nystagmushope.org

Nystagmus Hope – Effective and Hopeful

Skip to primary navigation. Skip to secondary navigation. Skip to primary sidebar. Welcome to Nystagmus Hope. Nystagmus Hope provides information on both surgical procedures and none-invasive techniques as well as products that focus on. The simple act of being able to look someone in the eye without being uncomfortable is life changing. You’ll experience a flutter of joy that has very few equals. Many people are affected by the condition, whether it’s acquired or congenital, and only someone havin...

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Living, Laughing & Loving With Wobbly Eyes

Living, Laughing and Loving With Wobbly Eyes. 5 Things NEVER to Say to Someone with Nystagmus. Nystagmus isn’t exactly the most recognised eye sight condition around 1 in 1000-2000 people have it (that’s actually quite a lot if you think about it.) Most people don’t know how to react or what to say when I explain the complexity of my visual impairment. After a while, a majority of them forget… Read More 5 Things NEVER to Say to Someone with Nystagmus. March 28, 2016. March 28, 2016. February 27, 2016.

nystagmusmum.wordpress.com nystagmusmum.wordpress.com

nystagmusmum | Seeing the world through wobbly eyes

If you’d like to have a chat about nystagmus, you can contact nystagmusmum by email:. For more information and support go to the Nystagmus Network. Http:/ www.nystagmusnet.org/. 1 Comment ». 8212; December 28, 2013 @ 9:27 am. Feed for comments on this post. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Notify me of new comments via email.

nystagmusmusic.com nystagmusmusic.com

Nystagmus Music - Nystagmus Music - Home

I am a passionate musician who has been creating music for around 4 years. Styles of music that I am interested in are Electronic, Dance, Drum and Bass, Chillout and Dubstep. I have set up and recorded numerous bands and acts, done post-production work with short films and radio advertisements and also have been a crew member during live shows at the Piazza in Brisbane. I have a Diploma of Sound Production from Southbank Institute of Technology.

nystagmusnet.org nystagmusnet.org

Home - Nystagmus Network UK

The leading patient information, support and scientific research charity for nystagmus in Europe. Nystagmus in the media. We respect your privacy. What is the Members' Area? Members of the UK Nystagmus Network can log in below to see back issues of our newsletters, articles and more information on diagnostic tests, driving, employment, research and treatment. To find out more about the members’ area and the benefits of belonging to the Nystagmus Network click here. Login to members' area. The Nystagmus N...

nystagmusnetwork.org nystagmusnetwork.org

Nystagmus Network

Wobbly Wednesday Event Map 2016. Nystagmus is a complex eye condition characterised by involuntary eye movements. The Nystagmus Network is a UK based charity which supports people affected by the condition and leads the research into finding a treatment. Support the Nystagmus Network. With your help we can make the difference to lots of people who are affected by Nystagmus. Watch out video called “The way we see it”. To understand how nystagmus affects people. WATCH THE WAY WE SEE IT. The Nystagmus Netwo...

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Nystagmus Walk 2013

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