Pleuropulmonary blastoma (PPB) is a rare tumor of the lung that affects young children. The PPB DICER1 Syndrome Study ‹an observational clinical research study‹is enrolling children with PPB and their families.
http://ppb.cancer.gov/
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Pleuropulmonary Blastoma DICER1 Syndrome Study | ppb.cancer.gov Reviews
https://ppb.cancer.gov
Pleuropulmonary blastoma (PPB) is a rare tumor of the lung that affects young children. The PPB DICER1 Syndrome Study ‹an observational clinical research study‹is enrolling children with PPB and their families.
ppb.cancer.gov
PPB | Study Team
https://www.ppb.cancer.gov/team.html
Skip to Main Content. What is the study about? Who is on the study team? What is a clinical study? Who is on the study team? Syndrome Study team is made up of researchers from these collaborating institutions:. National Cancer Institute (NCI). Douglas Stewart, MD. Study Director/Principal Investigator) is an internist and medical geneticist at NCI's Clinical Genetics Branch. Dr. Stewart has a special interest in familial cancer syndromes. Ann Carr, MS, CGC. Rosamma Decastro MSN, CRNP. Leslie Doros, MD,.
PPB | About
https://www.ppb.cancer.gov/about.html
Skip to Main Content. What is the study about? Who is on the study team? What is a clinical study? What is the study about? The goal of the PPB. Syndrome Study is to improve the care of individuals with PPB and other [glossary term:]. Associated with changes in the. Gene Specifically, the study seeks to:. Identify the kinds of tumors and risks associated with. Determine what leads some individuals with a change in the. To develop a tumor while others with the change remain healthy. Gene and their families.
PPB | What is a Clinical Study
https://www.ppb.cancer.gov/clinical.html
Skip to Main Content. What is the study about? Who is on the study team? What is a clinical study? What is a clinical study? A clinical study involves research using human volunteers (also called participants) and is intended to add to medical knowledge. There are two types of clinical studies: clinical trials and observational studies. The PPB. Syndrome Study is an observational study. Patient privacy is our top priority. NCI will share your information only. Other Clinical Studies at NCI.
PPB | What is PPB?
https://www.ppb.cancer.gov/what.html
Skip to Main Content. What is the study about? Who is on the study team? What is a clinical study? Pleuropulmonary blastoma (PPB) is a rare [glossary term:]. Of the lung. It is typically diagnosed in infants and children younger than six years old. Research has shown that PPB, and other related tumors, may be part of an inherited cancer predisposition [glossary term:]. Resulting from changes in a gene known as. Not everyone with PPB has a change in. That can be detected from a blood and/or saliva sample.
PPB | What is PPB?
https://www.ppb.cancer.gov/dicer1.html
Skip to Main Content. What is the study about? Who is on the study team? What is a clinical study? Everyone inherits two copies of the. From their parents, one from their mother and one from their father. This gene works to manage the function of other genes. In most people, this gene works properly. In very few people, one or both copies of the gene has changes in the DNA letters that make up the. Gene can result in a variety of rare tumors. We refer to this set of tumors as the. How can I join? Nationa...
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Resources - International Ovarian and Testicular Stromal Tumor Registry
http://www.otstregistry.com/resources
Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. Http:/ www.ppbregistry.org/. Http:/ ppb.cancer.gov/. Http:/ www.ovarian.org/.
Resources - International Ovarian and Testicular Stromal Tumor Registry
http://www.otstregistry.org/resources
Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. Http:/ www.ppbregistry.org/. Http:/ ppb.cancer.gov/. Http:/ www.ovarian.org/.
PPBfamily.org
http://www.ppbfamily.org/resources.shtml
Next PPB Family Weekend conference. Will be August 7-9, 2015! PPB Families, sign-up for a private email list! Pleuropulmonary Blastoma (PPB) Resources. We family volunteers are providing this Resource page as a service to other PPB families seeking information. We are not. A source for medical information. Please rely on your oncologist for medical advice. We encourage families to enroll. In the PPB Registry so that our collective involvement can work toward a cure. PPB Registry Facebook Page. Season 4, ...
Genetic Study of PPB - The International Pleuropulmonary Blastoma Registry
http://www.ppbregistry.org/health-professionals/critical-issues/genetic-study-of-ppb
Basic Facts About PPB. PPB Types: I, II and III. Age at Diagnosis, Gender, Laterality. Constitutional and Familial Issues: Genetics of PPB. A Very Rare Disease: Enrolling Patients in the Registry. Cerebral Metastases in PPB - Surveillance Recommended. Genetic Study of PPB. PPB Associated with Cystic Nephroma and Other Renal Tumors. Type I PPB: Treatment Issues. Type II and III THERAPY RECOMMENDATION CHANGE. Constitutional/Syndrome and Familial Disease. The Child with PPB. The Family of the Child with PPB.
Douglas Stewart Uncovers Genetic Variation in Rare Hereditary Cancers - National Cancer Institute
http://dceg.cancer.gov/news-events/linkage-newsletter/2015-07/staff-updates/doug-stewart-profile
Discovering the causes of cancer and the means of prevention. Public Health Impact of DCEG Research. Become a Summer Intern. What Our Fellows Do. Training Resources for Fellows and Staff. Tenure-Track Career Path in DCEG. Risk Assessment Macros and Software Programs. Research News and Highlights. People in the News. Research News and Highlights. People in the News. Douglas Stewart Uncovers Genetic Variation in Rare Hereditary Cancers. By Victoria Fisher, M.P.H. From Chemistry to Clinical Genetics. That e...
Biographical sketch and research interests of Douglas Stewart, M.D. - National Cancer Institute
http://dceg.cancer.gov/about/staff-directory/biographies/A-J/stewart-douglas
Discovering the causes of cancer and the means of prevention. Public Health Impact of DCEG Research. Become a Summer Intern. What Our Fellows Do. Training Resources for Fellows and Staff. Tenure-Track Career Path in DCEG. Risk Assessment Macros and Software Programs. Research News and Highlights. People in the News. Douglas Stewart, M.D. Douglas Stewart, M.D. Division of Cancer Epidemiology and Genetics, Clinical Genetics Branch. Dr Stewart is continuing data analysis from two protocols from his time at ...
Constitutional & Familial Issues: Genetics of PPB - The International Pleuropulmonary Blastoma Registry
http://www.ppbregistry.org/health-professionals/critical-issues/constitutional-and-familial-issues-genetics-of-ppb
Basic Facts About PPB. PPB Types: I, II and III. Age at Diagnosis, Gender, Laterality. Constitutional and Familial Issues: Genetics of PPB. A Very Rare Disease: Enrolling Patients in the Registry. Cerebral Metastases in PPB - Surveillance Recommended. Genetic Study of PPB. PPB Associated with Cystic Nephroma and Other Renal Tumors. Type I PPB: Treatment Issues. Type II and III THERAPY RECOMMENDATION CHANGE. Constitutional/Syndrome and Familial Disease. The Child with PPB. The Family of the Child with PPB.
The Child with PPB - The International Pleuropulmonary Blastoma Registry
http://www.ppbregistry.org/health-professionals/constitutional-syndrome-and-familial-disease/the-child-with-ppb
Basic Facts About PPB. PPB Types: I, II and III. Age at Diagnosis, Gender, Laterality. Constitutional and Familial Issues: Genetics of PPB. A Very Rare Disease: Enrolling Patients in the Registry. Cerebral Metastases in PPB - Surveillance Recommended. Genetic Study of PPB. PPB Associated with Cystic Nephroma and Other Renal Tumors. Type I PPB: Treatment Issues. Type II and III THERAPY RECOMMENDATION CHANGE. Constitutional/Syndrome and Familial Disease. The Child with PPB. The Family of the Child with PPB.
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Pleuropulmonary Blastoma DICER1 Syndrome Study
Skip to Main Content. What is the study about? Who is on the study team? What is a clinical study? Pleuropulmonary blastoma (PPB) is a rare [glossary term:]. Of the lung. Research has shown that PPB may be part of an inherited cancer predisposition [glossary term:]. Caused by changes in a [glossary term:]. Syndrome Study is an observational study of individuals with PPB and/or other. Related tumors and their families. The study will help researchers define the tumor types and risks associated with the.
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