samanthahughes.co.uk
About-Us
http://samanthahughes.co.uk/aboutus.htm
Children have the ability to ignore odds and percentages,. Then maybe we can all learn from them. When you think about it, what other chance is there but to hope? We have two options, medically and emotionally: give up, or fight like hell. Raise Awareness with the. Pain is Temporary, Quitting Is Forever. There are 2 ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle. So rare there were only around 50 cases like it, in the world. In the late summe...
otstregistry.com
Resources - International Ovarian and Testicular Stromal Tumor Registry
http://www.otstregistry.com/resources
Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. Http:/ www.ppbregistry.org/. Http:/ ppb.cancer.gov/. Http:/ www.ovarian.org/.
otstregistry.org
Resources - International Ovarian and Testicular Stromal Tumor Registry
http://www.otstregistry.org/resources
Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. Http:/ www.ppbregistry.org/. Http:/ ppb.cancer.gov/. Http:/ www.ovarian.org/.
ppb.cancer.gov
PPB | Study Team
https://www.ppb.cancer.gov/team.html
Skip to Main Content. What is the study about? Who is on the study team? What is a clinical study? Who is on the study team? Syndrome Study team is made up of researchers from these collaborating institutions:. National Cancer Institute (NCI). Douglas Stewart, MD. Study Director/Principal Investigator) is an internist and medical geneticist at NCI's Clinical Genetics Branch. Dr. Stewart has a special interest in familial cancer syndromes. Ann Carr, MS, CGC. Rosamma Decastro MSN, CRNP. Leslie Doros, MD,.
ppbfamily.org
PPBfamily.org
http://www.ppbfamily.org/meeting.shtml
Next PPB Family Weekend conference. Will be August 7-9, 2015! PPB Families, sign-up for a private email list! 2015 PPB Family Meeting Dates. The 2015 PPB and OTST Family Meeting will occur August 6-8 at the Radisson Blu Hotel in Bloomington, MN. For more information visit the meeting website. 2012 PPB Family Meeting Dates. 2012 PPB Family Education and Support Meeting occured August 12-14 at Camp Courage. Outside of Minneapolis, MN. 2012 Program from Maple Lake, MN. Monday, August 13. Alberto I. Roca.
ppbgeneticstudy.org
Pleuropulmonary Blastoma Research
http://www.ppbgeneticstudy.org/participant_info/index.htm
Participating in the PPB Genetic Research Study. Information for Study Participants. The International PPB Registry. Help Fund PPB Research. PPB Genetic Study Results (updated October 2011). So here's a quick update on what is going on in our team's PPB research. 1 Mutations in a gene called DICER1 are the major predisposing factor in the risk for developing PPB or related conditions. To begin to address this challenge. And a $50,000 from Hyundai Hope on Wheels. To support this important work. Mutation t...
ppbgeneticstudy.org
Pleuropulmonary Blastoma Research
http://www.ppbgeneticstudy.org/collaborators/collaborators.html
Participating in the PPB Genetic Research Study. Information for Study Participants. The International PPB Registry. Help Fund PPB Research. What's NEW in PPB Research? The Familial PPB-Tumor Predisposition Syndrome. New CNMC Collaborators Added to Team! Children's National Medical Center. D Ashley Hill, M.D. Associate Professor of Pathology and of Pediatrics, George Washington University School of Medicine and Health Sciences. Washington University in St. Louis School of Medicine. Leader, Alvin J. S...
ppbgeneticstudy.org
Pleuropulmonary Blastoma Research
http://www.ppbgeneticstudy.org/physician_info/physician_info.html
Participating in the PPB Genetic Research Study. Information for Study Participants. The International PPB Registry. Help Fund PPB Research. This page provides information for physicians helping children with PPB and their families participate in the PPB research study. Thank you in advance for your important contribution of time and energy. Providing information for enrolling families in the study. Diseases Associated with PPB. Providing information for enrolling families in the study.
