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My PURA Gene Family – In Words - Family Synapse
http://familysynapse.com/my-pura-gene-family-part-one
Aidan In the News. My PURA Gene Family – In Words. Middot; August 3, 2015. My son Aidan was born with an undiagnosed disability and remained undiagnosed for 13 years. It came as a total shock to us that there was even such a category as “undiagnosed”, that doctors sometimes really don’t have the answer. So we lived for years with more questions than answers, at first fighting hard to find them, and then relaxing into the hopeful possibilities of each day. Aidan was born before the internet (sort of) so e...
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Word Gets Around - Family Synapse
http://familysynapse.com/word-gets-around
Aidan In the News. Our stories are important, each and every one of them. I enjoy building community here on the internet and meeting new people. Here are some places I have been privileged to share my story:. Beth Woolsey – I wrote Broken. As part of her Parenting and Imperfection Series. Rachel Held Evans – A hearty Eshet Chayil. To my friend raising a child with a cardiac condition. She Loves Magazine – A piece about seizures: Can Love Cover this Fear? And her piece on First Wheels and Jetpacks. Http:...
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My PURA Gene Family – In Poetry - Family Synapse
http://familysynapse.com/my-pura-gene-family-in-poetry
Aidan In the News. My PURA Gene Family – In Poetry. Middot; August 4, 2015. I’m very excited to introduce you to a fellow PURA mom. This is Sarah, mom of the adorable Audrey and Alvie. Here is her reflection of our get together. Photo – Faith Light Photography. I am at the PURA Conference in Connecticut. I am here for you but I am also here for me. I am here to breathe. To take breaths. I n a n d o u t. That make us tired. That make us stressed. I am here to learn to take breaths everyday. I am here to h...
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Food for Thought - Family Synapse
http://familysynapse.com/food-for-thought-44
Aidan In the News. Middot; July 13, 2015. Food for Thought – July 13, 2015. Now, I’m all for disability pride. I like to think of myself as a bit of an advocate, not just for my son but for the rights of people with disabilities in general. I want to end the stigma. I want to change the conversation. I want to bridge the gap between them and us. But also, I want a mother. 5 Ways Able-Bodied People Can do Better by People in Wheelchairs. World’s Okayest Mom. The Making of a Man. You may also like. Http:/ ...
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Communication - Family Synapse
http://familysynapse.com/category/communication-2
Aidan In the News. 22 Jan, 2016. 16 Dec, 2015. The truth about talking. 2 Dec, 2015. Thanksgiving was amazing. Turkey? Yes and yes. Vegetables? 16 Oct, 2015. You Just Bought Speak For Yourself. Now What? Welcome to the AAC Family! 13 Oct, 2015. Speak for Yourself Sale. 29 Sep, 2015. Thoughts about our 21 Day AAC Challenge. 21 Jul, 2015. 26 May, 2015. 1 Apr, 2015. The Risk of Believing. 17 Feb, 2015. So Tell Me What You Want What You Really Really Want. Page 1 of 2. Wishing Him Gone: My Messy Beautiful.
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Being a Parent - Family Synapse
http://familysynapse.com/category/being-a-parent
Aidan In the News. Category: Being a Parent. 19 Oct, 2016. Boys will be awesome. 12 Aug, 2015. 8 Jul, 2015. The Making of a Man. 30 May, 2012. This Side of the Grass. Wishing Him Gone: My Messy Beautiful. 7 Apr, 2014. This Side of the Grass. 30 May, 2012. Letter To The Others. 3 Oct, 2012. Let’s Play a Game. 11 Nov, 2014. 28 Sep, 2012. Beth A. Leahy says:. Thank you. You speak the truth for pain and grief. That was the toughest part of my dog having knee surgery,. Hi, I'm Heather. I'd love to help you sh...
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Epilepsy - Family Synapse
http://familysynapse.com/epilepsy
Aidan In the News. Effects of Epilepsy on the Body:. Diagram courtesy of Healthline.com. Here are a few resources for information about Epilepsy:. Has information about research and a list. Has lots of information as well. Here are some posts I wrote with some basic information about:. What Epilepsy Isn’t. Different Kinds of Seizures. Meet the Faces of Epilepsy:. Wishing Him Gone: My Messy Beautiful. 7 Apr, 2014. This Side of the Grass. 30 May, 2012. Letter To The Others. 3 Oct, 2012. 11 Nov, 2014. Http:...
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Family Synapse - Family Synapse
http://familysynapse.com/category/familysynapse
Aidan In the News. 21 Sep, 2016. 1 Sep, 2016. Reposting for Paralympics in Rio – Also check out Paralympics.org to watch the Games! 6 Apr, 2016. 30 Mar, 2016. 19 Jan, 2016. I recently found myself recalling our home renovation project to a friend. It made me go back to the Bowie House blog and re-read everything. I still can’t quite believe my community came together to make my home accessible for Aidan. Amazing! I have a few posts I’d like to re-share from those days. Enjoy! 5 Jan, 2016. 30 Nov, 2015.
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Food for Thought - Family Synapse
http://familysynapse.com/category/food-for-thought-2
Aidan In the News. Category: Food for Thought. 7 Dec, 2015. 2 Nov, 2015. 26 Oct, 2015. 12 Oct, 2015. 13 Jul, 2015. 1 Apr, 2015. Food for Thought – April 6, 2015 Edition When a Little Girl at the Pool Realized My Son Had Autism Here, get on the float, I’ll pull you, I’ll throw the ball, and you catch, OK? Was I really seeing what I was seeing? Was my son playing? Did my son finally have a friend? 23 Mar, 2015. 9 Mar, 2015. 28 Feb, 2015. Susannah Cahalan Ghost Boy. 23 Feb, 2015. Page 1 of 6. 7 Apr, 2014.