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EN-RBD - European Network of rare bleeding disorders

EN-rbd - european network of rare bleeding disorder

http://www.rbdd.eu/

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EN-RBD - European Network of rare bleeding disorders | rbdd.eu Reviews

https://rbdd.eu

EN-rbd - european network of rare bleeding disorder

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1

EN-RBD - Abstract - European Network of rbd's

http://www.rbdd.eu/ehac_project.htm

The general objective of this project is to set up a European network of treatment centres of rare bleeding disorders (RBDs), exploiting the potential of the existing database on RBDs called the Rare Bleeding Disorders Database (RBDD) by extending its proven organisational capacity and experience in collecting pertinent data. 2 Strategic relevance and contribution to the public health. 3 Methods and means. The end result after three years of this project will be the creation of an online database geared ...

2

EN-RBD - the network

http://www.rbdd.eu/partners.htm

Map of the network. Hemofilie Centrum Leuven, KU Leuven, Belgium. Centre for Hemophilia and Thrombosis, Dept of Clinical Biochemistry, University Hospital Skejbi, Aarhus, Denmark. Pediatric Hemophilia and Thrombosis Centre, Children's Hospital, Munich, Germany. Hauner.klinikum.uni-muenchen.de. Haemophillia Center, Haemostasis Unit, Athens, Greece. National Centre for Hereditary Coagulation Disorders, St James's Hospital, Dublin, Ireland. Cerrahpasa Medical Faculty of Istanbul University, Istanbul, Turkey.

3

EN-RBD project video clip

http://www.rbdd.eu/clip.htm

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RBDD-EN European Network of rare bleeding disorders database

http://www.rbdd.eu/workshop.htm

The yearly workshop is the place, foreseen by the project, where to discuss topics such as: technical and scientific activities of the project, integration of scientific efforts and survey of scientific progress in terms of deliverables, adjustment of work packages and change in technologies, safety and accuracy of obtained data, management of fund allocation, delivery of accountability reports to the EC. Annual workshops of the. Milan-Italy , November 2007. Copenhagen, Denmark December 2008.

5

EN-RBD - the network

http://www.rbdd.eu/project.htm

The main goals of the EN-RBD project are:. To produce guidelines for diagnosis and treatment. To standardize laboratory methods for phenotype and genotype analysis according to the standard procedures ruled by International Society on Thrombosis and Haemostasis (ISTH). To stimulate the interest of pharmaceutical industries in the development or improvement of not yet available products (as FV and FX concentrates) and of regulatory agencies (FDA, EMEA) in the planning of new clinical trials.

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rarecoagulationdisorders.org rarecoagulationdisorders.org

Combined Deficiency | Factor VIII, FVIII | Factor V, FV

http://www.rarecoagulationdisorders.org/diseases/combined-factor-v-and-factor-viii/disease-overview

Combined Factor V and Factor VIII Deficiency. Combined deficiency of Factor V (FV) and Factor VIII (FVIII). F5F8D, Online Mendelian Inheritance in Man. OMIM] # 227300) is an autosomal recessive bleeding disorder characterized by concomitantly low levels of the two coagulation factors. This condition was first described by Oeri et al. in 1954. The molecular mechanism of the association of the two factor deficiencies had not been understood until Nichols et al. In 2003, Zhang et al. Are essential coagulati...

fondazioneluigivilla.org fondazioneluigivilla.org

Fondazione Luigi Villa - link collegamenti

http://www.fondazioneluigivilla.org/link.htm

Via Pace, 9. Tel: 39 02 55 10 709. 39 02 55 03 54 14. Fax: 39 02 54 100 12. European Network of R. Centro Emofilia e Trombosi Angelo Bianchi Bonomi. Fondazione IRCCS di natura pubblica Ospedale Maggiore, Mangiagalli e Regina Elena di Milano. World Federation of Hemophilia. Università degli Studi di Milano. Porpora trombotica trombocitopenica (TTP). AICE (Associazione Italiana Centri Emofilia). ISTH (International Society of Thrombosis and Haemostasis). FEDEMO (Federazione delle associazioni Emofilici).

wrbd.org wrbd.org

Menorrhagia - Women Rare Bleeding Disorders

http://www.wrbd.org/link.htm

Open in a new browser window. Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre. International Registry of Rare Bleeding Disorders. IRCCS Foundation Maggiore Hospital, Mangiagalli, Regina Elena. World Federation of Hemophilia. ISTH (International Society of Thrombosis and Haemostasis). European Network of Rare Bleeding Disorders. 2016 Fondazione Luigi Villa.

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Links

http://www.fcsa.it/Links/Index

Account vecchio sito NON PIU' VALIDO. Database dedicato alla PORPORA TROMBOTICA TROMBOCITOPENICA (TTP). Il gruppo di ricerca della Fondazione Luigi Villa, Fondazione IRCSS Ospedale Maggiore, Mangiagalli e Regina Elena e Università degli Studi di Milano da alcuni anni si occupa di porpora trombotica trombocitopenica (TTP) cercando di approfondire il meccanismo fisiopatogenetico di tale malattia. Il portale dei trattamenti anticoagulanti e antitrombotici.

wrbd.org wrbd.org

Menorrhagia - Women Rare Bleeding Disorders

http://www.wrbd.org/new.htm

Is a project aimed at establishing a network of haemophilia centres to work together on a number of related projects to improve the care of European citizens with inherited bleeding disorders. The project will be directed from Sheffield in the UK by Dr Mike Makris. There are five associated partners:. European Haemophilia Consortium (EHC). European Association for Haemophilia and Allied disorders (EAHAD). University Medical College Utrecht. Medical Data Solutions and Services Ltd (MDSAS). These small cel...

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EN-RBD - European Network of rare bleeding disorders

Update April 3th 2014. This website arises from the project Establishment of a European Network of Rare Bleeding Disorders ( EN-RBD. Funding from the European Union, in the framework of the Public Health Programme. This project has been completed in 2011. Rare Bleeding Disorders Network.

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