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Menorrhagia - Women Rare Bleeding Disorders

Menorrhagia - Women Rare Bleeding Disorders - wrbd

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PAGE TITLE
Menorrhagia - Women Rare Bleeding Disorders | wrbd.org Reviews
<META>
DESCRIPTION
Menorrhagia - Women Rare Bleeding Disorders - wrbd
<META>
KEYWORDS
1 Working group
2 menorrhagia
3 gynaecological problems
4 women
5 affected
6 bleeding disorders
7 bleeding
8 disorders
9 gynaecological
10 coadiuva
CONTENT
Page content here
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PAGE
to reproductive issues
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Menorrhagia - Women Rare Bleeding Disorders | wrbd.org Reviews

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Menorrhagia - Women Rare Bleeding Disorders - wrbd

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1

Menorrhagia - Women Rare Bleeding Disorders

http://www.wrbd.org/new.htm

Is a project aimed at establishing a network of haemophilia centres to work together on a number of related projects to improve the care of European citizens with inherited bleeding disorders. The project will be directed from Sheffield in the UK by Dr Mike Makris. There are five associated partners:. European Haemophilia Consortium (EHC). European Association for Haemophilia and Allied disorders (EAHAD). University Medical College Utrecht. Medical Data Solutions and Services Ltd (MDSAS). These small cel...

2

Menorrhagia - Women Rare Bleeding Disorders

http://www.wrbd.org/credits.htm

Angelo Bianchi Bonomi" Hemophilia and Thrombosis Center.

3

Menorrhagia - Women Rare Bleeding Disorders

http://www.wrbd.org/menorrhagia.htm

Is a common gynaecological problem, comprising 12% of all gynaecology referrals and is the commonest symptom present during the reproductive life of women. Normal menstruation occurs every 21 to 35 days, lasts 7 or less, and results in 25 ml to 69 ml blood loss per cycle. Some women have heavy periods almost every cycle. Menorrhagia is the medical term. For excessive blood loss as heavy menses lasting more than 7 days; an objective definition is menstrual blood loss of more than 80 mL per menstruation [ 1.

4

Menorrhagia - Women Rare Bleeding Disorders

http://www.wrbd.org/link.htm

Open in a new browser window. Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre. International Registry of Rare Bleeding Disorders. IRCCS Foundation Maggiore Hospital, Mangiagalli, Regina Elena. World Federation of Hemophilia. ISTH (International Society of Thrombosis and Haemostasis). European Network of Rare Bleeding Disorders. 2016 Fondazione Luigi Villa.

5

Menorrhagia - inherited coagulation disorders

http://www.wrbd.org/disorders.htm

Von Willebrand disease (VWD). VWD is the most common hereditary bleeding disorder with, according to epidemiological studies, an estimated prevalence worldwide as high as 1 to 2% in the general population [ 5. In contrast, estimates based on referral for symptoms of bleeding suggest a prevalence of 30 to 100 cases per million, similar to that of haemophilia A [ 8. The large VWF gene (VWF) is located on chromosome 12 at 12p13.3. VWD displays both dominant and recessive inheritance [ 8. RBDs are autosomall...

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http://www.rbdd.eu/link.htm

Rare Bleeding Disorders Network. DG Sanco - Health and Consumer Protection. IRCCS Foundation Maggiore Hospital, Mangiagalli, Regina Elena. European organization for rare diseases. Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre of Milan. International Registry of Rare Bleeding Disorders. Working group on menorrhagia and other gynaecological problems in women affected by bleeding disorders. European Union Committee of Experts on Rare Diseases. Greece - Hemophilia Patients Society. EHA (European Ha...

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Fondazione Luigi Villa - link collegamenti

http://www.fondazioneluigivilla.org/link.htm

Via Pace, 9. Tel: 39 02 55 10 709. 39 02 55 03 54 14. Fax: 39 02 54 100 12. European Network of R. Centro Emofilia e Trombosi Angelo Bianchi Bonomi. Fondazione IRCCS di natura pubblica Ospedale Maggiore, Mangiagalli e Regina Elena di Milano. World Federation of Hemophilia. Università degli Studi di Milano. Porpora trombotica trombocitopenica (TTP). AICE (Associazione Italiana Centri Emofilia). ISTH (International Society of Thrombosis and Haemostasis). FEDEMO (Federazione delle associazioni Emofilici).

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Working group on menorrhagia and other gynaecological problems in women affected by bleeding disorders. Women with rare bleeding disorders. Bleeding disorders pose important problems for women because of the reduced quality of life caused by limitations in activities and work, and because of the relationship of these disorders. These problems include excessive menstrual bleeding or menorrhagia. Update january 8th 2015. 2015 Fondazione Luigi Villa.

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